southeastgenetics.org
Video Presentations | HRSA Southeast NBS & Genetics Collaborative
http://southeastgenetics.org/education.php
Medical Home and Transitioning. Southeast NBS and Genetics Collaborative is proud to offer the following videos, presentations and lectures free of charge. For more information on these videos and other training opportunities, please use our contact page. Videos, Lectures and Presentations. Whole Genome Sequencing – It’s Time Has Arrived. 2016 SERC-SERGG Annual Conference. Ponte Vedra Beach, FL. July 16th, 2016. Finding Pearls in a Sea of Skeletal Dysplasias. 2016 SERC-SERGG Annual Conference. 2016 SERC-...
heartlandcollaborative.org
Genetic Service | Newborn Screening | Arkansas, Iowa
http://www.heartlandcollaborative.org/about/mission-history
Mission & History. How We’re Organized. How Can I Participate? Professional Resources & Services. The Heartland Genetics Services Collaborative is focused on ensuring the best possible outcome for individuals with heritable disorders and optimizing the health of the population throughout the life cycle by improving understanding and awareness of genetics, expanding access to health care, and translating new findings to improve the quality of care within an eight-state region. The major purpose of the Hea...
newbornscreening.info
NEWBORN SCREENING
http://www.newbornscreening.info/aboutUs.html
About Us - Project Information. Convening focus groups of mothers to discuss the financial, ethical, legal and social issues surrounding expanded newborn screening. Surveying parents about newborn screening educational materials. Developing disorder fact sheets for families and health care providers. Developing educational tools and guidelines for state newborn screening programs. Gathering data and analyzing the cost of active informed consent for expanded newborn screening.
newbornscreening.info
NEWBORN SCREENING
http://www.newbornscreening.info/index.html
Newborn screening programs are a collaborative effort between public health departments, hospitals, government agencies, and the parents of the children screened. As new technologies evolve, new challenges are faced. The goal of the STAR-G project was to examine the financial, ethical, legal, and social issues posed by the use of new technologies in newborn screening. If you would like copies of the Disorder Fact Sheets for Parents translated in Spanish, please click here. The Newborn Screening Technical...
msgrcc.org
Mountain States Genetics Regional Collaborative Center
http://www.msgrcc.org/regionalcollaborative.html
Moutain State Genetic Regional. Region 1: New England Regional Genetics Group. Region 2: New York-Mid-Atlantic Consortium for Genetic and Newborn Screening Services. Region 3: The Southeast Regional Genetics Group. Region 4: Region 4 Midwest Genetics Collaborative. Region 5: Heartland Genetics Services Collaborative. Region 6: Mountain States Genetics Regional Collaborative. Region 7: Western States Genetic Services Collaborative. XHTML 1.0 CSS 2.0 Last updated on:5/5/2011.
southeastgenetics.org
Florida State Projects | HRSA Southeast NBS & Genetics Collaborative
http://southeastgenetics.org/state.php/FL/Florida
Medical Home and Transitioning. British Columbia (Canada) (BC). Disctrict of Columbia (DC). Province of Quebec (PQ). View Full Southeast Map. Lab and Clinic Resources. Phyllis J. Sloyer PhD, RN. Ofelia A Alvarez MD. Laura S. Martin MD. Helen McCune MS, RD. Kris-Tena Albers MSN, ARNP. Dusty Edwards BSN, RN. Lois Taylor BSN, RN. New Born Screening Program Director. New Born Screening Data System Liaison. Early Hearing Detection and Intervention Coordinat. Limestone Life article highlights PKU (Athens, AL).
southeastgenetics.org
Affordable Care Act | HRSA Southeast NBS & Genetics Collaborative
http://southeastgenetics.org/affordable_care_act.php
Medical Home and Transitioning. Middot; Children under the age of 19 can no longer be denied insurance for pre-existing conditions. Young adults up to the age of 26 can now stay on their parents insurance plan. Elimination all lifetime maximum limits. Millions of uninsured Americans will gain access to affordable coverage through Affordable Insurance Exchanges and improvements in Medicaid and CHIP. Middot; Preventive Care Is Covered: Many insurers are now required to cover preventive services. This repor...
southeastgenetics.org
2010 Emory Metabolic Nutrition Symposium | News | HRSA Southeast NBS & Genetics Collaborative
http://southeastgenetics.org/article.php/61/2010_Emory_Metabolic_Nutrition_Symposium
Medical Home and Transitioning. 2010 Emory Metabolic Nutrition Symposium News. 2010 Emory Metabolic Nutrition Symposium. The Metabolic Nutrition Symposium provided attendees a foundation in genetic metabolic nutrition, and information related to the screening of newborns and short-term follow-up of patients. The lectures also addressed biochemistry, metabolic pathway, pathophysiology, and management strategies for the long-term follow-up of patients with an IEM, focusing on the four major categories ...
southeastgenetics.org
Calendar of Events | HRSA Southeast NBS & Genetics Collaborative
http://southeastgenetics.org/calendar.php
Medical Home and Transitioning. 2006, 2007, 2009, 2010, 2011, 2012, 2013 — SOUTHEAST NBS and GENETICS COLLABORATIVE — A HRSA SUPPORTED PARTNERSHIP. Mdash; GRANT #H46MC24090.
southeastgenetics.org
News | HRSA Southeast NBS & Genetics Collaborative
http://southeastgenetics.org/news.php
Medical Home and Transitioning. Limestone Life article highlights PKU (Athens, AL). Athens, AL based magazine Limestone Life features an article in their latest edition about Adam and Julie Tucker and their daughter who is diagnosed with PKU: Local Mom Works to Generate Support for Rare Disorder…. 2017 Annual Meeting for SERC/SERGG - July 13-15 in Asheville, NC. 2016 Annual Meeting for SERC/SERGG - July 14-16 in Ponte Vedra Beach, Florida. Adrenoleukodystrophy Symposium Talks (from NYMAC). GROUP ROOM RAT...
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