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Wishing for Elephants..Dylan's Life with SMA

Wishing for Elephants.Dylan's Life with SMA. Wednesday, September 25, 2013. Dear Disney, accessible for some does not mean accessible for all. My husband and I have lived almost 10 years trying to adapt things to make them accessible to suit our son's needs. I feel we have been relatively successful in our quest but it is not without a struggle and also without some disappointment. What does abuse of the Guest Services mean for those who truly need it? Monday, January 28, 2013. I look at Nicholas and fee...

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Wishing for Elephants..Dylan's Life with SMA | wishingforelephants.blogspot.com Reviews
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Wishing for Elephants.Dylan's Life with SMA. Wednesday, September 25, 2013. Dear Disney, accessible for some does not mean accessible for all. My husband and I have lived almost 10 years trying to adapt things to make them accessible to suit our son's needs. I feel we have been relatively successful in our quest but it is not without a struggle and also without some disappointment. What does abuse of the Guest Services mean for those who truly need it? Monday, January 28, 2013. I look at Nicholas and fee...
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Wishing for Elephants..Dylan's Life with SMA | wishingforelephants.blogspot.com Reviews

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Wishing for Elephants.Dylan's Life with SMA. Wednesday, September 25, 2013. Dear Disney, accessible for some does not mean accessible for all. My husband and I have lived almost 10 years trying to adapt things to make them accessible to suit our son's needs. I feel we have been relatively successful in our quest but it is not without a struggle and also without some disappointment. What does abuse of the Guest Services mean for those who truly need it? Monday, January 28, 2013. I look at Nicholas and fee...

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Wishing for Elephants..Dylan's Life with SMA: June 2012

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Wishing for Elephants.Dylan's Life with SMA. Tuesday, June 12, 2012. All The Right Moves. Little Mr. Cuevas. Subscribe to: Posts (Atom). The Gwendolyn Strong Foundation. The SMA Clinic at Columbia. Team Run 4 Owen. All The Right Moves. View my complete profile. Watermark template. Powered by Blogger.

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Wishing for Elephants..Dylan's Life with SMA: May 2011

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Wishing for Elephants.Dylan's Life with SMA. Sunday, May 29, 2011. Dylan and Fr. John. Dylan and Fr. Robert. Http:/ www.nysenate.gov/story/senator-skelos-honors-debbie-cuevas-2011-woman-distinction. Of course upon our return from Albany, Dylan had a fever, Heather has a double ear infection with swollen glands and I have strep throat. Poor Ron had been playing nurse to all of us. At least we have been getting some much needed spring cleaning done. All of us with Senator Dean Skelos. Team Run 4 Owen.

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Wishing for Elephants..Dylan's Life with SMA: January 2012

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Wishing for Elephants.Dylan's Life with SMA. Friday, January 13, 2012. It's not polite to stare. What is wrong, Heather? Why are people staring at Dylan? Crap) Well, sometimes people have never seen a little boy in a wheelchair. Do they think he is weird? I don't want people to stare at him. Then when you see someone staring at him tell them that it's not polite to stare. Well I am glad I am his mother and that you are not. That's true, but it was brave of you to stand up for your brother. Team Run 4 Owen.

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Wishing for Elephants..Dylan's Life with SMA: October 2011

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Wishing for Elephants.Dylan's Life with SMA. Thursday, October 20, 2011. June through September is our big fundraising season for the FSMA Greater NY Chapter. We held some amazing events this summer. Been behind in my blogging so here is a brief summary of what we accomplished. The Grand Finale was our 7th Annual Walk N Roll in Long Beach, NY in memory of Keira Sweeney. It was a beautiful day and we had 20 SMA families from the Greater NY area participate. We were able to raise over $74,000!

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Wishing for Elephants..Dylan's Life with SMA: January 2013

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Wishing for Elephants.Dylan's Life with SMA. Monday, January 28, 2013. It has been a really long time since I have blogged. The last few months have been extremely busy here at the Cuevas house. We now have a new little member to our family and his name is Nicholas John. Nicholas was born on October 24, 2012 and weighed a wopping 9 lbs 5 oz! Yes he was delivered naturally. I won't go into the details of his birth but lets just say I am glad he is on the outside. Photo by Elizabeth Kristin Photography.

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smileshoelace.blogspot.com smileshoelace.blogspot.com

Behind a Shoelace & a Smile: Offering Advice

http://smileshoelace.blogspot.com/2014/09/offering-advice.html

Tuesday, September 16, 2014. An excerpt from a conversation on a Facebook SMA support group. For privacy purposes names have been altered.]. In case you're wondering what makes me qualified to be discussing this, I will give a brief history on my life experience because I do have some. I am 26 years old and have SMA. What type? Labels: quality of life. There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. Life with the Ferrells.

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Behind a Shoelace & a Smile: August 2014

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Friday, August 1, 2014. Passion. I've been reading some extremely passionate posts as of late that are getting to me. Since I have been unable to think about much else than the hidden agenda behind the posts I am going say something. Subscribe to: Posts (Atom). There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. Life with the Ferrells. Hope for Addy Grace*. Presley and Charlotte's Corner. Jojo and his Family: Life with SMA.

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Behind a Shoelace & a Smile: March 2013

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Monday, March 25, 2013. For days now I have been trying to think of a way to say what I want and not have it sound cliché or, worse yet, stupid. It is ridiculous how many people find a phrase and say it so much that it starts to lose the intended meaning. That is exactly what I don't want and, while it is flattering to be quoted, I didn't write this so don't. Quote me. There, now that that is out of the way, let's get to the point. I recently finished a book, Forever is Over by Calvin Wade. That basicall...

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Behind a Shoelace & a Smile: PS I Love You

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Saturday, March 9, 2013. PS I Love You. This post is a few days late or a few months early, depending on how you want to look at it. Either way it is important to me so please, read on.). Logan with his B4SMA Blanket. Needless to say I smiled for the first time in days and quickly responded with my own picture (which I can't seem to find, regretfully). In any case, I said yes and throughout the SMA Community we were considered engaged. Logan sealed it with a promise of a ring as soon as he saved ...After...

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Behind a Shoelace & a Smile: April 2012

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Saturday, April 28, 2012. What am I going to do? It’ll be just like old doctor was still here, right? Wrong, very, very wrong…. While the new physician is a kind person and listened to us, his lack of knowledge was concerning. Knowledge is power, right? Monday, April 16, 2012. Subscribe to: Posts (Atom). There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. Life with the Ferrells. Hope for Addy Grace*. The O'Neill Boys' Blog.

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Behind a Shoelace & a Smile: The Ugly Truth

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Tuesday, March 5, 2013. In the winter of 2010, I wrote that I was privileged to have SMA. Now that privilege doesn't seem to ring as true for me. Shocking, right? Why did I have to be different? As the reader, you feel for 6 year old me, don't you? Now, what was the point of that story, right? Labels: privileged ugly truth. Subscribe to: Post Comments (Atom). There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. PS I Love You.

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Behind a Shoelace & a Smile: October 2012

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Sunday, October 21, 2012. Subscribe to: Posts (Atom). There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. Life with the Ferrells. Hope for Addy Grace*. Wishing for Elephants.Dylan Cuevas. Presley and Charlotte's Corner. The Suite Life of Lucy and Ethel. Jojo and his Family: Life with SMA. Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1). The O'Neill Boys' Blog. Picture Window template. Powered by Blogger.

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Behind a Shoelace & a Smile: The Bridge

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Wednesday, October 8, 2014. If you know me at all, you know that I draw inspiration from everything. I read a lot, listen to different types of music (contrary to popular belief it is not just country), I love dialogue from movies and television, I have more than 2 thousand quotes pinned on Pinterest. Anything can be inspiration for me to create. Oftentimes I get an idea that won't let me be until I do something with it and this latest video is a good example of that. Help You Stand SMA Awareness. So I p...

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Behind a Shoelace & a Smile: October 2014

http://smileshoelace.blogspot.com/2014_10_01_archive.html

Wednesday, October 8, 2014. If you know me at all, you know that I draw inspiration from everything. I read a lot, listen to different types of music (contrary to popular belief it is not just country), I love dialogue from movies and television, I have more than 2 thousand quotes pinned on Pinterest. Anything can be inspiration for me to create. Oftentimes I get an idea that won't let me be until I do something with it and this latest video is a good example of that. Help You Stand SMA Awareness. So I p...

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Babies and the Journey

Babies and the Journey. Sunday, April 1, 2012. Fuck this stupid little shit hole town. Monday, July 18, 2011. Why am I always the bad guy? Wow, I am way more pissed about this than I thought. Now I know there is a phone call going on between Wichita and Denver and I am sure it is all about how I am the bad guy, and Derrick will get the call next…fucking cool…glad you are all still in middle school. Tattle on me for taking care of my family, that's cool. Wednesday, May 4, 2011. Now what the hell do I do?

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Wishing for Baby

View my complete profile. Friday, September 23, 2005. Posted by Wishing for bb @ 2:04 AM. After searching on the forum, I finally found a gynae that have good reviews and is near my home. After discussing with hubby, I went ahead to book an appt with Dr Adrian Woodsworth from TMC. My first appt is in Feb 05. Finally it is my turn, I am so excited. However the doc just speak very fast and explain how pregnancy takes place which i already know. He thinks my question are all redundant. Posted by Wishing for...

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Wishing For Chanel - fashion ~ beauty ~ lifestyle ~ books ~ geekery

Fashion beauty lifestyle books geekery. Arrivederci I’m off to Rome! August 9, 2015. August 8, 2015. Just a quickie post, if you guys have been paying attention to the blog lately. You’ll know I’ll be heading off to Italian shores tomorrow! As this is a family trip I’m checking out of the blogsphere for a few days. If you wanna keep up with my Rome adventures be sure to follow me on Twitter and Instagram – thankfully our hotel has wi-fi, holla! Ciao my lovelies see you want I’m back in blighty! And final...

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Wishing for Elephants..Dylan's Life with SMA

Wishing for Elephants.Dylan's Life with SMA. Wednesday, September 25, 2013. Dear Disney, accessible for some does not mean accessible for all. My husband and I have lived almost 10 years trying to adapt things to make them accessible to suit our son's needs. I feel we have been relatively successful in our quest but it is not without a struggle and also without some disappointment. What does abuse of the Guest Services mean for those who truly need it? Monday, January 28, 2013. I look at Nicholas and fee...

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all of time and space

All hail the mad king. CRY BABY IS OUT TODAY. Approximate size of actual velociraptors. If you’re ever sad, watch this video. Best 14 seconds of your life. Fall colors - black. Winter colors - black. Spring colors - black. Summer colors - black.

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Poems&Writing | Just a site full of poems.

Just a site full of poems. Not a Poem (But Relevant). February 10, 2015. If for any reason you find yourself wishing for more poems check out my new (okay like over two years old but still) poetry blog here. Thanks and sorry about the incredibly inactive blog, I probably should have written this post a bit ago, but hey better late than never. And tagged new blog. The Things of Nightmares. January 15, 2013. Making nothing as it seems. Stories told at the dead of night. Hold your secrets close. I miss a lot.

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Our Journey

I'll be back in indefinite period of time. I'll be using LiveJournal at the moment. TAKE CARE EVERYONE! Monday, February 25, 2008. Tomorrow will marked the 3rd week of IPP! This means that there's 8 more weeks to go. On Fri, my Boss gave me a project to be done by next week. I've to analyse the results from the surveys which I took last Mon and Tues followed by typing up a complete set of reports for my Boss's approval. Sigh! Why is my work getting so difficult? The following day after work (again! But i...