meandmg.blogspot.com
Me and MG - Riding the Myasthenia Rollercoaster: April 2012
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Me and MG - Riding the Myasthenia Rollercoaster. My story of living with a chronic neuromuscular disease. Wednesday, April 25, 2012. You Might Be An MG'er If. This was shared by a dear friend of mine, Sandy. He gave me permission to share. This is what it is like to live in our shoes. You Might be an MGer if? You are trying to adjust your eyes, one at a time (double vision), and someone nearby thinks that you are WINKING at them! Links to this post. Monday, April 9, 2012. Links to this post. Myasthenia G...
meandmg.blogspot.com
Me and MG - Riding the Myasthenia Rollercoaster: September 2010
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Me and MG - Riding the Myasthenia Rollercoaster. My story of living with a chronic neuromuscular disease. Thursday, September 16, 2010. Med changes, job changes, surgery, oh my. So you were probably all thinking.hmm, Jen has been quiet, she must be feeling great! He said if that continues then we will switch to a different long term immunosuppressant or try Rituximab. Links to this post. Subscribe to: Posts (Atom). Donate to the Team Julian Foundation. Support the Smallest Superheros, in honor of Julian.
meandmg.blogspot.com
Me and MG - Riding the Myasthenia Rollercoaster: November 2010
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Me and MG - Riding the Myasthenia Rollercoaster. My story of living with a chronic neuromuscular disease. Monday, November 29, 2010. Will my legs work or will someone have to help me walk, I didn't bring my walker, talk about a conversation piece that I don't want to have! I think that is enough for today. This week brings my phyisical, the kid's chest echos (to make sure they didn't inherit my heart defect), band concerts, basketball games, can I come up for air now? Blessings to you and yours,. This me...
meandmg.blogspot.com
Me and MG - Riding the Myasthenia Rollercoaster: April 2011
http://meandmg.blogspot.com/2011_04_01_archive.html
Me and MG - Riding the Myasthenia Rollercoaster. My story of living with a chronic neuromuscular disease. Monday, April 18, 2011. Patients, my dears.patience. As anyone with MG or caring for a loved one with MG knows, Patience is crucial, though quite possibly the most frustrating parts of the illness! Ask me the most difficult aspect on a bad flare up day or worse during a crisis and you might get another answer but most days it is patience. Patience with your body daily. Patience with your meds to work.
meandmg.blogspot.com
Me and MG - Riding the Myasthenia Rollercoaster: You Might Be An MG'er If...
http://meandmg.blogspot.com/2012/04/you-might-be-mger-if.html
Me and MG - Riding the Myasthenia Rollercoaster. My story of living with a chronic neuromuscular disease. Wednesday, April 25, 2012. You Might Be An MG'er If. This was shared by a dear friend of mine, Sandy. He gave me permission to share. This is what it is like to live in our shoes. You Might be an MGer if? You are trying to adjust your eyes, one at a time (double vision), and someone nearby thinks that you are WINKING at them! Subscribe to: Post Comments (Atom). Donate to the Team Julian Foundation.
meandmg.blogspot.com
Me and MG - Riding the Myasthenia Rollercoaster: August 2010
http://meandmg.blogspot.com/2010_08_01_archive.html
Me and MG - Riding the Myasthenia Rollercoaster. My story of living with a chronic neuromuscular disease. Friday, August 27, 2010. Late July through August.Lovin' Summer. Today I received my IVIG. These weekly treatments, along with the change in meds from Imuran to Cyclosporine have really helped my symptoms. The summer has been great! And your feedback has been comforting, rewarding, and fulfilling. For those of you actually going through the illness, the reason I named this site me and MG is due t...
meandmg.blogspot.com
Me and MG - Riding the Myasthenia Rollercoaster: July 2012
http://meandmg.blogspot.com/2012_07_01_archive.html
Me and MG - Riding the Myasthenia Rollercoaster. My story of living with a chronic neuromuscular disease. Friday, July 27, 2012. Links to this post. Friday, July 13, 2012. The benefits of a breathing machine with Myasthenia Gravis. Yesterday I was so weak I normally would go to the hospital, but I was able to use my bi-pap. What a great alternative! Links to this post. Thursday, July 12, 2012. Hospitals, ICU's, Heat, Stress, oh my. Michigan for 30 days close to or over 100 degrees? Links to this post.
meandmg.blogspot.com
Me and MG - Riding the Myasthenia Rollercoaster: March 2011
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Me and MG - Riding the Myasthenia Rollercoaster. My story of living with a chronic neuromuscular disease. Thursday, March 3, 2011. To hell and back, My Thymectomy. Yes, it was the scariest hospital stay of my life, and I have had some doozies! I am battling a night of insomnia and thought my faithful readers deserved an update as to why it has be so long since I have posted. Thank you all for the well wishes. There were a few errors at the hospital. Anesthesiologist and nurse were hovering over me very c...
meandmg.blogspot.com
Me and MG - Riding the Myasthenia Rollercoaster: Paying it Forward
http://meandmg.blogspot.com/2012/07/paying-it-forward.html
Me and MG - Riding the Myasthenia Rollercoaster. My story of living with a chronic neuromuscular disease. Friday, July 27, 2012. Subscribe to: Post Comments (Atom). Donate to the Team Julian Foundation. Support the Smallest Superheros, in honor of Julian. Lessons from an Italian Grandmother. Join The Myasthenia Support Group. MG Climbing The Hill Together. The benefits of a breathing machine with Myastheni. Hospitals, ICUs, Heat, Stress, oh my. EMedicine Article on Myasthenia Gravis.
meandmg.blogspot.com
Me and MG - Riding the Myasthenia Rollercoaster: October 2010
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Me and MG - Riding the Myasthenia Rollercoaster. My story of living with a chronic neuromuscular disease. Monday, October 18, 2010. The flu and MG.yuck! On the sewing front, I have successfully made two pillows, one for my son and one for my daughter. The machine is in need of repair so my next project is on hold until we can figure out why the zig-zag function isn't working, once that is squared away I will make a mommy and daughter matching apron set.fun, fun, fun! Links to this post. Report on the Port.
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