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HomeThe International Pompe Association (IPA) is an International federation of Pompe disease patients groups.
http://www.worldpompe.net/
The International Pompe Association (IPA) is an International federation of Pompe disease patients groups.
http://www.worldpompe.net/
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Home | worldpompe.net Reviews
https://worldpompe.net
The International Pompe Association (IPA) is an International federation of Pompe disease patients groups.
worldpompe.net
Publications
http://www.worldpompe.net/index.php/publications
IPA Board, Advisors and More. IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2016 (Uploads). IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. Powered by Phoca Download. Search biomedical literature, journals, and books in an online database, PubMed. External link). Abstracts are always available, and sometimes full articles can be read for free. Phone 31(35)5480480, Fax 31(35)5480499, E-mail info@worldpompe.org.
Int*l Pompe Day
http://www.worldpompe.net/index.php/international-pompe-day
IPA Board, Advisors and More. IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2016 (Uploads). IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. The IPA is excited to announce that the international Pompe community has chosen April 15 as the annual International Pompe Day! There are several ways that you can participate:. Upload a photo to the International Pompe Day website. Participate in the International Pompe Day Art Contest! Created: 14 April 2016.
Patients Helping Patients
http://www.worldpompe.net/index.php/pompe-disease/patients-helping-patients
IPA Board, Advisors and More. IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2016 (Uploads). IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. Here you find a list of articles contributed by individuals of the Pompe Community. You can just browse the list below and sort it by clicking on the column headings. This is a living list of articles. So if you want to share your experiences please submit your contribution. Always warm feet with heated socks.
News
http://www.worldpompe.net/index.php/news
IPA Board, Advisors and More. IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2016 (Uploads). IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. BioMarin Update for the Pompe Community. IPA Statement on Biomarin's June 9th announcement it will seek to out-license BMN-701. The Walker Society a beneficiary research fund in honour of Helen Walker. Written by Bruce Walker, brother of Helen Walker. The Swiss Pompe Group. Written by Caspar Kemper. Page 1 of 20.
Photo Upload Form
http://www.worldpompe.net/index.php/international-pompe-day/photo-upload-form
IPA Board, Advisors and More. IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2016 (Uploads). IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. Please fill in the form. All fields marked with an asterisk are mandatory. Name of Participant *. Please briefly explain how your photo is related to the International Pompe Day *. Name of parent or guardian (if submitting person is under age 18). Please enter the displayed text in the field below the picture.
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International Pompe Association
IPA - International Pompe Association. Affects the lives of an estimated 5,000 to 10,000 people all over the world. A progressive, debilitating and life-threatening disease, infants, children and adults who inherit the defective gene from each parent are susceptible to getting Pompe. More information on Pompe Disease. Patients need a network of support in order to ease the hardships that these patients and their families go through. Support not only for medical reasons but also to deal with emotions ...
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IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. About this Forum / How to Register. Welcome to the International Pompe Association (IPA). Pause for Pompe" Fundraiser is open. More information: Press Release. Other options for donations see How to donate to the 2015 International Pompe Day Fundraiser. Australia has admitted life-saving drug for Pompe disease in the Australian Life-Saving Drug Programme. In Australia, in...
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IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. About this Forum / How to Register. Welcome to the International Pompe Association (IPA). Pause for Pompe" Fundraiser is open. More information: Press Release. Other options for donations see How to donate to the 2015 International Pompe Day Fundraiser. Australia has admitted life-saving drug for Pompe disease in the Australian Life-Saving Drug Programme. In Australia, in...
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IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. About this Forum / How to Register. Welcome to the International Pompe Association (IPA). Pause for Pompe" Fundraiser is open. More information: Press Release. Other options for donations see How to donate to the 2015 International Pompe Day Fundraiser. Australia has admitted life-saving drug for Pompe disease in the Australian Life-Saving Drug Programme. In Australia, in...
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Sunday, July 03, 2005. Everyone be there to shit! This site is dedicated to the vision of "Everybody Shit Day"! Everyone must shit on July 5, 2005. This will stop global warming, stop diseases, and cure world hunger. How you ask? Posted by AnimeHendrix at 2:12 PM. View my complete profile. Everyone be there to shit!
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