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Write the Happy Ending | Writing to Save the Dreams of Children with Batten DiseaseWriting to Save the Dreams of Children with Batten Disease (by Laura King Edwards)
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Writing to Save the Dreams of Children with Batten Disease (by Laura King Edwards)
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Write the Happy Ending | Writing to Save the Dreams of Children with Batten Disease | writethehappyending.com Reviews
https://writethehappyending.com
Writing to Save the Dreams of Children with Batten Disease (by Laura King Edwards)
writethehappyending.com
North Carolina House Bill 823 – Write the Happy Ending
http://writethehappyending.com/tag/north-carolina-house-bill-823
Write the Happy Ending. Writing to Save the Dreams of Children with Batten Disease. What is Batten Disease? North Carolina House Bill 823. July 28, 2015. By Laura King Edwards. Rare Disease is Bipartisan. I don’t talk much about my political views on social media or elsewhere. But rare disease is bipartisan. Rare disease traverses not only politics but also religion, race, gender, age, ethnicity and nationality. Rare disease affects us all. Today, North Carolina House Bill 823. What will the bill do?
Representative Dan Bishop – Write the Happy Ending
http://writethehappyending.com/tag/representative-dan-bishop
Write the Happy Ending. Writing to Save the Dreams of Children with Batten Disease. What is Batten Disease? July 28, 2015. By Laura King Edwards. Rare Disease is Bipartisan. I don’t talk much about my political views on social media or elsewhere. But rare disease is bipartisan. Rare disease traverses not only politics but also religion, race, gender, age, ethnicity and nationality. Rare disease affects us all. Today, North Carolina House Bill 823. Who now has 30 days to sign the bill into law. Shared a p...
Laura King Edwards – Write the Happy Ending
http://writethehappyending.com/author/writethehappyending
Write the Happy Ending. Writing to Save the Dreams of Children with Batten Disease. What is Batten Disease? Author: Laura King Edwards. October 14, 2015. By Laura King Edwards. Write the Happy Ending has a New Home! Launched a new website and took my blog with it. Check out the site and all the great work our team is doing to support millions like my sister who are fighting a rare disease. Go to the new blog site. October 4, 2015. By Laura King Edwards. I remember thinking, what gives? It wasn’t un...
In the News – Write the Happy Ending
http://writethehappyending.com/in-the-news
Write the Happy Ending. Writing to Save the Dreams of Children with Batten Disease. What is Batten Disease? My sister’s story and the work of Taylor’s Tale. On behalf of the rare disease community are frequently covered by the news media and other bloggers. Click on the links to read and watch inspiring stories about our efforts to build a better future for children with Batten disease and millions of others fighting a rare disease. 8220;Charlotte charity Taylor’s Tale inspires new law to create tr...
Batten disease – Write the Happy Ending
http://writethehappyending.com/tag/batten-disease
Write the Happy Ending. Writing to Save the Dreams of Children with Batten Disease. What is Batten Disease? October 4, 2015. By Laura King Edwards. I found myself in a funk early this summer, right about the time the nights turned muggy and the lightning bugs lit up the sky and the air filled with the smells of honeysuckle and fresh-cut grass and charcoal grills. I remember thinking, what gives? I couldn’t run. When I couldn’t run, the darkness attacking my family ate away at me. My body’s not at 1...
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thegrayspolliwogs.blogspot.com
The Gray's Polliwogs: June 2013
http://thegrayspolliwogs.blogspot.com/2013_06_01_archive.html
She was an artist and her life was her canvas."-unknown. Tuesday, June 18, 2013. Friday June 7th, was Aubrey's last day of 3rd Grade. We can thank Ms. B for this lovely shot of these excited little ladies,. Sporting their "Peace Out Schools Out" tees! What a fun way to pounce into Summer! We dropped her off and headed into Chapel Hill for Jamie's big day. We got there with time to spare, so we stopped in at Starbucks for some breakfast. It was nice not be rushing in the rain. Last look into the cubby!
December | 2014 | Batten Blog
https://battenblog.com/2014/12
A blog moderated by Beyond Batten Disease Foundation. BATTEN DISEASE REPRESENTED AMONG FDA PATIENT REPRESENTATIVES. Taylor’s Law: North Carolina’s rare disease advisory council. How to Apply for Social Security Benefits for Your Child With Batten Disease. Batten disease on Good Morning America. Beyond Batten Disease Foundation grantee, Andrea Ballabio, MD, is awarded the 2016 Louis-Jeantet Prize for Medicine. On My Perspective: Debbie Do…. My Perspective: Jacl…. On My Perspective: Jaclynn, siste…. Daniel...
writethehappyending.blogspot.com
Write the Happy Ending: September 2011
http://writethehappyending.blogspot.com/2011_09_01_archive.html
Write the Happy Ending. Thursday, September 1, 2011. Write the Happy Ending has moved! You can find it at www.writethehappyending.com. This will be my last post here, so please bookmark the new site. Thank you, as always, for reading! Subscribe to: Posts (Atom). Subscribe To This Blog. Charlotte, North Carolina, United States. View my complete profile.
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writethehappyending.blogspot.com
Write the Happy Ending
Write the Happy Ending. Thursday, September 1, 2011. Write the Happy Ending has moved! You can find it at www.writethehappyending.com. This will be my last post here, so please bookmark the new site. Thank you, as always, for reading! Sunday, August 21, 2011. 2,500 Laps: Two Months In. On another note, my physical therapist gave me some great news on Wednesday. He thinks I'll be able to run in about a month - something I haven't been able to do since I injured my Achilles (playing soccer, of course!
Write the Happy Ending | Writing to Save the Dreams of Children with Batten Disease
Write the Happy Ending Writing to Save the Dreams of Children with Batten Disease. Write the Happy Ending. Writing to Save the Dreams of Children with Batten Disease. What is Batten Disease? July 28, 2015. By Laura King Edwards. Rare Disease is Bipartisan. Today, North Carolina House Bill 823. Passed unanimously by a vote of 106-0 in the House. The bill, entitled “Establish Advisory Council on Rare Diseases,” is on its way to Governor McCrory. Who now has 30 days to sign the bill into law. One representa...
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