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The XLP Research Trust is a UK based charity that promotes and funds medical research into a potential cure for Duncan’s disease

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XLP Research Trust | Home | xlpresearch.org Reviews
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The XLP Research Trust is a UK based charity that promotes and funds medical research into a potential cure for Duncan’s disease
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1 XLP
2 X-linked Lymproliferative Syndrome
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4 Duncan’s disease
5 Duncan’s syndrome
6 Duncans syndrome
7 Hartley
8 Charity
9 Trust
10 Research
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XLP Research Trust | Home | xlpresearch.org Reviews

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The XLP Research Trust is a UK based charity that promotes and funds medical research into a potential cure for Duncan’s disease

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XLP Research Trust | In the News

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Southern Daily Echo - 4 January 2008. Macca pops in to see Luke. LITTLE Luke Hartley didn't realise quite how famous his latest hospital visitor was. This is Hampshire - 24 November 2007. Young Luke Hartley recovering after second transplant op. A SECOND attempt to cure Hampshire boy Luke Hartley of a life-threatening genetic condition has gone well. BBC News Online - 12 November 2007. Brother given second transplant. Romsey Advertiser - 31 October 2007. This is Hampshire - 5 October 2007. The last of fo...

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XLP Research Trust | Home

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X-gebonden lymfoproliferatief syndroom (XLP), dat ook bekend staat als de ziekte van Duncan, is een zeldzame, altijd fatale ziekte die alleen bij jongens voorkomt. Tot nu toe is XLP bij circa 100 families en ruim 400 jongens wereldwijd vastgesteld. Er bestaat echter een kans dat er veel meer gevallen zijn waar de correcte diagnose nog niet gesteld is. Met de vooruitgang in genetisch onderzoek is het echter mogelijk dat er over een paar jaar een remedie is. The following stories are about Cameron Twitty h...

3

XLP Research Trust | Inicio

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El síndrome linfoproliferativo ligado al cromosoma X, o síndrome de Duncan, es una afección mortal poco frecuente que afecta exclusivamente a varones. Hasta la fecha, sólo se le ha diagnosticado a unas100 familias, con 400 casos en todo el mundo. No obstante, es probable que existan más personas afectadas en las que todavía no se haya hecho un diagnóstico adecuado. No obstante, los avances en genética hacen posible que, en pocos años, se disponga de un posible remedio. Concienciar sobre el XLP a los prof...

4

XLP Research Trust | Strona główna

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Strona główna. Zespół limfoproliferacyjny sprzężony z chromosomem X (. Ang X-Linked Lymphoproliferative Syndrome – XLP. Najlepszym sposobem „zapobiegania” jest regularne podawanie leków przeciwwirusowych, terapia immunoglobulinami lub sterydami – lecz nie jest to farmakoterapia lecząca to schorzenie. Obecnie jedynym możliwym sposobem leczenia jest przeszczep szpiku – w efekcie wymiana wadliwego układu odpornościowego. Utworzenie miejsca spotkań i wsparcia dla rodzin dotkniętych XLP. 2016 The XLP Research...

5

XLP Research Trust | Acceuil

http://www.xlpresearch.org/fr

Agrave; propos de XLP. Fondée en 2005, la foundation existe afin de:. Promouvoir et financer la recherche sur la cause, le traitement, les symptômes et le remède du syndrome XLP. Offrir un point de contact et un soutien aux familles affectées par le syndrome XLP. Sensibiliser la profession médicale et le public au syndrome. Help little Cavan beat a rare blood condition. The Northern Ireland grandfather of a six year old boy fighting a rare blood disor.

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XLP Research Trust | Home

X-linked lymphoproliferative syndrome (XLP), which is also known as Duncan’s syndrome, is a rare always fatal disease that affects only boys. To date only about 100 families and 400 boys have been diagnosed worldwide. It is likely, however, that there are many more cases where the correct diagnosis has not been made. However with advances in genetics a potential cure may now only be a few years away. More information on XLP. Founded in 2005, the XLP Research Trust exists to. My name is David Rodgerson, I...

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XLP Research Trust | Home

X-linked lymphoproliferative syndrome (XLP), which is also known as Duncan’s syndrome, is a rare always fatal disease that affects only boys. To date only about 100 families and 400 boys have been diagnosed worldwide. It is likely, however, that there are many more cases where the correct diagnosis has not been made. However with advances in genetics a potential cure may now only be a few years away. More information on XLP. Founded in 2005, the XLP Research Trust exists to. A bone marrow transplant could.

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