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XLP Research Trust | HomeThe XLP Research Trust is a UK based charity that promotes and funds medical research into a potential cure for Duncans disease
http://www.xlprt.org/
The XLP Research Trust is a UK based charity that promotes and funds medical research into a potential cure for Duncans disease
http://www.xlprt.org/
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XLP Research Trust | Home | xlprt.org Reviews
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The XLP Research Trust is a UK based charity that promotes and funds medical research into a potential cure for Duncans disease
xlprt.org
XLP Research Trust | Volunteer XLP Research Trust
http://www.xlprt.org/volunteer.asp
The XLP Research Trust is entering exciting times as we grow and with that come new challenges. To continue the evolution of the charity we need help in a number of areas outlined below. All of the volunteer posts are non salaried but reasonable expenses will be paid in taking on these important roles. So if you think that you could spare some time then please contact us at the office either by telephone or email. There are lots of potential areas here that we require help in. Important Note: The informa...
XLP Research Trust | Inicio
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El síndrome linfoproliferativo ligado al cromosoma X, o síndrome de Duncan, es una afección mortal poco frecuente que afecta exclusivamente a varones. Hasta la fecha, sólo se le ha diagnosticado a unas100 familias, con 400 casos en todo el mundo. No obstante, es probable que existan más personas afectadas en las que todavía no se haya hecho un diagnóstico adecuado. No obstante, los avances en genética hacen posible que, en pocos años, se disponga de un posible remedio. Concienciar sobre el XLP a los prof...
XLP Research Trust | Keep in Touch
http://www.xlprt.org/keepintouch.asp
If you would like to send a message to the XLP Research Trust, please use the form below. To register for occasional newsletters, tick the box indicating your consent. We will not pass your name and details on to any other organisation. A valid email is required). British Indian Ocean territory. Cote d'Ivoire (Ivory Coast). Heard and McDonald Islands. Saint Kitts and Nevis. Saint Pierre and Miquelon. Saint Vincent and the Grenadines. Sao Tome and Principe. South Georgia and the South Sandwich Islands.
XLP Research Trust | Home page
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La sindrome linfoproliferativa legata al cromosoma X (o XLP), anche conosciuta come sindrome di Duncan, è una malattia letale che colpisce i bambini. A oggi, questa malattia è stata diagnostica solo a un centinaio di famiglie, per un totale di poco superiore a 400 bambini affetti nel mondo. Tuttavia, è probabile che le persone alle quali la malattia non è stata diagnosticata correttamente siano molto più numerose. Creata nel 2005, questa fondazione ha lo scopo di:. Sensibilizzare la comunità medica e l o...
XLP Research Trust | Fund Raising
http://www.xlprt.org/fundraising.asp
The XLP Research Trust relies entirely on voluntary donations to fund our work. Please click here to see our Fundraising Promise. There are a number of ways you an help. To make a donation or set up regular giving please click the link above. Groups, associations, churches, bands, schools, sports clubs etc. To see how lots of wonderful folks have been supporting us please click on the link above. We welcome the support of businesses. Please click on the link above for more information. If you sell on eBa...
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XLP Research Trust | Home
X-linked lymphoproliferative syndrome (XLP), which is also known as Duncan’s syndrome, is a rare always fatal disease that affects only boys. To date only about 100 families and 400 boys have been diagnosed worldwide. It is likely, however, that there are many more cases where the correct diagnosis has not been made. However with advances in genetics a potential cure may now only be a few years away. More information on XLP. Founded in 2005, the XLP Research Trust exists to. My name is Tabatha Marshall f...
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