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遗传病信息网

September 2001, a humid summer day, after two months of tens of doctor visits, we were told our little daughter Julia has Thalassemia major, a life-threatening genetic blood disease. She was sent to hospital and received the first blood transfusion. It changed our lives. She is reason for us to build this web-site, to share this information so that families of a large population. Will avoid this disease. We also have a special section. And MSN Group for Thalassemia Patients and Friends. Giving you hope t...

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遗传病信息网 | yichuanbing.org Reviews

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September 2001, a humid summer day, after two months of tens of doctor visits, we were told our little daughter Julia has Thalassemia major, a life-threatening genetic blood disease. She was sent to hospital and received the first blood transfusion. It changed our lives. She is reason for us to build this web-site, to share this information so that families of a large population. Will avoid this disease. We also have a special section. And MSN Group for Thalassemia Patients and Friends. Giving you hope t...

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3 you are visitor

4 yichuanbing org

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遗传病信息网 | yichuanbing.org Reviews

https://yichuanbing.org

September 2001, a humid summer day, after two months of tens of doctor visits, we were told our little daughter Julia has Thalassemia major, a life-threatening genetic blood disease. She was sent to hospital and received the first blood transfusion. It changed our lives. She is reason for us to build this web-site, to share this information so that families of a large population. Will avoid this disease. We also have a special section. And MSN Group for Thalassemia Patients and Friends. Giving you hope t...

INTERNAL PAGES

yichuanbing.org

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网站新闻

http://www.yichuanbing.org/news.htm

This is where we'll announce the most recent additions to our web site. If you've visited us before and want to know what's changed, take a look here first. Supporting email http:/ www.genetests.org. Http:/ www.goofiz.com. Http:/ www.thalassemia.com. Last modified: April 13, 2004.

2

关于我们

http://www.yichuanbing.org/About_us.htm

25105;们的宗旨. 35753;华裔摆脱遗传病的阴影. 32473;华裔遗传病患者提供一片交流的净土. 26681;治遗传病. 2515 Spring Grove Court, Cumming, GA 30041. 资料/General Information: info@yichuanbing.org. Last modified: April 13, 2004.

3

地贫统计

http://www.yichuanbing.org/thala_stat.htm

Http:/ www.thalassaemia.org.hk/. Http:/ www.sciarray.com/tech1.htm. 广西平均每１００人里有１８２０人携带有地中海贫血病的基因.今年(注 2000年)１１０月，计生部门在南宁市组织了４７２４例新婚夫妇在婚前做地中海贫血遗传基因的检查，结果发现有７００多例携带遗传基因，比例达２０７４。 Http:/ www.pladaily.com.cn/pladaily/20001221/gb/20001221001185 IT.html. 黎族是海南独有的少数民族，由于其居住特有地理位置等因素的影响，地中海贫血的发生率惊人之高，β 地中海贫血发病率高达16.3 ，α 地中海贫血也占5.1 ，这严重影响了该民族的健康。 Http:/ www.stdaily.com/gb/area/2002-09/13/content 15186.htm. 估计香港现时有 55 万人是地贫基因携带者，约占总人口 8.5%。 Http:/ www.thalassemia.org/sections.php?

4

网站目录

http://www.yichuanbing.org/toc.htm

This web site is dedicated to promote awareness of genetic disease among Chinese. Part of the web site document the fight of Tang's family, founder of the web site, with their daughter Julia's Thalassemia disease. 36951;传病信息网. 35775;客交流. 35775;客留言. 25903;持邮件. 22320;贫遗传分析. 36164;料搜寻. 24110;助我们. 32593;站目录. 22320;贫连接. 22320;贫统计. 31449;长角落. 22320;贫通讲. 32986;胎选择. Julia治疗计划. 22320;贫分析. 32593;站变化. 30456;关报道. 22年之病. 20851;于我们. 32593;站新闻. 20855;体行动. 21451;情赞助. 36951;传病. 22320;贫测试. Julia的进展. 30333;血病.

5

Julia的进展

http://www.yichuanbing.org/Julia.htm

我们的女儿Julia不幸患有重型Beta地中海贫血. 她的医生Dr.Silverman在她七个月体检时听到她的心脏有杂音。 Last modified: April 13, 2004.

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遗传病信息网

September 2001, a humid summer day, after two months of tens of doctor visits, we were told our little daughter Julia has Thalassemia major, a life-threatening genetic blood disease. She was sent to hospital and received the first blood transfusion. It changed our lives. She is reason for us to build this web-site, to share this information so that families of a large population. Will avoid this disease. We also have a special section. And MSN Group for Thalassemia Patients and Friends. Giving you hope t...

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