littlemisskeni.blogspot.com
"Little Miss": Jingle Bells
http://littlemisskeni.blogspot.com/2013/12/jingle-bells_18.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Wednesday, December 18, 2013. Sorry everyone I had to make a new post because I had some privacy setting issues. This first video is Joselain singing Jingle Bells! Now here is Kennedy attempts at signing Jingle Bells! They are to cute!
thekelleygirls.blogspot.com
The Kelley Girls: October 2010
http://thekelleygirls.blogspot.com/2010_10_01_archive.html
Monday, October 18, 2010. Video at the bottom). I've really been struggling the last week or so.do I really want people to see EVERYTHING we deal with? The plan was simple.I thought it would be neat to show our family and friends a video of Ava's tubie being changed out. After all, this is something we do every 3 months, it's part of our lives, it's part of Ava's life with a g-tube. I don't hide the fact that I have a love/hate relationship with tubie changes. I. The second logical choice was to take her...
thekelleygirls.blogspot.com
The Kelley Girls: Photos
http://thekelleygirls.blogspot.com/p/photos.html
The girls got to run in the Disney kids races. They even got medals! Ava and her Tubie. Ava got a hold of the markers! Zoe got to go on a 7 day cruise to Mexico with Grandma and Grandpa.lucky girl! Subscribe to: Posts (Atom). Follow me through e-mail. Enter your email address:. I love my girls and my husband. Life isn't exactly how I imagined it, but I wouldn't change a thing.OK.one thing.I wish my little girl didn't need a tube in her stomach to stay alive. View my complete profile. You start with a tube.
littlemisskeni.blogspot.com
"Little Miss": The best day ever pictures
http://littlemisskeni.blogspot.com/2013/11/the-best-day-ever-pictures.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Tuesday, November 19, 2013. The best day ever pictures. Subscribe to: Post Comments (Atom). View my complete profile. Drake's 8th b-day and baptism. Reuben Jack and Callum Andreas. When do expectations become unrealistic?
littlemisskeni.blogspot.com
"Little Miss": My loves
http://littlemisskeni.blogspot.com/2013/12/my-loves.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Tuesday, December 31, 2013. Subscribe to: Post Comments (Atom). View my complete profile. Drake's 8th b-day and baptism. Reuben Jack and Callum Andreas. Robin Hood and the Wolf - Los Angeles Family Photographer. You start with a tube.
moebiussyndromemom.blogspot.com
Moebius Syndrome and Our Family: Blenderized Diets - Real food for real people
http://moebiussyndromemom.blogspot.com/p/blenderized-diets-real-food-for-real.html
Moebius Syndrome and Our Family. Sharing my story for the benefit of others. I have benefited from others' stories so I want to share mine. Blenderized Diets - Real food for real people. Blended Food Resource Group - http:/ www.foodfortubies.com/. Facebook page for above group - https:/ www.facebook.com/foodfortubies. Blenderized Diet group on Yahoo Groups. Homemade Blenderized Diet Handbook - not all that helpful. Http:/ youstartwithatube.blogspot.com. Our basic recipe for 5-6 feedings worth:. We are re...
moebiussyndromemom.blogspot.com
Moebius Syndrome and Our Family: An update, finally!
http://moebiussyndromemom.blogspot.com/2013/02/an-update-finally.html
Moebius Syndrome and Our Family. Sharing my story for the benefit of others. I have benefited from others' stories so I want to share mine. Friday, February 22, 2013. An update, finally! So I haven't posted a real update on Luke and our family in quite a while. So here it goes. Plus he has been really working, I mean like 20 minutes at a time, at standing up by himself. He is doing a pretty good job working at it too. We are pretty excited about this, obviously. One day post surgery #2:. And then she got...
moebiussyndromemom.blogspot.com
Moebius Syndrome and Our Family: May 2015
http://moebiussyndromemom.blogspot.com/2015_05_01_archive.html
Moebius Syndrome and Our Family. Sharing my story for the benefit of others. I have benefited from others' stories so I want to share mine. Monday, May 11, 2015. Trilogy 100 vs. LTV 1150. Luke got a new vent last week, finally! We are very excited about it and think it is great. So far Luke is doing very well on the new vent. You may be asking, "Why would you want a new vent? What are the benefits? Please feel free to ask questions and share your Trilogy and LTV stories in the comments below!
