3littlebees.blogspot.com

3 Little Bees

Thursday, January 7, 2010. If anyone has any insights or advice we would love to hear it. Wednesday, January 6, 2010. Tomorrow is the day - Luke's LTR. Thursday, December 3, 2009. Tuesday, December 1, 2009. The BIG day out. So there we are, a day off work (yay, I deserve it) but it's going to be a tough day for everyone, especially Luke. Fingers crossed and anything else you want to cross will be greatly appreciated. And yes, I'm the one taking the trach out regardless of what anyone else says. Biggest N...

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3 Little Bees | 3littlebees.blogspot.com Reviews

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Thursday, January 7, 2010. If anyone has any insights or advice we would love to hear it. Wednesday, January 6, 2010. Tomorrow is the day - Luke's LTR. Thursday, December 3, 2009. Tuesday, December 1, 2009. The BIG day out. So there we are, a day off work (yay, I deserve it) but it's going to be a tough day for everyone, especially Luke. Fingers crossed and anything else you want to cross will be greatly appreciated. And yes, I'm the one taking the trach out regardless of what anyone else says. Biggest N...

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3 Little Bees | 3littlebees.blogspot.com Reviews

https://3littlebees.blogspot.com

Thursday, January 7, 2010. If anyone has any insights or advice we would love to hear it. Wednesday, January 6, 2010. Tomorrow is the day - Luke's LTR. Thursday, December 3, 2009. Tuesday, December 1, 2009. The BIG day out. So there we are, a day off work (yay, I deserve it) but it's going to be a tough day for everyone, especially Luke. Fingers crossed and anything else you want to cross will be greatly appreciated. And yes, I'm the one taking the trach out regardless of what anyone else says. Biggest N...

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3littlebees.blogspot.com

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3 Little Bees: February 2009

http://www.3littlebees.blogspot.com/2009_02_01_archive.html

Thursday, February 26, 2009. The urology surgery that Luke was supposed to have today has been rescheduled for April 10th. Luke has to take antibiotics right now (because the stints are in his nose) and they have given him terrible bm's and diaper rash. Neither would be good for a urology surgery. Friday, February 20, 2009. An unexpected visit to the OR. Friday, February 13, 2009. Here is Luke's upcoming surgery schedule:. February 26: Third and final orchiopexy surgery with urology. Some of our friends.

2

3 Little Bees: August 2008

http://www.3littlebees.blogspot.com/2008_08_01_archive.html

Tuesday, August 19, 2008. Friday, August 15, 2008. With no NG tube. Even with the x-ray machine the doctors couldn't get a tube to go down Luke's nose. I knew his anatomy was odd, but not this odd. It makes sense now that Dr. Hill is having such a difficult time with the choanal atresia. The radiologist says that he can always get the tube down with the x-ray machine, so he was quite surprised when it wouldn't work. Tuesday, August 12, 2008. Monday, August 11, 2008. GI Update - Children's here we come.

3

3 Little Bees: May 2008

http://www.3littlebees.blogspot.com/2008_05_01_archive.html

Saturday, May 24, 2008. Here are a few short clips of Luke using his PMV. The first half-second of the first video Luke is making a vocal noise. Otherwise they are all breathing noises. Thursday, May 22, 2008. Luke's 3rd CA dilation. Gus is Student of the Month! Monday, May 12, 2008. Tuesday, May 6, 2008. Gus lost his second tooth yesterday. It won't be long before the top two come out too and he will have a big hole in the front of his mouth. He doesn't seem to mind a bit though. Monday, May 5, 2008.

4

3 Little Bees: Luke's First Step

http://www.3littlebees.blogspot.com/2009/11/lukes-first-step.html

Wednesday, November 18, 2009. Luke was supposed to have his sleep study tonight, but his nose has closed down and he can't handle being capped for more than an hour or so when asleep. Surgery tomorrow: CA dilation. Hopefully we can convince them that the time to do a sleep study is a couple of weeks after the CA dilation, not a month and a half later. He is also scheduled to have a 24 hr study on Monday and maybe he can do that still. If he can stand being capped for 24 hrs then the trach can come out.

5

3 Little Bees: Our Crazy Day!

http://www.3littlebees.blogspot.com/2010/01/our-crazy-day.html

Thursday, January 7, 2010. If anyone has any insights or advice we would love to hear it. Holy cow. what a roller coaster of a day. Glad you guys are home. keep us posted! January 7, 2010 at 6:57 PM. January 7, 2010 at 8:40 PM. Candi: We love you guys and are keeping you in our prayers. God is in control and He will guide you to the right decision. Of this, I am positive. You know that any time you need to talk or just need a shoulder you can always come to me! Know that I will be here. Mom on a Mission.

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The Adventures of Kennedy: December 2012

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Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Friday, December 7, 2012. Kennedy with her "Scenes" group from HVHS, performing in Footloose! First stage performance of high school.we were super proud. Best part? She had a BALL! Posted by Lisa and Kennedy. Subscribe to: Posts (Atom). A welcome message from a young Kennedy circa 2006! Click to support Team Kennedy! What is CHARGE Syndrome? 12th International CHARGE Syndrome Conference.

chargesyndrome.blogspot.com

The Adventures of Kennedy: May 2014

http://chargesyndrome.blogspot.com/2014_05_01_archive.html

Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Thursday, May 29, 2014. HVHS Chorale Ensemble Spring Concert. Tonight was the spring concert - Kennedy is on the far right of the front row in each of the three videos. Changamano (Join Together) by Sally K. Albrecht. Dona Nobis Pacem (Traditional). Some Nights by Fun. Posted by Lisa and Kennedy. Wednesday, May 28, 2014. My beauty surrounded by the Grand Canyon. She once again worked extre...

chargesyndrome.blogspot.com

The Adventures of Kennedy: CHARGE Through The Year 2015 Calendar

http://chargesyndrome.blogspot.com/2014/08/charge-through-year-2015-calendar.html

Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Monday, August 18, 2014. CHARGE Through The Year 2015 Calendar. One of the phenomenal moms I have met through the online CHARGE syndrome world, Anna Miller, has put together the 2nd CHARGE Through The Year calendar. For 2015. This was a sell-out fundraiser and awareness raiser for CHARGE syndrome and the CHARGE Syndrome Foundation. Last year and promises to be another huge success this year.

katysworldtoday.blogspot.com

KATY'S WORLD: Easter

http://katysworldtoday.blogspot.com/2010/04/easter.html

Saturday, April 3, 2010. On this Easter weekend, let us not forget that Easter is not about eggs and bunnies. It is about a Savior - Jesus - who came to earth, lived a sinless life, went to the cross an innocent man, took the sins of all of us upon him, died but wait. . . ROSE AGAIN! Believe He lives, I can face tomorrow. Because He lives, all fear is GONE! Because I know He holds the future. And life is worth the living just because HE LIVES! God bless you my friends. Subscribe to: Post Comments (Atom).

katysworldtoday.blogspot.com

KATY'S WORLD: April 2010

http://katysworldtoday.blogspot.com/2010_04_01_archive.html

Saturday, April 3, 2010. On this Easter weekend, let us not forget that Easter is not about eggs and bunnies. It is about a Savior - Jesus - who came to earth, lived a sinless life, went to the cross an innocent man, took the sins of all of us upon him, died but wait. . . ROSE AGAIN! Believe He lives, I can face tomorrow. Because He lives, all fear is GONE! Because I know He holds the future. And life is worth the living just because HE LIVES! God bless you my friends. Subscribe to: Posts (Atom).

katysworldtoday.blogspot.com

KATY'S WORLD: Here We Go Again

http://katysworldtoday.blogspot.com/2009/12/here-we-go-again.html

Wednesday, December 9, 2009. Here We Go Again. Until later my friends,. God be with you and bless you! Subscribe to: Post Comments (Atom). Belli's Place- Living Life with Larsen's. There was an error in this gadget. There was an error in this gadget. Here We Go Again. Stay-at-home Mom of Kathryn Grace, a 2 year old special needs child. Katy has an undiagnosed brain disorder but she is full of energy and the apple of everybody's eye! View my complete profile.

katysworldtoday.blogspot.com

KATY'S WORLD: Fruit Salad, Yummy, Yummy. Almost as good as Daddy's Comic Books~

http://katysworldtoday.blogspot.com/2009/11/fruit-salad-yummy-yummy-almost-as-good.html

Sunday, November 22, 2009. Fruit Salad, Yummy, Yummy. Almost as good as Daddy's Comic Books. Found out this morning that Katy's Ahma has pneumonia! Thanksgiving dinner canceled for tonight. Guess that means I'm gonna have to cook something. :o(. Well, so enjoyed Pastor Sam's message this morning "Thanksgiving in Jerusaleum". Katy is doing good today. She slept until almost 11:00 am! I made a little visit to Kmart to get Katy some black shoes. Do you guys know that song? I about lost a finger! Stay-at-hom...

katysworldtoday.blogspot.com

KATY'S WORLD: Hey Everybody!

http://katysworldtoday.blogspot.com/2009/11/hey-everybody.html

Sunday, November 22, 2009. Well, I'm new at this so give me some time. Katy is doing good. She is having her tonsils out on 12/10/09. Mommy is having back surgery on 12/01. Fun days ahead. . . Subscribe to: Post Comments (Atom). Belli's Place- Living Life with Larsen's. There was an error in this gadget. There was an error in this gadget. Fruit Salad, Yummy, Yummy. Almost as good as Dadd. View my complete profile.

katysworldtoday.blogspot.com

KATY'S WORLD: I love you

http://katysworldtoday.blogspot.com/2009/11/i-love-you.html

Tuesday, November 24, 2009. I'm thankful this Thanksgiving for The Bell Center and the therapists at Hand N Hand. They have done wonders with my little miracle. Please enjoy. . . Subscribe to: Post Comments (Atom). Belli's Place- Living Life with Larsen's. There was an error in this gadget. There was an error in this gadget. Fruit Salad, Yummy, Yummy. Almost as good as Dadd. View my complete profile.

katysworldtoday.blogspot.com

KATY'S WORLD: "Thanksgiving"

http://katysworldtoday.blogspot.com/2009/11/thanksgiving.html

Thursday, November 26, 2009. But mostly, let's just be thankful. Give thanks with a grateful heart;. Give thanks to the holy one. Give thanks, because He's given Jesus Christ, His son. And now, let the meak say I am strong. Let the poor say I am rich,. Because of what the Lord has done for us. Thank you, my friends, for being my friends. Oh, and I found out today that Katy loves sweet potatoes but hates stuffing. I can't say I blame her. With His love this holiday season,. View my complete profile.

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Thursday, January 7, 2010. If anyone has any insights or advice we would love to hear it. Wednesday, January 6, 2010. Tomorrow is the day - Luke's LTR. Thursday, December 3, 2009. Tuesday, December 1, 2009. The BIG day out. So there we are, a day off work (yay, I deserve it) but it's going to be a tough day for everyone, especially Luke. Fingers crossed and anything else you want to cross will be greatly appreciated. And yes, I'm the one taking the trach out regardless of what anyone else says. Biggest N...

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