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4p- Support Group

Wolf-Hirschhorn Syndrome

http://www.4p-supportgroup.org/

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CONTACTS AT 4P-SUPPORTGROUP.ORG

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PAGE TITLE
4p- Support Group | 4p-supportgroup.org Reviews
<META>
DESCRIPTION
Wolf-Hirschhorn Syndrome
<META>
KEYWORDS
1 4p support group
2 wolf hirschhorn syndrome
3 general 4p info
4 4p growth charts
5 membership
6 about us
7 membership request
8 board of directors
9 history
10 for professionals
CONTENT
Page content here
KEYWORDS ON
PAGE
4p support group,wolf hirschhorn syndrome,general 4p info,4p growth charts,membership,about us,membership request,board of directors,history,for professionals,scientific advisory board,parent pages,2014 research workshop,4p awareness day,store,links,site
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4p- Support Group | 4p-supportgroup.org Reviews

https://4p-supportgroup.org

Wolf-Hirschhorn Syndrome

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4p-supportgroup.org 4p-supportgroup.org
1

Photos & Videos

http://4p-supportgroup.org/photo-gallery-2

Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Photos & Videos. Photos & Videos. Welcome to Our Photo and Video Gallery! 2011 Region 1 Gathering. 2011 Region 2 Gathering. 2011 Region 3 Gathering in OH. 2011 Region 3 Gathering in MI. 2011 Region 4 Gathering. 2011 Region 5 Gathering. 2011 Region 6 Gathering. Return to top of page. Middot; Log in.

2

2016 Conference

http://4p-supportgroup.org/2016-conference

Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Plan to join us for our 2016 National Conference. To be held in the Los Angeles area. Wednesday, July 20th – Sunday, July 24th, 2016. Marriott Warner Center Woodland Hills. Woodland Hills, CA 91367. Double rooms $125.00* per night taxes (based on 2 adult occupancy, not including your 4p- adult child). CLICK HERE TO REGISTER NOW.

3

Existing Member Update Form

http://4p-supportgroup.org/membership/exsisting-member-update-form

Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Existing Member Update Form. Existing Member Update Form. Your First and Last Name (required). Country, if not in the United States. Your phone Number (required). 4p- Child's First and Last Name (required). 4p- Child's Date of Birth (required). 4p- Child's Gender (required). Make a Tax-deductible donation to the 4p- Support Group.

4

Board Of Directors

http://4p-supportgroup.org/board-of-directors

Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. 1495 Forest Brooke Way, #262. Delaware, OH 43015. Mishawaka, IN 46544. ME, VT, NH, CT, PA, DE, MA NY, RI, NJ, QC, NB). WV, VA, FL, GA, TN, NC, SC, AL, MS, KY, MD). ND, SD, NE, IA, MN, WI, IL, OH, MI, IN, MB, ON). Matt and Heather White. TX, LA, OK, AR, MO, KS, CO). WA, OR, AK, MT, WY, UT, ID, BC, AB, SK). HI, CA, AZ, NV, NM).

5

History

http://4p-supportgroup.org/board-of-directors/history

Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. A Brief History of the 4p- Support Group. In 1984, Becky Richardson started contacting parents who had children with a deletion of the 4. In August, 1992, Valerie Dillavou organized and facilitated a meeting of 25 families in Des Moines, to meet and discuss their joys, sorrows, what their children were able to do, what kind of su...

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TOTAL PAGES IN THIS WEBSITE

18

LINKS TO THIS WEBSITE

gotygo.blogspot.com gotygo.blogspot.com

Go, Ty! Go!: The Great Television Turnoff

http://gotygo.blogspot.com/2012/11/the-great-television-turnoff.html

The events of our life from my perspective. Inspired by a little boy. Friday, November 30, 2012. The Great Television Turnoff. Imagine my surprise when Peyton informs me he wants an iPhone for Christmas. Me too, kid. He's 7. What the heck does he need an iPhone for? Subscribe to: Post Comments (Atom). There was an error in this gadget. The Great Television Turnoff. Simple template. Template images by MadCircles.

papisdeangeles.blogspot.com papisdeangeles.blogspot.com

SWH: julio 2009

http://papisdeangeles.blogspot.com/2009_07_01_archive.html

Martes, julio 7. La historia de Ines. Mi nombre es Esther,vivo en Alicante, España y tengo tres hijos, la mayor es Inés. Desde aquí un recuerdo especial al Dr. García-Alix, neonatólogo del H.I. La Paz en aquel tiempo, que nos dio su apoyo como profesional y nos aconsejó y consoló cuando lo necesitamos. Y también la Dra. Roche que fue su neuropediatra durante 15 años. Publicadas por Luisina Homobono. Suscribirse a: Entradas (Atom). La historia de Ines. Enferm. Raras Mendoza. Se produjo un error en este ga...

papisdeangeles.blogspot.com papisdeangeles.blogspot.com

SWH: Nueva amiga!!

http://papisdeangeles.blogspot.com/2010/08/nueva-amiga.html

Domingo, agosto 15. Le damos la bienvenida a Daiana Denise, ella tiene 2 años y 1 mes pesa 6.300kg se alimenta de un botón gástrico y un nisen, tiene una c.i.a grande, el paladar endido, orejas bajas,hipertelorismo,mide 71cm no camina y solo se mantiene sentada por momentos. Ella ya había quedado detenida en su crecimiento a los 6 meses de embarazo nació con 31 semanas con 1.020kg. Publicadas por Luisina Homobono. 22 de noviembre de 2011, 15:08. Suscribirse a: Comentarios de la entrada (Atom). Las imagen...

papisdeangeles.blogspot.com papisdeangeles.blogspot.com

SWH: diciembre 2009

http://papisdeangeles.blogspot.com/2009_12_01_archive.html

Martes, diciembre 22. Publicadas por Luisina Homobono. Sábado, diciembre 5. Les presento a Martina (o Martu) tiene 8 años, vive en Benavidez (BS.AS.) logro caminar, comer sola y aunque no habla entiende todo. Para comunicarse con su mami Debora escribir a: deborathie@hotmail.com. Publicadas por Luisina Homobono. Suscribirse a: Entradas (Atom). Enferm. Raras Mendoza. Federacion esp. de enfermedades raras. Http:/ boards.melodysoft.com/foroswh/. Haciendo click sobre las fotos indicadas se podra ver.

papisdeangeles.blogspot.com papisdeangeles.blogspot.com

SWH: septiembre 2009

http://papisdeangeles.blogspot.com/2009_09_01_archive.html

Martes, septiembre 15. Tengo que compartir el video de Jack, es de USA. lo encontre en el siguiente link. Http:/ www.wolf-hirschhorn.org/Kinder/index.htm. Ahi tambien hay fotos. Y encontre esto tambien en YouTube:. Publicadas por Luisina Homobono. Etiquetas: sobre los angelitos. Suscribirse a: Entradas (Atom). Enferm. Raras Mendoza. Federacion esp. de enfermedades raras. Http:/ boards.melodysoft.com/foroswh/. Haciendo click sobre las fotos indicadas se podra ver. El blog del amiguito/a correspondiente.

omnimedianetworks.org omnimedianetworks.org

Omni Media Networks -- Related Links

http://www.omnimedianetworks.org/related_links.htm

The Powerful World of Sound. Related Links Contact Us. This portion of the website provides links to other organizations that offer information, education, and entertainment for the blind, disabled, and elderly. An OMNI partner whose mission is to provide information and support for parents, family members, and care providers of those who have 4p-. 2008 Omni Media Networks Contact Us.

papisdeangeles.blogspot.com papisdeangeles.blogspot.com

SWH: Otro Amiguito

http://papisdeangeles.blogspot.com/2011/07/otro-amiguito.html

Miércoles, julio 27. Haciendo click en su foto en la columna izquierda podrán leer su blog, se llama Bernardo y vive en Buenos Aires Arg. Este sábado 30 de julio cumple su primer año asi que aprovecho a dejarle muchos saludos. Publicadas por Luisina Homobono. No hay comentarios.:. Suscribirse a: Comentarios de la entrada (Atom). Enferm. Raras Mendoza. Federacion esp. de enfermedades raras. Http:/ boards.melodysoft.com/foroswh/. Haciendo click sobre las fotos indicadas se podra ver.

papisdeangeles.blogspot.com papisdeangeles.blogspot.com

SWH: enero 2010

http://papisdeangeles.blogspot.com/2010_01_01_archive.html

Viernes, enero 1. Publicadas por Luisina Homobono. Suscribirse a: Entradas (Atom). Enferm. Raras Mendoza. Federacion esp. de enfermedades raras. Http:/ boards.melodysoft.com/foroswh/. Haciendo click sobre las fotos indicadas se podra ver. El blog del amiguito/a correspondiente. Se produjo un error en este gadget.

papisdeangeles.blogspot.com papisdeangeles.blogspot.com

SWH: agosto 2010

http://papisdeangeles.blogspot.com/2010_08_01_archive.html

Domingo, agosto 15. Le damos la bienvenida a Daiana Denise, ella tiene 2 años y 1 mes pesa 6.300kg se alimenta de un botón gástrico y un nisen, tiene una c.i.a grande, el paladar endido, orejas bajas,hipertelorismo,mide 71cm no camina y solo se mantiene sentada por momentos. Ella ya había quedado detenida en su crecimiento a los 6 meses de embarazo nació con 31 semanas con 1.020kg. Publicadas por Luisina Homobono. Suscribirse a: Entradas (Atom). Enferm. Raras Mendoza. Se produjo un error en este gadget.

papisdeangeles.blogspot.com papisdeangeles.blogspot.com

SWH: Una entrada que debia...

http://papisdeangeles.blogspot.com/2011/09/una-entrada-que-debia.html

Miércoles, septiembre 7. Una entrada que debia. Andrea padecia escoliosis neuromuscular progesiva desde hace 5 años cuando tenia 6 años ahora tiene 11 estaba tratada con corsé de boston sin control de la escoliosis.en ultima revisión presentaba una curva t8-l4=118grados cifosis de 120 grados y bascula de pelvis 62 grados. Flexible con tracción a t8-l4=55grados y bascula de pelvis=18 grados. Publicadas por Luisina Homobono. No hay comentarios.:. Suscribirse a: Comentarios de la entrada (Atom).

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