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A Child's View into NF

Videos and News Coverage. My Make a Wish. Saturday, May 9, 2015. Today marks the day of something special. About three weeks ago, I started the low carb diet with my mother, Kristi. I have been doing VERY well. And I'm extremely happy with my progress. I will not put my weight on the blog because I have alot of issues being self concious about it. But I will say that today marks the day I've lost 15 pounds. :). I'm adding a before and after pic. Please no bad comments. Wednesday, March 11, 2015. The sw...

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A Child's View into NF | achildsviewintonf.blogspot.com Reviews

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Videos and News Coverage. My Make a Wish. Saturday, May 9, 2015. Today marks the day of something special. About three weeks ago, I started the low carb diet with my mother, Kristi. I have been doing VERY well. And I'm extremely happy with my progress. I will not put my weight on the blog because I have alot of issues being self concious about it. But I will say that today marks the day I've lost 15 pounds. :). I'm adding a before and after pic. Please no bad comments. Wednesday, March 11, 2015. The sw...

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A Child's View into NF | achildsviewintonf.blogspot.com Reviews

https://achildsviewintonf.blogspot.com

Videos and News Coverage. My Make a Wish. Saturday, May 9, 2015. Today marks the day of something special. About three weeks ago, I started the low carb diet with my mother, Kristi. I have been doing VERY well. And I'm extremely happy with my progress. I will not put my weight on the blog because I have alot of issues being self concious about it. But I will say that today marks the day I've lost 15 pounds. :). I'm adding a before and after pic. Please no bad comments. Wednesday, March 11, 2015. The sw...

INTERNAL PAGES

achildsviewintonf.blogspot.com

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A Child's View into NF: MRI time

http://achildsviewintonf.blogspot.com/2013/05/mri-time.html

Videos and News Coverage. My Make a Wish. Monday, May 13, 2013. Fergus helping Bailey to feel better.Thank you to the Children's Hospital for allowing her doggie to come with her today! Fergus has truly helped keep Bailey calm. March 31, 2014 at 2:53 PM. Healthline just designed a virtual guide of the effects of chemotherapy on the body. You can see the infographic here: http:/ www.healthline.com/health/cancer/effects-on-body. All the best,. Maggie Danhakl • Assistant Marketing Manager. My name is Bailey...

2

A Child's View into NF: April 2013

http://achildsviewintonf.blogspot.com/2013_04_01_archive.html

Videos and News Coverage. My Make a Wish. Monday, April 29, 2013. My dog has been sooo great! He is a very good boy :) and so sweet. I was supposed to teach him TWO tricks before his graduation. I taught him how to shake, and how to 'leap' over a broom.and my siblings. Subscribe to: Posts (Atom). My name is Bailey and I have Neurofibromatosis. I am also living with brain tumors. I decided I wanted to do a blog to help kids that have NF. My mom writes a blog too! Follow My Mommy Too!

3

A Child's View into NF: May 2015

http://achildsviewintonf.blogspot.com/2015_05_01_archive.html

Videos and News Coverage. My Make a Wish. Saturday, May 9, 2015. Today marks the day of something special. About three weeks ago, I started the low carb diet with my mother, Kristi. I have been doing VERY well. And I'm extremely happy with my progress. I will not put my weight on the blog because I have alot of issues being self concious about it. But I will say that today marks the day I've lost 15 pounds. :). I'm adding a before and after pic. Please no bad comments. Subscribe to: Posts (Atom).

4

A Child's View into NF: December 2014

http://achildsviewintonf.blogspot.com/2014_12_01_archive.html

Videos and News Coverage. My Make a Wish. Monday, December 8, 2014. Here I am again. And I finally have my first volunteer gig at FRIENDS set up! I get to help with stuff like decorations and set up. I'm very excited. And I really hope that they ask for me again. Other than that. Everything is going really well. I'm gonna be 19 soon! I'm really excited. I love this time of the year so much! The cold keeps me from outside. But the warmth and love surrounds me inside. Together they form a perfect tree.

5

A Child's View into NF: hello :)

http://achildsviewintonf.blogspot.com/2014/12/hello.html

Videos and News Coverage. My Make a Wish. Monday, December 8, 2014. Here I am again. And I finally have my first volunteer gig at FRIENDS set up! I get to help with stuff like decorations and set up. I'm very excited. And I really hope that they ask for me again. Other than that. Everything is going really well. I'm gonna be 19 soon! I'm really excited. I love this time of the year so much! The cold keeps me from outside. But the warmth and love surrounds me inside. Together they form a perfect tree.

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thrivingwithneurofibromatosis.blogspot.com

Thriving with Neurofibromatosis: You DO Matter!

http://thrivingwithneurofibromatosis.blogspot.com/2015/07/you-do-matter.html

How NF Affects MY kids. Who Is Kristi Hopkins? Sunday, July 19, 2015. This voice, and these words caught me off guard. I was at work, behind the register, expecting to ring up yet another large drink, ginormous popcorn, and package of Junior Mints. I've read your book." I looked up. "We're friends on facebook. You've been such an encouragement to me. You are so beautiful - you remind me of my mom.". A Quiet Encourager', was how one woman described me, when I was a guest speaker for an NF group in Canada.

thrivingwithneurofibromatosis.blogspot.com

Thriving with Neurofibromatosis: Sensory Integration Disorder

http://thrivingwithneurofibromatosis.blogspot.com/p/sensory-integration-disorder.html

How NF Affects MY kids. Who Is Kristi Hopkins? Sometimes called "sensory integration" or SI) is a term that refers to the way the nervous system receives messages from the senses and turns them into appropriate motor and behavioral responses. Whether you are biting into a hamburger, riding a bicycle, or reading a book, your successful completion of the activity requires processing sensation or "sensory integration.". What Sensory Processing Disorder looks like. As a baby, our daughter was what the pediat...

thrivingwithneurofibromatosis.blogspot.com

Thriving with Neurofibromatosis: Hiding with Neurofibromatosis

http://thrivingwithneurofibromatosis.blogspot.com/2015/06/hiding-with-neurofibromatosis.html

How NF Affects MY kids. Who Is Kristi Hopkins? Wednesday, June 24, 2015. So, I've been working at the movie theater for 3 months now. I've made my presence known as someone who is hardworking and reliable. My favorite job there, is working in the cafe' as a barista.I get to make cool drinks and desserts.And I take a lot of pride in the products I send out to people. I am having a lot of fun, but I still struggle with being 'out there' - in front of people. It's a constant struggle. I always have cared&#4...

treatingnf.blogspot.com

Treating NF: August 2014

http://treatingnf.blogspot.com/2014_08_01_archive.html

Wednesday, August 20, 2014. For more information and click "Join Team" to join us or scroll down and select your favorite Team Logan member to support (I know who my favorite team member is! End of the summer catch-up. I've been a little behind on updating you all as I have been pretty busy. The last month has been filled with some extra appointments and some fun vacation. I will try my best to remember and fill you in on it all. Fishing with Uncle Bobby. Subscribe to: Posts (Atom). A Child's View into NF.

treatingnf.blogspot.com

Treating NF: April 2014

http://treatingnf.blogspot.com/2014_04_01_archive.html

Friday, April 25, 2014. A long 2 weeks. The last two weeks had some ups and downs (more downs than ups.). Up- I had a week off work. (I work in schools so I get "built-in" vacation when the schools have breaks.). Down- I spent most of that week cleaning up vomit and tending to a sick Logan and our original plans to spend that week visiting family for Easter had to be abandoned. Up- We had a great time spending Easter with great friends. Smiling through the nausea. Thursday, April 10, 2014. This week has ...

treatingnf.blogspot.com

Treating NF: The end??

http://treatingnf.blogspot.com/2014/09/the-end.html

Sunday, September 21, 2014. This week was a very big week at chemo. This may have been his LAST chemo session! In 2 weeks, Logan will go for an MRI and if it is stable and there are no other concerns, we will be done with chemo! I wish I could have made a bigger deal about it and told Logan that it would be the last time, but I wouldn't be able to handle it if it that were not true. We'll have to wait for his MRI to hopefully celebrate the good news. It is not too late to contribute to the NF Walk for th...

treatingnf.blogspot.com

Treating NF: July 2014

http://treatingnf.blogspot.com/2014_07_01_archive.html

Sunday, July 20, 2014. Big brother looking on. Another point of discussion with the neuro-oncologist, was figuring out when there might be an end to this treatment. There are a lot of factors at play and a lot of options moving forward. Next steps will be discussed in more depth in October. Thursday, July 10, 2014. Logan did a great job. He laid still for nearly an hour while 3 different techs/doctors poked and prodded at his belly. Thank god for iPads! One step closer to knowing nothing more. As a paren...

treatingnf.blogspot.com

Treating NF: May 2014

http://treatingnf.blogspot.com/2014_05_01_archive.html

Tuesday, May 20, 2014. Bracelets Parker helped make in NF awareness colors. Momsie works for the Township of wonderful Toms River, NJ. Friday we set out to visit many of the township departments to collect donations and share a bit of Logan's story. The boys had a great time handing out stickers and lollipops and meeting so many wonderful and generous people. Order in the court! Logan's best "I just got arrested" face. Friday, May 9, 2014. Working in schools, I've heard a lot this week about "Teacher App...

treatingnf.blogspot.com

Treating NF: September 2014

http://treatingnf.blogspot.com/2014_09_01_archive.html

Sunday, September 21, 2014. This week was a very big week at chemo. This may have been his LAST chemo session! In 2 weeks, Logan will go for an MRI and if it is stable and there are no other concerns, we will be done with chemo! I wish I could have made a bigger deal about it and told Logan that it would be the last time, but I wouldn't be able to handle it if it that were not true. We'll have to wait for his MRI to hopefully celebrate the good news. It is not too late to contribute to the NF Walk for th...

thrivingwithneurofibromatosis.blogspot.com

Thriving with Neurofibromatosis: April 2015

http://thrivingwithneurofibromatosis.blogspot.com/2015_04_01_archive.html

How NF Affects MY kids. Who Is Kristi Hopkins? Wednesday, April 15, 2015. Links to this post. Wednesday, April 1, 2015. Been MIA.But I Have a Good Excuse. The last 2 weeks have been incredibly busy. Lots of good things have happened, and I am trying to find my groove and feeling a huge range of emotions, as I am learning to let go of some of the control and find new ways to trust the situation we are in. SoBasically, we could have appealed the decision, but instead .We chose to let it be. SoI dusted off ...

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achildsviewintonf.blogspot.com

A Child's View into NF

Videos and News Coverage. My Make a Wish. Saturday, May 9, 2015. Today marks the day of something special. About three weeks ago, I started the low carb diet with my mother, Kristi. I have been doing VERY well. And I'm extremely happy with my progress. I will not put my weight on the blog because I have alot of issues being self concious about it. But I will say that today marks the day I've lost 15 pounds. :). I'm adding a before and after pic. Please no bad comments. Wednesday, March 11, 2015. The sw...

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