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A Cure for Ellie

A Cure For Ellie is an organization dedicated to finding a cure and creating awareness for Mitochondrial Disease. The organization is named for Ellie McGinn, a 5-year old girl in Virginia who was diagnosed in September of 2011 with Leukodystrophy-LBSL – an extremely rare degenerative brain and spinal cord disease for which there is no cure and little understanding. Ellie's family and friends launched ACureForEllie.org in September 2013 to raise funds, spread awareness, and provide some answers for famil

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A Cure For Ellie is an organization dedicated to finding a cure and creating awareness for Mitochondrial Disease. The organization is named for Ellie McGinn, a 5-year old girl in Virginia who was diagnosed in September of 2011 with Leukodystrophy-LBSL – an extremely rare degenerative brain and spinal cord disease for which there is no cure and little understanding. Ellie's family and friends launched ACureForEllie.org in September 2013 to raise funds, spread awareness, and provide some answers for famil
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1 Mitochondria
2 Mitochondrial Disease
3 Mito Action
4 Mito Cocktail
5 Mito-kids
6 Energy For Life
7 ATP Cycle
8 Leukodystrophy
9 Leukoencephalopathy
10 LBSL
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A Cure for Ellie | acureforellie.org Reviews

https://acureforellie.org

A Cure For Ellie is an organization dedicated to finding a cure and creating awareness for Mitochondrial Disease. The organization is named for Ellie McGinn, a 5-year old girl in Virginia who was diagnosed in September of 2011 with Leukodystrophy-LBSL – an extremely rare degenerative brain and spinal cord disease for which there is no cure and little understanding. Ellie's family and friends launched ACureForEllie.org in September 2013 to raise funds, spread awareness, and provide some answers for famil

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A Cure For Ellie

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Ellie’s Impact | A Cure for Ellie

http://acureforellie.org/ellies-impact

Every Parent’s Dilemma: A Sick Child. A Five-Year Old Patient Teaching Doctors. Could it be something more serious? Those of us blessed with children have all been there. Then imagine the anguish and pain that comes with finally, after nearly a year, receiving the diagnosis you feared the most; that your child suffers from a uniquely rare and degenerative disease for which there is no cure and little scientific knowledge. And at the associated Kennedy Krieger Institute.

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Meet Ellie | A Cure for Ellie

http://acureforellie.org/meet-ellie

About Ellie’s Particular Disease – LBSL. Ellie McGinn was diagnosed with Leukodystrophy-LBSL a degenerative brain and spinal cord mitochondrial disease in September 2011. Ellie’s myelin problem stems from a mutation of the DARS 2 gene in her DNA. And while we can’t re-write her DNA (yet), science is now able to understand how that mutation impacts the function of the mitochondria in the cells responsible for helping to produce myelin. May 5, 2008. May 5, 2009. Ellie turns one year old. She took her f...

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Send a Message | A Cure for Ellie

http://acureforellie.org/send-a-message

If you would like to send a message of support to Ellie or have any additional questions about LBSL and Mitochondrial Disease, please use the contact form below.

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Fairlington 5K | Fairlington Citizens Association

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Bylaws & Policies. Meetings & Events. The FCA and Abingdon Elementary School hosted the neighborhood’s first 5K race in many years on Saturday, April 5, 2014. Proceeds benefitted the school’s literacy and PE programs, and A Cure for Ellie. Named Ellie McGinn, an Abingdon student with a rare disease. The race brought the community together, with more than 700 participants and many local businesses supporting the event. Learn more at http:/ fairlington5k.com/. View the latest bulletin. Sign Up For Updates.

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the food sherpa llc: news — 2015 fairlington 5k sponsor

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Soups, Stews and Braises, and Chili. Beef, Pork and Lamb. 2015 Fairlington 5K Sponsor. March 2, 2015. For the second consecutive year,. The food sherpa llc. Is proud to sponsor the Fairlington 5K. According to the Fairlington 5K Website: The 2nd Annual Fairlington 5K Run and Walk is a non-competitive family friendly event hosted by Abingdon Elementary School. And the Fairlington Citizens Association (FCA). While bringing together the community.”. The food sherpa llc. Serving Clients with Special Diets.

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A brave seven year old girl, a rare disease for which there is no cure, and a journey of hope. So that one day other families might be spared the pain and agony that comes with not knowing what is hurting their child, Ellie is now teaching doctors and medical students how to better detect, diagnose and treat LBSL and other Mitochondrial diseases. Her courage gives hope to millions and her determination may just be the key to finding a cure one day. About Ellie’s Particular Disease – LBSL. A Cure for Ellie.

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