A Cure for Ellie is focused on funding research connecting the detection, diagnosing and treatment of LBSL and other types of childhood Leukodystrophies and Mitochondrial diseases. Your support goes right to funding a research project at Kennedy Krieger Institute which will provide a roadmap towards nanotherapy for LBSL.
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https://secure.acureforellie.org
A Cure for Ellie is focused on funding research connecting the detection, diagnosing and treatment of LBSL and other types of childhood Leukodystrophies and Mitochondrial diseases. Your support goes right to funding a research project at Kennedy Krieger Institute which will provide a roadmap towards nanotherapy for LBSL.
Ellie’s Impact | A Cure for Ellie
http://acureforellie.org/ellies-impact
Every Parent’s Dilemma: A Sick Child. A Five-Year Old Patient Teaching Doctors. Could it be something more serious? Those of us blessed with children have all been there. Then imagine the anguish and pain that comes with finally, after nearly a year, receiving the diagnosis you feared the most; that your child suffers from a uniquely rare and degenerative disease for which there is no cure and little scientific knowledge. And at the associated Kennedy Krieger Institute.
Meet Ellie | A Cure for Ellie
http://acureforellie.org/meet-ellie
About Ellie’s Particular Disease – LBSL. Ellie McGinn was diagnosed with Leukodystrophy-LBSL a degenerative brain and spinal cord mitochondrial disease in September 2011. Ellie’s myelin problem stems from a mutation of the DARS 2 gene in her DNA. And while we can’t re-write her DNA (yet), science is now able to understand how that mutation impacts the function of the mitochondria in the cells responsible for helping to produce myelin. May 5, 2008. May 5, 2009. Ellie turns one year old. She took her f...
Send a Message | A Cure for Ellie
http://acureforellie.org/send-a-message
If you would like to send a message of support to Ellie or have any additional questions about LBSL and Mitochondrial Disease, please use the contact form below.
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