An information and support network for those people diagnosed with Alkaptonuria. Includes discussions, articles and related resources
http://www.akusociety.org/
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The AKU Society - An information and support network for people diagnosed with Alkaptonuria | akusociety.org Reviews
https://akusociety.org
An information and support network for those people diagnosed with Alkaptonuria. Includes discussions, articles and related resources
akusociety.org
Welcome To The Alkaptonuria Society - AKU Society
http://www.akusociety.org/index.html
Shopping cart is empty. Learn more about AKU, its symptoms and treatments. Learn more about the AKU Society and our supporters. Learn more about what help is available to AKU patients. For volunteers, fundraisers, or to join our events. Register here for the. Reach out to AKU. Patients around the world. Get in touch with the AKU team. SHCA: Campaigning for Patients with Complex and Rare Diseases. Campaigning for Improvements to Rare Disease Services in Wales. Transforming the lives of AKU patients.
AKU Online Learning Module
http://www.akusociety.org/rcgp
Shopping cart is empty. RCGP Online Learning Module. Patients with alkaptonuria (AKU) often struggle to get a diagnosis due to lack of awareness. Many of our patients are misdiagnosed multiple times and have to wait years before they finally get a correct diagnosis. This can be very stressful and upsetting for patients and as they get older, symptoms tend to be more severe and difficult to manage. There may be many more patients out there who are still waiting for a diagnosis. Register here for the.
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Organization Profiles - T R A I N Central Station
http://train.fastercures.org/about/profiles
What is venture philanthropy? Research and Development System. Venture Philanthropy in the News. This first-of-its-kind inventory was designed to help potential collaborators better understand the landscape of nonprofit disease research foundations and engage in meaningful partnerships with them. Using a set of common metrics, it highlights key details about each organization's research portfolio, collaboration efforts, and financials. Last updated in June 2014, it profiles the 60 organizations in. Allia...
cordieliea
http://cordieliea.livejournal.com/tag/alkaptonuria
BetOnMarkets Customer Survey Raises Money for Charity. Jan 17th, 2013 at 2:11 PM. The Directors of BetOnMarkets, the leading fixed-odds trading provider with over 300,000 customers worldwide, are delighted to announce that our recent online customer survey has raised a $2,870 for the AKU Society. AKU (short for Alkaptonuria) is a rare genetic disease also called Black Bone Disease. Jean-Yves Sireau, CEO of BetOnMarkets, said:. AKU is an ultra-rare genetic disease affecting one in 500,000 people. It i...
Pigeon post – AKU Trustee needed | Blogging Convergence
https://convergence2009.wordpress.com/2013/05/28/pigeon-post-aku-trustee-needed
Pigeon post – AKU Trustee needed. Is a medical charity that seeks to find treatments and a cure to AKU, a rare genetic disease which leads to severe physical disability. It is an exciting time for the charity as they have just launched their first clinical trial for a new treatment having managed to raise 18 million. They have also created a new model for drug development that could radically change how wider medical research is carried out. AKU Society is looking for. And visit www.akusociety.org. Teens...
May | 2015 | BHD Research
http://bhdresearch.scienceblog.com/date/2015/05
Your Resource for Birt-Hogg-Dubé Syndrome. Skip to primary content. Skip to secondary content. Monthly Archives: May 2015. The potential use of BH3-mimetics to overcome apoptosis-resistance in renal cell carcinoma. May 29, 2015. Renal cell carcinoma (RCC), as well as other solid tumours, can prove resistant to standard cancer treatments such as chemotherapy. One mechanism likely to play a role in this resistance is activation of HIF. In response to cell death signals BH3-only family members, such as BIM.
Supporters
http://rdstaging.geneticalliance.uk/supporters
What is a rare disease? Rare Disease UK (RDUK) has over 2,000 registered supporters including academics, clinicians, industry, individual members and patient organisations. For more information and to join RDUK please click here. Our industry supporters for 2016 are: Aegerion, Alexion, Amgen, Amicus Therapeutics, Bio Marin, Biogen, Chiesi, CSL Behring, Genzyme, GlaxoSmithKline, Healx, Novartis, Pfizer, PTC Therapeutics, Raptor, Roche, Shire, Sigma-Tau Rare Disease, SOBI, UCB and Vertex. CDH-UK (Congenita...
Testimonials - DNAdigest.org
http://dnadigest.org/testimonials-2
News & Articles. Genetic Clinic of the Future. What can I do to help? DNAdigest addresses a key issue of amassing a meta-genome for Homo sapiens sapiens. Data sequestered in private databases, be they academic or commercial, that is not accessible to all potential users contributes to the creation of private instances of the human genome that deny legitimate users the fullest sense of the genetic variation among humans. 8211; Hugh Young Rienhoff. Chairman and CEO AKU Society, www.akusociety.org. Solving ...
Partner
http://www.dsaku.de/ueber-dsaku/partner
Um als kleiner Verein so professionell und effizient wie möglich unsere Ziele verfolgen zu können, haben wir ein Netzwerk von Partnern aufgebaut, mit deren Zusammenarbeit wir in der Lage sind durch Informationen und Versorgung sowohl im medizinischem als auch im sozialrechtlichem Bereich Hilfe für AKU-Patienten aller Altersgruppen zu leisten. Verein für angeborenen Stoffwechselstörungen. Die Allianz chronisch seltener Erkrankungen. DRL) ist der größte Verein Deutschlands und vertritt die Inter...In Cambr...
HGD homepage - HGD mutation database - Leiden Open Variation Database
http://hgddatabase.cvtisr.sk/variants.php?select_db=HGD&action=view_all
Homogentisate 1,2-dioxygenase (HGD). LOVD v.2.0 Build 36 [ Current LOVD status. Curator: Dr. Andrea Zatkova. View all (unique) PubMed references. In the HGD database. October 24, 2010. June 28, 2016. Submit a sequence variant. Coding DNA reference sequence. For describing sequence variants. Total number of unique DNA variants reported. Total number of individuals with variant(s). Total number of variants reported. Subscribe to updates of this gene. More data can be downloaded here:. Summary of all sequen...
thelaurencurrietwilightfoundation.org
The Lauren Currie Twilight Foundation
http://www.thelaurencurrietwilightfoundation.org/blog
Black & Red 2016 / Five – PR launch. The Nicest Job in Britain – charity partner. Summer 2016 at LCTF. Small Charity Week 2016. HOPE – Helping Other Patients Everywhere. On Rheumatology 2016 – SECC, Glasgow. On Rheumatology 2016 – SECC, Glasgow. On Rheumatology 2016 – SECC, Glasgow. On Glasgow Support Group. On Eating Well with Vasculitis – New Booklets Available. August 22, 2016. Raising awareness is hugely important. Vasculitis is rare and can be difficult to diagnose so increasing knowledge and un...
Alkaptonuria (AKU), the Community - RareConnect
https://www.rareconnect.org/en/community/alkaptonuria-aku
Connecting rare disease patients globally. Search and join a community. Search or start a discussion. Living with a rare disease. Discuss with other patients. Welcome - Alkaptonuria (AKU) Community. What is Alkaptonuria (AKU)? Alkaptonuria (AKU) is a rare autosomal recessive disease, affecting tyrosine metabolism. Patients accumulate homogentisic acid at 2000 times the normal rate, resulting in cartilage degradation and symptoms similar to early-onset osteoarthritis. Doctors hardly ever want to help.
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Akusmayadi's Weblog | Just another WordPress.com weblog
Just another WordPress.com weblog. Metode SRI Tingkatkan Produksi Beras 78 Persen. Januari 21, 2008. Metode SRI Tingkatkan Produksi Beras 78 Persen. IPB Tawarkan Soybean Estate System dan Galur Unggul Untuk Atasi Krisis Kedelai di Indonesia. Blog di WordPress.com. The Morning After Theme. Kirimkan setiap pos baru ke Kotak Masuk Anda. Buat situs dengan WordPress.com.
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The AKU Society - An information and support network for people diagnosed with Alkaptonuria
Black Spots in the Eyes. Discolouration of the Ears. A Potential Drug - Nitisinone. AKU in the News. Our Indiegogo campaign is complete, and we exceeded our target, raising over $36000. Our campaign is now 'On Demand' so you can still donate! Connect with others affected by AKU. Connect with other AKU patients and caregivers like you in our free online AKU community. Find out more about the team behind the AKU Society. Curing Black Bone Disease. A National Treatment Centre. Stepping Up Our Fundraising.
AKU Society North America
The AKU Society of North America. Is a non-profit organization that focuses on improving the quality of life of AKU patients and their families by providing education, resources, and opportunities for interaction for patients, families, and physicians associated with alkaptonuria (AKU). The Society will raise funds for support of research, education, and meetings to advance knowledge of the disease and possibilities for treatment of AKU. Funds will be raised through solicitation of donations. The AKU Soc...
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