AKUSOCIETYNA.ORG

AKU Society North America

The AKU Society of North America. Is a non-profit organization that focuses on improving the quality of life of AKU patients and their families by providing education, resources, and opportunities for interaction for patients, families, and physicians associated with alkaptonuria (AKU). The Society will raise funds for support of research, education, and meetings to advance knowledge of the disease and possibilities for treatment of AKU. Funds will be raised through solicitation of donations. The AKU Soc...

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AKU Society North America | akusocietyna.org Reviews

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The AKU Society of North America. Is a non-profit organization that focuses on improving the quality of life of AKU patients and their families by providing education, resources, and opportunities for interaction for patients, families, and physicians associated with alkaptonuria (AKU). The Society will raise funds for support of research, education, and meetings to advance knowledge of the disease and possibilities for treatment of AKU. Funds will be raised through solicitation of donations. The AKU Soc...

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2 about aku

3 nitisinone

4 scientific papers

5 patients

6 worldwide map

7 testimonials

8 clinical trials

9 coming soon nutrition

10 coming soon forum

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AKU Society North America | akusocietyna.org Reviews

https://akusocietyna.org

The AKU Society of North America. Is a non-profit organization that focuses on improving the quality of life of AKU patients and their families by providing education, resources, and opportunities for interaction for patients, families, and physicians associated with alkaptonuria (AKU). The Society will raise funds for support of research, education, and meetings to advance knowledge of the disease and possibilities for treatment of AKU. Funds will be raised through solicitation of donations. The AKU Soc...

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akusocietyna.org

1

AKU Society NA • Scientific Papers

http://www.akusocietyna.org/learn/papers.html

Scientific Papers regarding AKU. The book ‘Inborn Errors of Metabolism’, by Sir Archibald Garrod, the scientist who identified AKU more than 100 years ago, can be downloaded for free from: http:/ www.esp.org. The chapters on AKU can be downloaded as PDFs here: Chaper 4. The AKU science groups have been particularly prolific, with a number of new papers published:. Lsquo;Pharmacological and toxicological considerations of homogentisic acid in Alkaptonuria’, by.

2

AKU Society NA • Resources

http://www.akusocietyna.org/resources.html

Http:/ www.rarediseasecommunities.org/en/community/alkaptonuria-aku). Http:/ tonyatthenih.wordpress.com/). A Rare Disease Explained. Http:/ www.youtube.com/watch? Is a YouTube by Denise Higgins. She explains a little about the disease and her experience. Running time is about one minute. The AKU Society of North America 10451 Roselle Street #300 San Diego, CA 92121 (800) 549-8110.

3

AKU Society North America

http://www.akusocietyna.org/index.html

The AKU Society of North America. Is a non-profit organization that focuses on improving the quality of life of AKU patients and their families by providing education, resources, and opportunities for interaction for patients, families, and physicians associated with alkaptonuria (AKU). The Society will raise funds for support of research, education, and meetings to advance knowledge of the disease and possibilities for treatment of AKU. Funds will be raised through solicitation of donations. Prof Rangan...

4

AKU Society North America

http://www.akusocietyna.org/donate.html

Donations can be made by check and mailed to:. The AKU Society of North America. 10451 Roselle Street #300. San Diego, CA 92121. Rich Clary, an AKU patient from California,. Is riding in the Tour de Pendleton 100-Mile Bike Event. On November 2, 2013. To raise money for. The AKU Society of North America. To read his story and donate to AKU. The AKU Society of North America 10451 Roselle Street #300 San Diego, CA 92121 (800) 549-8110.

5

AKU Society NA • About Nitisinone

http://www.akusocietyna.org/learn/nitisinone.html

What AKU patients need to know about Nitisinone. Dr Duncan Batty, AKU patient, AKU volunteer, and former pharma industry researcher with a PhD in biochemistry, has put together a document designed to give AKU patients his viewpoint on what Nitisinone is, why it is a possible treatment for AKU and what is known about its long term effecis. Download it here: Taking-Nitisinone.pdf. The AKU Society of North America 10451 Roselle Street #300 San Diego, CA 92121 (800) 549-8110.

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smithfamilyclinic.org

For Patients - Smith Family Clinic

https://smithfamilyclinic.org/become-a-clinic-patient

Support for the Clinic Mission. HudsonAlpha Clinical Services Lab. Step-by-step Guide for Patients. Notice of Privacy Practices. Help for undiagnosed disease in Huntsville, Alabama and around the world. Why might I or a family member want to be a patient at the The Smith Family Clinic for Genomic Medicine. On the campus of HudsonAlpha Institute for Biotechnology. How does an individual get accepted as a patient at The Smith Family Clinic for Genomic Medicine. Or emailing info@smithfamilyclinic.org. If yo...

cc4c.org

Resources - Cc4c.org

http://cc4c.org/resources

Our Mission and Vision. 2016-17 Champion Child Application. Searching for answers when your child is suffering from a rare or undiagnosed condition can be frustrating. We have organized the information from various websites in an easy-to-find way. While CC4C cannot endorse or guarantee any of these resources, many of our families have found these sites to be useful. Article: How Patients With Rare Diseases Can Scour The World For A Cure on. Wwwrarediseases.info.NIH.gov. Or call at 800-999-NORD. Https:/ w...

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The AKU Society - An information and support network for people diagnosed with Alkaptonuria

Black Spots in the Eyes. Discolouration of the Ears. A Potential Drug - Nitisinone. AKU in the News. Our Indiegogo campaign is complete, and we exceeded our target, raising over $36000. Our campaign is now 'On Demand' so you can still donate! Connect with others affected by AKU. Connect with other AKU patients and caregivers like you in our free online AKU community. Find out more about the team behind the AKU Society. Curing Black Bone Disease. A National Treatment Centre. Stepping Up Our Fundraising.

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akusocietyna.org

AKU Society North America

The AKU Society of North America. Is a non-profit organization that focuses on improving the quality of life of AKU patients and their families by providing education, resources, and opportunities for interaction for patients, families, and physicians associated with alkaptonuria (AKU). The Society will raise funds for support of research, education, and meetings to advance knowledge of the disease and possibilities for treatment of AKU. Funds will be raised through solicitation of donations. The AKU Soc...

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