ALPORTSTUDY.COM

Alport Syndrome: The Natural History Study

What is Alport syndrome? About the ATHENA Study:. Mapping the Course of Alport syndrome. If you have Alport syndrome, or know someone who does, you may want to learn about the ATHENA study now recruiting patients worldwide. The ATHENA study is designed to learn more about the progression of Alport syndrome, particularly regarding the changes in the kidneys over time in Alport syndrome patients. The ATHENA study is an observational study. And does not involve the use of any investigational drugs.

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Alport Syndrome: The Natural History Study | alportstudy.com Reviews

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What is Alport syndrome? About the ATHENA Study:. Mapping the Course of Alport syndrome. If you have Alport syndrome, or know someone who does, you may want to learn about the ATHENA study now recruiting patients worldwide. The ATHENA study is designed to learn more about the progression of Alport syndrome, particularly regarding the changes in the kidneys over time in Alport syndrome patients. The ATHENA study is an observational study. And does not involve the use of any investigational drugs.

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2 understanding clinical studies

3 clinical studies faqs

4 resources and links

5 coupons

6 reviews

7 scam

8 fraud

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Alport Syndrome: The Natural History Study | alportstudy.com Reviews

https://alportstudy.com

What is Alport syndrome? About the ATHENA Study:. Mapping the Course of Alport syndrome. If you have Alport syndrome, or know someone who does, you may want to learn about the ATHENA study now recruiting patients worldwide. The ATHENA study is designed to learn more about the progression of Alport syndrome, particularly regarding the changes in the kidneys over time in Alport syndrome patients. The ATHENA study is an observational study. And does not involve the use of any investigational drugs.

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alportstudy.com

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Understanding Clinical Studies

http://www.alportstudy.com/understanding-clinical-studies.html

What is Alport syndrome? A clinical study involves research using volunteers (also called participants) that is intended to add to medical knowledge. There are two main types of clinical studies: observational studies and clinical trials. What is an Observational Study? What is a Clinical Trial? Clinical trials of drugs provide information about:. Whether the drug has the effect it is supposed to have. What side effects are associated with the drug, and how they can best be managed. Participants in clini...

2

About this Alport Syndrome Study

http://www.alportstudy.com/what-is-alport-syndrome.html

What is Alport syndrome? What is Alport syndrome? There is currently little information on exactly how Alport syndrome progresses and no approved therapy. The ATHENA study is designed to map the changes in the kidneys of Alport syndrome patients over time so that new therapies may be appropriately tested. Email: ATHENA alportstudy@agility-clinical.com.

3

Alport Syndrome: The Natural History Study

http://www.alportstudy.com/index.html

What is Alport syndrome? About the ATHENA Study:. Mapping the Course of Alport syndrome. Do you have Alport syndrome? Do you know someone who does? Now is your chance - do your part to map the course of Alport syndrome. Contact a location near you to learn about the ATHENA study if you:. Are 16 years of age or older, and. Have been diagnosed with Alport syndrome. You are not qualified for this study if you:. Have received a kidney transplant. Are currently on dialysis. In patients with Alport syndrome.

4

Alport Syndrome Study Site Locator

http://www.alportstudy.com/alport-syndrome-study-locator.html

What is Alport syndrome? Do you know someone who is thinking about participating in a clinical study? Use the Site Locator below to find an ATHENA Study site near you. Select a Country or State. US - New York.

5

Clinical Trials FAQs

http://www.alportstudy.com/clinical-studies-faq.html

What is Alport syndrome? Clinical Studies Frequently Asked Questions. Choosing to participate in a clinical study is an important personal decision. The following frequently asked questions provide detailed information about clinical studies. In addition, it is often helpful to talk to a physician, family members, or friends about deciding to join a study. After identifying some study options, the next step is to contact the study team and ask questions. What is an investigational drug? What is a placebo?

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regulusrx.com

RG-012 - Regulus Therapeutics

http://regulusrx.com/therapeutic-areas/rg-012-targeting-mir-21-for-alport-syndrome

Biology & Pharmacology. Financials & Filings. Events & Presentations. Keeping our RGLS Family Healthy. Compensation and Financial Rewards. Regulus is developing RG-012, a single stranded, chemically modified oligonucleotide that binds to and inhibits the function of miR-21 for the treatment of Alport syndrome. Alport syndrome is a life threatening genetic kidney disease with no approved therapies. In preclinical studies, RG-012 has demonstrated potent inhibition of miR-21. ATHENA Natural History Study an...

kidneyurology.org

The Kidney & Urology Foundation of America

http://www.kidneyurology.org/index.php

ORGAN and TISSUE DONATION. NEWS and RECENT EVENTS. And become an essential part of the fight to save and improve lives. There are no fees for patients, family and friends to get connected! Our NYC address is. 104 West 40th Street, Suite 500. New York, NY 10018. Our HQ office is. 63 West Main Street, Suite G Freehold, NJ 07728. Kidney and Urology Foundation of America is proud to collaborate with NephCure Kidney International on the NY/NJ Regional Nephrotic Syndrome Symposium. News and Recent Events.

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alportstudy.com

Alport Syndrome: The Natural History Study

What is Alport syndrome? About the ATHENA Study:. Mapping the Course of Alport syndrome. If you have Alport syndrome, or know someone who does, you may want to learn about the ATHENA study now recruiting patients worldwide. The ATHENA study is designed to learn more about the progression of Alport syndrome, particularly regarding the changes in the kidneys over time in Alport syndrome patients. The ATHENA study is an observational study. And does not involve the use of any investigational drugs.

alportsyndrome.ca

Alport Syndrome - Support For Canadians

Welcome to AlportSyndrome.ca. This website is intended to provide support for Alport Syndrome patients and families across Canada and help raise awareness of Alport Syndrome. If you are affected by Alport Syndrome, please enroll in the Online Canadian Alport Syndrome Registry. If you or your family member has been diagnosed with Alport Syndrome, you may also want to register with the ASTOR Program. At the University of Minnesota. Resources on the Web.

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alportsyndrome.org

Alport Syndrome Foundation - Hope, Action, Support

Subscribe to our newsletter. Message from the Board. What is Alport Syndrome? Hear From the Experts. Paul Silver Tribute Award. Fundraising & Events. Annual Campaign Healthy Kidneys. 5K for Healthy Kidneys a Great Success! The 5K for Healthy Kidneys. Events in Arizona and South Dakota raised more than $47,000 for education and outreach. Alport Syndrome Observational Study. Thank you to all the ASF campaigners and donors. Have you seen the latest ASF newsletter? Be sure to register. Make a tribute gift.

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alportsyndromeinpa.wordpress.com

Alport Syndrome in PA | ~ Help Us Find A Cure ~

Alport Syndrome in PA. Help Us Find A Cure. What a Way to Start Off the Spring…. We have some great news, we have decided to give out some Door Prizes. These are just a few dresses that will be at the event. However these are not the same dresses that will be in the Fashion show. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. Help Find a Cure.