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Alport Syndrome - Support For Canadians

Welcome to AlportSyndrome.ca. This website is intended to provide support for Alport Syndrome patients and families across Canada and help raise awareness of Alport Syndrome. If you are affected by Alport Syndrome, please enroll in the Online Canadian Alport Syndrome Registry. If you or your family member has been diagnosed with Alport Syndrome, you may also want to register with the ASTOR Program. At the University of Minnesota. Resources on the Web.

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Welcome to AlportSyndrome.ca. This website is intended to provide support for Alport Syndrome patients and families across Canada and help raise awareness of Alport Syndrome. If you are affected by Alport Syndrome, please enroll in the Online Canadian Alport Syndrome Registry. If you or your family member has been diagnosed with Alport Syndrome, you may also want to register with the ASTOR Program. At the University of Minnesota. Resources on the Web.
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Alport Syndrome - Support For Canadians | alportsyndrome.ca Reviews

https://alportsyndrome.ca

Welcome to AlportSyndrome.ca. This website is intended to provide support for Alport Syndrome patients and families across Canada and help raise awareness of Alport Syndrome. If you are affected by Alport Syndrome, please enroll in the Online Canadian Alport Syndrome Registry. If you or your family member has been diagnosed with Alport Syndrome, you may also want to register with the ASTOR Program. At the University of Minnesota. Resources on the Web.

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Alport Syndrome - Support For Canadians

http://www.alportsyndrome.ca/alport.php

What is Alport Syndrome? Alport Syndrome is a genetic disorder characterized by glomerulonephritis, endstage kidney disease, and hearing loss. Alport Syndrome can also affect the eyes. In 1927, Dr. Cecil A. Alport first described the combination of progressive hereditary nephritis with sensorineural deafness. Brown, pink, or red urine (gross hematuria) for several days, associated with a cold or flu. Protein in the urine (proteinuria) and high blood pressure. Some people with Alport Syndrome have abnorma...

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What is Alport syndrome? Find out more about Alport syndrome, kidney disease, clinical studies, and patient support materials on these websites:. Alport Syndrome Information and Patient Advocacy Groups. Alport Foundation of Australia. Alport Support Group - Germany. Alport Syndrome Hope for the Cure Foundation. Federation of European Association of Patients affected by Renal Genetic Diseases (FEDERG). Genetics Home Reference, Your Guide to Understanding Genetic Conditions- Alport Syndrome.

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http://www.alport-study.com/clinical-studies-resources.html

What is Alport syndrome? Find out more about Alport syndrome, kidney disease, clinical studies, and patient support materials on these websites:. Alport Syndrome Information and Patient Advocacy Groups. Alport Foundation of Australia. Alport Support Group - Germany. Alport Syndrome Hope for the Cure Foundation. Federation of European Association of Patients affected by Renal Genetic Diseases (FEDERG). Genetics Home Reference, Your Guide to Understanding Genetic Conditions- Alport Syndrome.

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What is Alport syndrome? About the ATHENA Study:. Mapping the Course of Alport syndrome. If you have Alport syndrome, or know someone who does, you may want to learn about the ATHENA study now recruiting patients worldwide. The ATHENA study is designed to learn more about the progression of Alport syndrome, particularly regarding the changes in the kidneys over time in Alport syndrome patients. The ATHENA study is an observational study. And does not involve the use of any investigational drugs.

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Alport Syndrome - Support For Canadians

Welcome to AlportSyndrome.ca. This website is intended to provide support for Alport Syndrome patients and families across Canada and help raise awareness of Alport Syndrome. If you are affected by Alport Syndrome, please enroll in the Online Canadian Alport Syndrome Registry. If you or your family member has been diagnosed with Alport Syndrome, you may also want to register with the ASTOR Program. At the University of Minnesota. Resources on the Web.

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Alport Syndrome Foundation - Hope, Action, Support

Subscribe to our newsletter. Message from the Board. What is Alport Syndrome? Hear From the Experts. Paul Silver Tribute Award. Fundraising & Events. Annual Campaign Healthy Kidneys. 5K for Healthy Kidneys a Great Success! The 5K for Healthy Kidneys. Events in Arizona and South Dakota raised more than $47,000 for education and outreach. Alport Syndrome Observational Study. Thank you to all the ASF campaigners and donors. Have you seen the latest ASF newsletter? Be sure to register. Make a tribute gift.

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