4p-supportgroup.org
Membership
http://4p-supportgroup.org/membership
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Informacion en Espanol con respeto al grupo de suporte de cromosoma 4p- (Wolf-Hirschhorn Sindrome) y la reunion regional; llame a Denise Barnes. A (818)468-8671 o region6@4p-supportgroup.org. Chromosomal abnormality are eligible for membership. Membership entitles parents and guardians to:. E-newsletters and organization updates,.
4p-supportgroup.org
2015 Gatherings
http://4p-supportgroup.org/2015-gatherings
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. For the most up-to-date information, please visit our event page on Facebook too. RI, NJ, QC, NB). The Region 1 gathering will be at Laurie Hunter’s home in Jackson, NJ. On Saturday, July 25th at noon. To RSVP or for questions:. Brianna Hauck, Region 1 Director. WV, VA, FL, GA, TN, NC, SC, AL, MS, KY, MD). If you end up needing t...
4p-supportgroup.org
General 4p- Info
http://4p-supportgroup.org/general-info
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. The amount of material deleted may range from about 50% of the short arm to a small break that can’t be detected by normal chromosome analysis. In 10-20% of the cases the deletion can occur as a result of a translocated chromosome in the parent. We have some sayings in our group;. Let your child show you what they can do. Fisch G...
4p-supportgroup.org
Membership Request
http://4p-supportgroup.org/membership/request-membership
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Informacion en Espanol con respeto al grupo de suporte de cromosoma 4p- (Wolf-Hirschhorn Sindrome) y la reunion regional; llame a Denise Barnes. A (818)468-8671 o region6@4p-supportgroup.org. Your First and Last Name (required). Second Parent Name (optional). Your Primary Email (required). Country, if not in the United States.
4p-supportgroup.org
Scientific Advisory Board
http://4p-supportgroup.org/for-professionals/scientific-advisory-board
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Amy RU.L. Calhoun, MD. Assistant Professor of Pediatrics. University of Minnesota Medical School. John Carey, MD, MPH. University of Utah School of Medicine. Salt Lake City, Utah. Agatino Battaglia, MD, DPed, DNeurol. Adjunct Professor of Child Neuropsychiatry. Pisa, Italy;. Adjunct Professor of Pediatrics. Salt Lake City, Utah;.
4p-supportgroup.org
Ideas to Spread Awareness
http://4p-supportgroup.org/fundraising/4p-awareness-day/spread-awareness
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Ideas to Spread Awareness. Ideas to Spread Awareness. How can you help spread awareness and support? Para los recursos y plantillas en español, por favor visite http:/ wolfhirschhorn.com. Want to do something amazing for 4p-/WHS Awareness Day that can have a PROFOUND effect? Have a bake sale. Sample letters; work letter template.
4p-supportgroup.org
4p- Awareness Day
http://4p-supportgroup.org/fundraising/4p-awareness-day
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. SHOW YOUR SUPPORT BY WEARING JEANS ON APRIL, 16TH FOR 4P-/WOLF-HIRSCHHORN SYNDROME! You can even choose a pair with a hole in them to symbolize the missing material in 4p-! And don’t forget to wear your wristbands and favorite 4p- t-shirt! 4p- Support Group (North America) www.4p-supportgroup.org. We ask that you join our Interna...
4p-supportgroup.org
4p- Growth Charts
http://4p-supportgroup.org/general-info/4p-growth-charts
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. 4p- height-weight ratio growth chart. Growth charts for Wolf-Hirschhorn syndrome: 0-4years of age. T Antonius. Eur J Pediatr. 2008 July; 167(7): 807 810.). Make a Tax-deductible donation to the 4p- Support Group. Get eNews and Updates. Sign-up to received the latest eNews and Updates. View Our 2016 Awareness Day Video. Medela Spe...
4p-supportgroup.org
Donations & Fundraising
http://4p-supportgroup.org/fundraising
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Donations & Fundraising. Donations & Fundraising. Monetary donations can be made through PayPal. Or checks can be mailed to:. C/o Amanda Lortz, Executive Director. 1495 Forest Brooke Way, #262. Delaware, OH 43015. To learn more about Kammy’s Kause please visit www.kammyskause.org. Other fundraising activities include:. Sign-up to...
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