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Cornelia de Lange Syndrome - CdLS WorldCornelia de Lange Syndrome
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Gerritjan Koekkoek
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gerritjan koekkoek consulting
Gerritjan Koekkoek
Burch●●●●●an 97
's-He●●●●●ogenbosch , noord brabant, 5235 GH
Netherlands
View this contact
gerritjan koekkoek consulting
Gerritjan Koekkoek
Burch●●●●●an 97
's-He●●●●●ogenbosch , noord brabant, 5235 GH
Netherlands
View this contact
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Cornelia de Lange Syndrome - CdLS World | cdlsworld.com Reviews
https://cdlsworld.com
Cornelia de Lange Syndrome
cdlsworld.com
What is CdLS? - CdLS World
http://www.cdlsworld.com/xwiki/bin/view/cdlsServices/serviceWhatIsCdls
The worldwide website about. Cornelia de Lange Syndrome. World of Cornelia de Lange Syndrome. Services for CdLS-World users. CdLS is a rare, complex syndrome! What is it, how can it be diagnosed and what are the best ways to treat its many aspects? About the website contents. All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own ...
World of Cornelia de Lange Syndrome - CdLS World
http://www.cdlsworld.com/xwiki/bin/view/Main
The worldwide website about. Cornelia de Lange Syndrome. World of Cornelia de Lange Syndrome. 8-th CdLS World Conference. From 9-12 September the 8-th CdLS World conference showed very good presentations of world experts from many countries. We hope to see yo at the 9-th conference in 2017 in Brazil. The world of Cornelia de Lange Syndrome. CdLS is a rare, complex syndrome! What is it, how can it be diagnosed and what are the best ways to treat its many aspects? Hear our stories,. Globally, there are oth...
CdLS World; what do we do? - CdLS World
http://www.cdlsworld.com/xwiki/bin/view/CdLSAssociations/WhatWeDo
The worldwide website about. Cornelia de Lange Syndrome. CdLS World; what do we do? CdLS World; what do we do? From all over the world the Experts who know most about CdLS and a specific topic have formed a international Scientific Advise Committee (SAC). We make sure the SAC is informed about needs of the families and caretakers, so they can publish relevant news, present on conferences and answer questions in our Ask the Expert. Every two years;. About the website contents.
World Communities - CdLS World
http://www.cdlsworld.com/xwiki/bin/view/CdLSWorld/World+Communities
The worldwide website about. Cornelia de Lange Syndrome. CdlS World has been founded in 2001 in occasion of the first International CdLS Conference and counts many members (Argentina, Australia, Canada, Denmark, France, Germany, Italy, Japan, Netherlands, Poland, Portugal, Spain, UK, USA) and is maintaining contact with single families in more than 45 countries. We welcome groups that would like to join the federation. Find below the list of our supportgroup members. United States of America.
Ask our Experts - CdLS World
http://www.cdlsworld.com/xwiki/bin/view/cdlsServices/cdlsAsk
The worldwide website about. Cornelia de Lange Syndrome. World of Cornelia de Lange Syndrome. Services for CdLS-World users. We all have questions on the care and wellbeing of our loved ones with CdLS. Search what others have asked before. No question is too big or small to ask. We have collected all the questions asked before. We've grouped them by CdLS area (topic). We've indexed them so you can search and learn. Take what you've read to your local doctor, teacher or care-taker.
TOTAL PAGES IN THIS WEBSITE
13
Habbo.com Scam Alert | Our Adventures with Baylee...
https://cdls.wordpress.com/2010/08/27/habbo-com-scam-alert
Our Adventures with Baylee…. Note to self about Christmas next year. August 27, 2010 · 1:47 am. In any case, the only way I can stick it to Habbo is to make sure as many people know about this scam as possible, so I’m letting you know. If you have kids ask them if they are using Habbo, and if they are, ban them from it before you get a surprise in your cell phone bill. Filed under Everyday stuff. Note to self about Christmas next year. 4 responses to “. August 27, 2010 at 3:26 am. April 9, 2016 at 7:09 am.
Photos | Our Adventures with Baylee...
https://cdls.wordpress.com/photos
Our Adventures with Baylee…. One response to “. December 11, 2008 at 3:52 am. Baylee you are beautiful in every way. When I saw you in Chicago I could see how special you really are. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. Urlage &...
Our Adventures with Baylee... | Cornelia de Lange Syndrome and Debt Free Living | Page 2
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Our Adventures with Baylee…. Newer posts →. February 18, 2009 · 12:30 pm. 25 Random Things About My Child with CdLS. Stealing this idea from Facebook, the CdLS-KIDS Blog Challenge this week is to write 25 random things about our child with Cornelia de Lange Syndrome. 1 My child with CdLS is Baylee, and she is 12 years-old. 2 She was diagnosed within a few hours of her birth. 3 Baylee loves to eat…and eat….and eat. 4 She’s a skinny little thing. I don’t know where she packs it. 19 Baylee has climbed a six...
Merry Christmas! | Our Adventures with Baylee...
https://cdls.wordpress.com/2009/12/24/merry-christmas
Our Adventures with Baylee…. Note to self about Christmas next year →. December 24, 2009 · 11:44 pm. I have sadly neglected our blog for a very long time, but I assure you our adventures with Baylee have continued without interruption! Thank you to all who have sent snail mail Christmas cards, photos and newsletters! I cherish them all and love getting them in the mail. Unfortunately, time got away from me this year as it has in the past few years and my Christmas card will have to be this blog post.
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Untitled Document
Life with Jessica | Ramblings on raising a child with Cornelia de Lange Syndrome
Ramblings on raising a child with Cornelia de Lange Syndrome. A Bit About Jess. April 10, 2010. Change is the constant, the signal for rebirth, the egg of the phoenix”. Happy Saturday, happy Spring! Posted in SOOC Saturday. February 20, 2010. SOOC Saturday Hidden Worlds. 8220;To see a world in a grain of sand and heaven in a wild flower; hold infinity in the palm of your hand and eternity in an hour”. February 13, 2010. SOOC Saturday “X” Marks the Spot. PS – we are soooo tired of snow! October 8, 2009.
The Williams Family Blog
The Williams Family Blog. Friday, September 4, 2009. Thursday, March 19, 2009. Spencer turns 6 months old. Wednesday, January 14, 2009. Christmas 08 and early 09. Dawn, Charlie, Logann and Spencer. Monday, December 22, 2008. Sunday, December 7, 2008. This past month was busy and fun. We finally got our first snow on Thanksgiving night. As you can see from the photos, Logann. Is quite the snow bunny. She turned 3 on the 11 th. Spencer now smiles, coos, says ah-goo and tolerates his sister. Logann's. Went ...
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Cornelia de Lange Syndrome - CdLS World
The worldwide website about. Cornelia de Lange Syndrome. Cornelia de Lange Syndrome. Cornelia de Lange Syndrome. Last modified by Gerritjan Koekkoek. Select the pages to export:. World of the Cornelia de Lange syndrome. An International source of information about the rare genetic condition, Cornelia de Lange Syndrome (CdLS). Here you can find people who know about CdLS as well as answers to your questions about the condition. Here you can find hope. CdLS is a rare and complex syndrome! All of the inform...
Cornelia de Lange Syndrome - CdLS World
The worldwide website about. Cornelia de Lange Syndrome. Cornelia de Lange Syndrome. Cornelia de Lange Syndrome. Last modified by Gerritjan Koekkoek. Select the pages to export:. World of the Cornelia de Lange syndrome. An International source of information about the rare genetic condition, Cornelia de Lange Syndrome (CdLS). Here you can find people who know about CdLS as well as answers to your questions about the condition. Here you can find hope. CdLS is a rare and complex syndrome! All of the inform...
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