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Cornelia de Lange Syndrome - CdLS WorldCornelia de Lange Syndrome
http://www.cdlsworld.org/
Cornelia de Lange Syndrome
http://www.cdlsworld.org/
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CdLS world federation
Gerritjan Koekkoek
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gerritjan koekkoek consulting
Gerritjan Koekkoek
Burch●●●●●an 97
's-He●●●●●ogenbosch , noord brabant, 5235 GH
NL
View this contact
gerritjan koekkoek consulting
Gerritjan Koekkoek
Burch●●●●●an 97
's-He●●●●●ogenbosch , noord brabant, 5235 GH
NL
View this contact
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Cornelia de Lange Syndrome - CdLS World | cdlsworld.org Reviews
https://cdlsworld.org
Cornelia de Lange Syndrome
cdlsworld.org
Ask our Experts - CdLS World
http://www.cdlsworld.org/xwiki/bin/view/cdlsServices/cdlsAsk
The worldwide website about. Cornelia de Lange Syndrome. World of Cornelia de Lange Syndrome. Services for CdLS-World users. We all have questions on the care and wellbeing of our loved ones with CdLS. Search what others have asked before. No question is too big or small to ask. We have collected all the questions asked before. We've grouped them by CdLS area (topic). We've indexed them so you can search and learn. Take what you've read to your local doctor, teacher or care-taker.
CdLS World Federation - CdLS World
http://www.cdlsworld.org/xwiki/bin/view/CdLSAssociations/WhoAreWe
The worldwide website about. Cornelia de Lange Syndrome. World of Cornelia de Lange Syndrome. CdlS World has been founded in 2001 in occasion of the first International CdLS Conference and counts many members (Argentina, Australia, Brazil, Canada, Denmark, France, Germany, Italy, Netherlands, Poland, Portugal, Spain, UK, USA) and is maintaining contact with single families in more than 45 countries. We welcome groups that would like to join the federation. CdLS World; what do we do? Every two years;.
What is CdLS? - CdLS World
http://www.cdlsworld.org/xwiki/bin/view/CdLSWorld/WhatIsCdLS
The worldwide website about. Cornelia de Lange Syndrome. Cornelia de Lange Syndrome. Cornelia de Lange Syndrome (CdLS) is a genetic disorder present from birth, but not always diagnosed at birth. It causes a range of physical, cognitive and medical challenges and affects both genders equally. CdLS does not discriminate it’s seen in all races and ethnic backgrounds. The occurrence of CdLS is estimated to be 1 in 10,000 live births. Where should I go from here? About the website contents. All of the inform...
What we do... - CdLS World
http://www.cdlsworld.org/xwiki/bin/view/cdlsServices/serviceWhat
The worldwide website about. Cornelia de Lange Syndrome. World of Cornelia de Lange Syndrome. Services for CdLS-World users. During our journey with CdLS we all learn a lot. We want to share that with you! Maybe you also learned something that can be of value to others. Together, each two years, we organize a international conference on CdLS. Here experts on all the many area's (topic's) on this complex syndrome gather. We learn, gather en reach-out to all. About the website contents.
World of Cornelia de Lange Syndrome - CdLS World
http://www.cdlsworld.org/xwiki/bin/view/Main/WebHome??language=nl&cntryCode=nl/
The worldwide website about. Cornelia de Lange Syndrome. World of Cornelia de Lange Syndrome. 8-th CdLS World Conference. From 9-12 September the 8-th CdLS World conference showed very good presentations of world experts from many countries. We hope to see yo at the 9-th conference in 2017 in Brazil. The world of Cornelia de Lange Syndrome. CdLS is a rare, complex syndrome! What is it, how can it be diagnosed and what are the best ways to treat its many aspects? Hear our stories,. Globally, there are oth...
TOTAL PAGES IN THIS WEBSITE
14
CdLS Foundation Board of Directors | Cornelia de Lange Syndrome Foundation, Inc.
http://www.cdlsusa.org/about-cdls-foundation/cdls-board-of-directors.htm
Información en Español. Annual Report and Financials. Connect with a Family. Información en Español. CdLS Advocacy and Awareness. CdLS Centers for Excellence. Celebration and Memorial Gifts. Stocks, Trusts and Other Gifts. 21st Century Conference Fund. Connect with a Family. Dress Down for CdLS. Team CdLS 5k Club. Yard Sale Across America. Board of Directors ». Annual Report and Financials. Richard Haaland, Ph.D., Georgia. David Barnes, Esq., New Hampshire. Wendy Miller, Esq., California.
CdLS Foundation Staff Members | Cornelia de Lange Syndrome Foundation, Inc.
http://www.cdlsusa.org/about-cdls-foundation/cdls-staff.htm
Información en Español. Annual Report and Financials. Connect with a Family. Información en Español. CdLS Advocacy and Awareness. CdLS Centers for Excellence. Celebration and Memorial Gifts. Stocks, Trusts and Other Gifts. 21st Century Conference Fund. Connect with a Family. Dress Down for CdLS. Team CdLS 5k Club. Yard Sale Across America. Meet our Staff ». Annual Report and Financials. Antonie Kline, M.D. Deirdre Summa, L.M.S.W. . Lynn Audette, L.M.S.W. . Justyna Wawrzonek, L.M.S.W. . Justyna joined the...
CdLS Annual Report & 990 | Cornelia de Lange Syndrome Foundation, Inc.
http://www.cdlsusa.org/about-cdls-foundation/annual-report-990.htm
Información en Español. Annual Report and Financials. Connect with a Family. Información en Español. CdLS Advocacy and Awareness. CdLS Centers for Excellence. Celebration and Memorial Gifts. Stocks, Trusts and Other Gifts. 21st Century Conference Fund. Connect with a Family. Dress Down for CdLS. Team CdLS 5k Club. Yard Sale Across America. Annual Report and Financials ». In managing the resources our supporters entrust to us, the Foundation leadership holds itself accountable to strict standards.
CdLS Media Room | Cornelia de Lange Syndrome Foundation, Inc.
http://www.cdlsusa.org/events/media-room.htm
Información en Español. Annual Report and Financials. Connect with a Family. Información en Español. CdLS Advocacy and Awareness. CdLS Centers for Excellence. Celebration and Memorial Gifts. Stocks, Trusts and Other Gifts. 21st Century Conference Fund. Connect with a Family. Dress Down for CdLS. Team CdLS 5k Club. Yard Sale Across America. Media Room ». Logo Usage and Branding. CdLS in the News. Welcome to the CdLS Foundation’s Media Room your source for news and information about CdLS and the Foundation.
History of the CdLS Foundation | Cornelia de Lange Syndrome Foundation, Inc.
http://www.cdlsusa.org/about-cdls-foundation/our-history.htm
Información en Español. Annual Report and Financials. Connect with a Family. Información en Español. CdLS Advocacy and Awareness. CdLS Centers for Excellence. Celebration and Memorial Gifts. Stocks, Trusts and Other Gifts. 21st Century Conference Fund. Connect with a Family. Dress Down for CdLS. Team CdLS 5k Club. Yard Sale Across America. Our History ». Annual Report and Financials. History of the CdLS Foundation. Dr Cornelia de Lange, 1932. In the summer of 1977. They sent the publication to nine f...
What Is CdLS? | Cornelia de Lange Syndrome Foundation, Inc.
http://www.cdlsusa.org/what-is-cdls/index.htm
Información en Español. Annual Report and Financials. Connect with a Family. Información en Español. CdLS Advocacy and Awareness. CdLS Centers for Excellence. Celebration and Memorial Gifts. Stocks, Trusts and Other Gifts. 21st Century Conference Fund. Connect with a Family. Dress Down for CdLS. Team CdLS 5k Club. Yard Sale Across America. Información en Español. Where should I go from here? Contact the Foundation to request our free packet, Starting the Journey: Information and Support for New Parents&#...
TOTAL LINKS TO THIS WEBSITE
133
Life with Jessica | Ramblings on raising a child with Cornelia de Lange Syndrome
Ramblings on raising a child with Cornelia de Lange Syndrome. A Bit About Jess. April 10, 2010. Change is the constant, the signal for rebirth, the egg of the phoenix”. Happy Saturday, happy Spring! Posted in SOOC Saturday. February 20, 2010. SOOC Saturday Hidden Worlds. 8220;To see a world in a grain of sand and heaven in a wild flower; hold infinity in the palm of your hand and eternity in an hour”. February 13, 2010. SOOC Saturday “X” Marks the Spot. PS – we are soooo tired of snow! October 8, 2009.
The Williams Family Blog
The Williams Family Blog. Friday, September 4, 2009. Thursday, March 19, 2009. Spencer turns 6 months old. Wednesday, January 14, 2009. Christmas 08 and early 09. Dawn, Charlie, Logann and Spencer. Monday, December 22, 2008. Sunday, December 7, 2008. This past month was busy and fun. We finally got our first snow on Thanksgiving night. As you can see from the photos, Logann. Is quite the snow bunny. She turned 3 on the 11 th. Spencer now smiles, coos, says ah-goo and tolerates his sister. Logann's. Went ...
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Cornelia de Lange Syndrome - CdLS World
The worldwide website about. Cornelia de Lange Syndrome. Cornelia de Lange Syndrome. Cornelia de Lange Syndrome. Last modified by Gerritjan Koekkoek. Select the pages to export:. World of the Cornelia de Lange syndrome. An International source of information about the rare genetic condition, Cornelia de Lange Syndrome (CdLS). Here you can find people who know about CdLS as well as answers to your questions about the condition. Here you can find hope. CdLS is a rare and complex syndrome! All of the inform...
Cornelia de Lange Syndrome - CdLS World
The worldwide website about. Cornelia de Lange Syndrome. Cornelia de Lange Syndrome. Cornelia de Lange Syndrome. Last modified by Gerritjan Koekkoek. Select the pages to export:. World of the Cornelia de Lange syndrome. An International source of information about the rare genetic condition, Cornelia de Lange Syndrome (CdLS). Here you can find people who know about CdLS as well as answers to your questions about the condition. Here you can find hope. CdLS is a rare and complex syndrome! All of the inform...
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