daylensdream.blogspot.com

A Heart of Hopes and Dreams

A Heart of Hopes and Dreams. Monday, November 13, 2017. We have been so busy we have failed to keep up with our blog so we apologize for that. In the last few years we have had no new complications from Daylens last surgery. He graduated from kindergarten and is now a big first grader! We celebrated his 7th birthday this past weekend and cannot begin to thank everyone for their support and keeping up with his story! Tuesday, September 15, 2015. We have an echo scheduled for the 21st so hopefully that wil...

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A Heart of Hopes and Dreams | daylensdream.blogspot.com Reviews

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A Heart of Hopes and Dreams. Monday, November 13, 2017. We have been so busy we have failed to keep up with our blog so we apologize for that. In the last few years we have had no new complications from Daylens last surgery. He graduated from kindergarten and is now a big first grader! We celebrated his 7th birthday this past weekend and cannot begin to thank everyone for their support and keeping up with his story! Tuesday, September 15, 2015. We have an echo scheduled for the 21st so hopefully that wil...

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1 pages

2 daylen's story

3 diagnosis

4 ctrl shunt

5 hemi fontan

6 chd awareness

7 team daylen

8 the red cap

9 long overdue update

10 much love

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pages,daylen's story,diagnosis,ctrl shunt,hemi fontan,chd awareness,team daylen,the red cap,long overdue update,much love,no comments,sats are lowering,1 comment,tball for daylen,yearly check up,eczema update,first practice,big milestone,eczema nightmare

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A Heart of Hopes and Dreams | daylensdream.blogspot.com Reviews

https://daylensdream.blogspot.com

A Heart of Hopes and Dreams. Monday, November 13, 2017. We have been so busy we have failed to keep up with our blog so we apologize for that. In the last few years we have had no new complications from Daylens last surgery. He graduated from kindergarten and is now a big first grader! We celebrated his 7th birthday this past weekend and cannot begin to thank everyone for their support and keeping up with his story! Tuesday, September 15, 2015. We have an echo scheduled for the 21st so hopefully that wil...

INTERNAL PAGES

daylensdream.blogspot.com

1

A Heart of Hopes and Dreams: BIG milestone!

http://daylensdream.blogspot.com/2014/03/big-milestone.html

A Heart of Hopes and Dreams. Monday, March 10, 2014. I know he's just three and all they do is run around and enjoy kicking the ball but this is a BIG deal for us because this marks the beginning of his athletic capabilities and takes his HLHS journey to a whole new level! My heart is bursting with joy! Subscribe to: Post Comments (Atom). Helpful Links about HLHS. Understanding HLHS for parents! Learn About CHD - blog. I Closely Follow These Wonderful Ppl. My Little Heart Warrior. Real Life Of A Red Head.

2

A Heart of Hopes and Dreams: Team Daylen

http://daylensdream.blogspot.com/p/march-of-dimes-may-2012-we-had-such.html

A Heart of Hopes and Dreams. We had such an awesome fundraising year for 2012! I want to exceed the amount we raised and go above and beyond for 2013! I set a goal for $500 so lets try for $750! I was BLOWN away by the support friends and family have shown last year, so i'm hoping to get blown away again! Also, to show support for Daylen, I designed a Team Daylen t-shirt last year and not many people walked with us, I had 51 shirt orders and would love to see all 51 shirts there! Http:/ www.marchforb...

3

A Heart of Hopes and Dreams: CHD Awareness

http://daylensdream.blogspot.com/p/chd-awareness.html

A Heart of Hopes and Dreams. Daylen has such a huge support group! Family, friends, and even strangers have all been effected by this little man and his heart. He's tiny with a soft voice, but he makes a HUGE difference that doesn't go unnoticed in this world. 3. Little miss Raygen showing her support! Long time friend Angi showing her red! Tiarra Yvonne supporting CHD awareness by wearing red! Jonathen, Kaden, and Talen. Gavin wearing his red sweater! JJ, Reagen, and Jacklynn! Becky and Stephane :).

4

A Heart of Hopes and Dreams: Eczema nightmare

http://daylensdream.blogspot.com/2014/02/eczema-nightmare.html

A Heart of Hopes and Dreams. Tuesday, February 25, 2014. I will post as soon as I hear what the verdict is. Subscribe to: Post Comments (Atom). Helpful Links about HLHS. Understanding HLHS for parents! Learn About CHD - blog. I Closely Follow These Wonderful Ppl. My Little Heart Warrior. Ally Jean's Special Heart. Real Life Of A Red Head. Travel template. Powered by Blogger.

5

A Heart of Hopes and Dreams: Tball for Daylen

http://daylensdream.blogspot.com/2015/04/tball-for-daylen.html

A Heart of Hopes and Dreams. Saturday, April 11, 2015. Last year we tried out soccer and Daylen did great with keeping up but he didn't seem interested in chasing the ball during both seasons he played so this year we are doing baseball! He's playing for the school that mommy and daddy both graduated from so that's really exciting! My big 4 year old heart baby is doing big things these days! Oh and here is Daylen's little brother Greyson. Had to post an updated picture of him as well!

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myheartwarrior.blogspot.com

My little Heart Warrior: Gastro Update

http://myheartwarrior.blogspot.com/2012/05/gastro-update.html

Tuesday, May 22, 2012. Instead of doing a separate Mothers Day post, I will just post a few pictures here. Last Mothers day, Dylan was still in the NICU hooked up to PGE waiting for his Norwood. THIS mothers day, we were out of the hospital, wire and monitor free! Me and my Momma 3. Subscribe to: Post Comments (Atom). My name is Krystal. This blog is about my feelings and my journey of being a Heart Mom. My son Dylan, was diagnosed with Hypoplastic Left Heart Syndrome. HLHS) at 24 weeks gestation.

myheartwarrior.blogspot.com

My little Heart Warrior: March 2011

http://myheartwarrior.blogspot.com/2011_03_01_archive.html

Tuesday, March 22, 2011. Dylan James Perry 3-11-11. So I knew keeping up with my blog might be a little hard after having Dylan, but I guess it's proved to be harder than I thought. Right now, that is where we are at. The plan for the next 4-6 weeks is just to give Dylan time to grow and get stronger before his Norwood. So we plan to be in the hospital with him for at least 3 months :(. Subscribe to: Posts (Atom). HLHS) at 24 weeks gestation. Donate to baby Dylan's Fund. Find me on Facebook. It's all Abo...

myheartwarrior.blogspot.com

My little Heart Warrior: May 2011

http://myheartwarrior.blogspot.com/2011_05_01_archive.html

Saturday, May 28, 2011. I can't believe that day is finally here! Well kinda. tomorrow is close enough! They started preparing us for discharge about a week ago. Dylan went in for his G-Tube surgery last Friday, and they told us that he should be good to go 5-7 days after surgery. Wow! We're good to go? Only 2.5 weeks Post - Norwood, and we're good to go? Dylan is such a strong little boy! All we need now is Dylan! Tomorrow is the day! Dylan's ready to come home! Thursday, May 19, 2011. Heart Hugs to all!

myheartwarrior.blogspot.com

My little Heart Warrior: July 2011

http://myheartwarrior.blogspot.com/2011_07_01_archive.html

Sunday, July 24, 2011. Dylan in his hospital gown before his Cath 3. These are the two Collateral's that needed to be coiled off. It's not a great picture, but this shows his Pulmonary Arteries narrowing. Last Wednesday we finally got our appointment with the Gastro docs ( Thanks to Dr. El Said). They didn't really do much for him, except for prescribe him another medicine (ugh! Because he's so long! Wednesday, July 13, 2011. Tummy Time and a bunch more. Luckily we caught it before it started closing thi...

myheartwarrior.blogspot.com

My little Heart Warrior: August 2011

http://myheartwarrior.blogspot.com/2011_08_01_archive.html

Wednesday, August 31, 2011. Feelings. Updates. and Pictures. Who cares what I say? Why do I feel the need to write it down? It doesn't change anything. And sometimes I feel that no matter what I write or how much I try to explain myself and my emotions. I'll still never really be able to express EXACTLY how I'm feeling . Because I don't really even know how I'm feeling sometimes. I can't count how many times I've gotten asked " How are you doing? Those are our only options? I don't like any of them!

myheartwarrior.blogspot.com

My little Heart Warrior: December 2011

http://myheartwarrior.blogspot.com/2011_12_01_archive.html

Saturday, December 17, 2011. So yes, I do realize that it's been almost FOUR months since I've written in Dylan's blog. WoW! I Suck. And I do apologize that my last post was a post the day before Dylan's last Heart surgery and then nothing after that. I guess that I don't always remember that there are a FEW people who follow this blog that I don't have on my facebook friends list. I'm a PRO at updating everybody about Dylan on my FB, but here? Dylan made it through his Glenn like a champ! I will leave y...

myheartwarrior.blogspot.com

My little Heart Warrior: Taking things into my own hands.

http://myheartwarrior.blogspot.com/2012/05/taking-things-into-my-own-hands.html

Friday, May 11, 2012. Taking things into my own hands. WOW First off, I want to apologize for neglecting this blog! His cath that I spoke of in my last post went well. They were able to balloon open what they needed to, and he has pretty much been good Heartwise since then. It's his Gastrointestinal issues that we have been having problems with. He is a very happy little boy. Hes crawling now, and taking steps on his own, he will be up and running in no time! I can only get Dylan to drink 2-3 ounces in a...

myheartwarrior.blogspot.com

My little Heart Warrior: Happy New Year??

http://myheartwarrior.blogspot.com/2012/01/happy-new-year.html

Monday, January 2, 2012. And since he had a tube in place keeping the stoma open, they didn't seem to concerned. We waited there for over an hour before I got fed up and demanded that they take us to a different waiting room in the back away from all the sickies! Um, I think so " . Wait, what? What kind of answer is that? It either is, or it isn't! Dylan waiting in the ER, trying to take his ID off his leg. So that is where we are at. So far, this new year SUCKS! January 2, 2012 at 10:38 PM. It's all Abo...

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A Heart of Hopes and Dreams

A Heart of Hopes and Dreams. Monday, November 13, 2017. We have been so busy we have failed to keep up with our blog so we apologize for that. In the last few years we have had no new complications from Daylens last surgery. He graduated from kindergarten and is now a big first grader! We celebrated his 7th birthday this past weekend and cannot begin to thank everyone for their support and keeping up with his story! Tuesday, September 15, 2015. We have an echo scheduled for the 21st so hopefully that wil...

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