myheartwarrior.blogspot.com

My little Heart Warrior

Tuesday, May 22, 2012. Instead of doing a separate Mothers Day post, I will just post a few pictures here. Last Mothers day, Dylan was still in the NICU hooked up to PGE waiting for his Norwood. THIS mothers day, we were out of the hospital, wire and monitor free! Me and my Momma 3. Friday, May 11, 2012. Taking things into my own hands. WOW First off, I want to apologize for neglecting this blog! That being said. It's been a very rough week of doctors appointments and testing and findings. so I g...I'll ...

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My little Heart Warrior | myheartwarrior.blogspot.com Reviews

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Tuesday, May 22, 2012. Instead of doing a separate Mothers Day post, I will just post a few pictures here. Last Mothers day, Dylan was still in the NICU hooked up to PGE waiting for his Norwood. THIS mothers day, we were out of the hospital, wire and monitor free! Me and my Momma 3. Friday, May 11, 2012. Taking things into my own hands. WOW First off, I want to apologize for neglecting this blog! That being said. It's been a very rough week of doctors appointments and testing and findings. so I g...I'll ...

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1 gastro update

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My little Heart Warrior | myheartwarrior.blogspot.com Reviews

https://myheartwarrior.blogspot.com

Tuesday, May 22, 2012. Instead of doing a separate Mothers Day post, I will just post a few pictures here. Last Mothers day, Dylan was still in the NICU hooked up to PGE waiting for his Norwood. THIS mothers day, we were out of the hospital, wire and monitor free! Me and my Momma 3. Friday, May 11, 2012. Taking things into my own hands. WOW First off, I want to apologize for neglecting this blog! That being said. It's been a very rough week of doctors appointments and testing and findings. so I g...I'll ...

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myheartwarrior.blogspot.com

1

My little Heart Warrior: March 2011

http://www.myheartwarrior.blogspot.com/2011_03_01_archive.html

Tuesday, March 22, 2011. Dylan James Perry 3-11-11. So I knew keeping up with my blog might be a little hard after having Dylan, but I guess it's proved to be harder than I thought. Right now, that is where we are at. The plan for the next 4-6 weeks is just to give Dylan time to grow and get stronger before his Norwood. So we plan to be in the hospital with him for at least 3 months :(. Subscribe to: Posts (Atom). HLHS) at 24 weeks gestation. Donate to baby Dylan's Fund. Find me on Facebook. It's all Abo...

2

My little Heart Warrior: February 2011

http://www.myheartwarrior.blogspot.com/2011_02_01_archive.html

Monday, February 28, 2011. I want you to CHILL for the next month. STRICT bed rest and doing nothing but chilling.". Those were Dr. Daneshmand's orders from our appointment on Friday. Chill? Dr D obviously doesn't know me very well. How does one chill? I don't think I am even capable of chilling. I just don't know how. These might be NON stress tests for Dylan. but they sure are stressful to me! Ps Dr D took me off of the Nifedipine! Friday, February 18, 2011. A Letter from Dylan's Surgeon. She has been ...

3

My little Heart Warrior: May 2012

http://www.myheartwarrior.blogspot.com/2012_05_01_archive.html

Tuesday, May 22, 2012. Instead of doing a separate Mothers Day post, I will just post a few pictures here. Last Mothers day, Dylan was still in the NICU hooked up to PGE waiting for his Norwood. THIS mothers day, we were out of the hospital, wire and monitor free! Me and my Momma 3. Friday, May 11, 2012. Taking things into my own hands. WOW First off, I want to apologize for neglecting this blog! That being said. It's been a very rough week of doctors appointments and testing and findings. so I g...I'll ...

4

My little Heart Warrior: July 2011

http://www.myheartwarrior.blogspot.com/2011_07_01_archive.html

Sunday, July 24, 2011. Dylan in his hospital gown before his Cath 3. These are the two Collateral's that needed to be coiled off. It's not a great picture, but this shows his Pulmonary Arteries narrowing. Last Wednesday we finally got our appointment with the Gastro docs ( Thanks to Dr. El Said). They didn't really do much for him, except for prescribe him another medicine (ugh! Because he's so long! Wednesday, July 13, 2011. Tummy Time and a bunch more. Luckily we caught it before it started closing thi...

5

My little Heart Warrior: Gastro Update

http://www.myheartwarrior.blogspot.com/2012/05/gastro-update.html

Tuesday, May 22, 2012. Instead of doing a separate Mothers Day post, I will just post a few pictures here. Last Mothers day, Dylan was still in the NICU hooked up to PGE waiting for his Norwood. THIS mothers day, we were out of the hospital, wire and monitor free! Me and my Momma 3. Subscribe to: Post Comments (Atom). My name is Krystal. This blog is about my feelings and my journey of being a Heart Mom. My son Dylan, was diagnosed with Hypoplastic Left Heart Syndrome. HLHS) at 24 weeks gestation.

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daylensdream.blogspot.com

A Heart of Hopes and Dreams: Diagnosis

http://daylensdream.blogspot.com/p/hlhsdorv.html

A Heart of Hopes and Dreams. SOME OF DAYLEN'S HEART ANATOMY. HYPOPLASTIC LEFT HEART SYNDROM. HLHS = left ventricle is severely underdeveloped so the heart only works with the right side. In most cases of HLHS, most of the structures on the left side are small. Daylen's left ventricle, along with the pulmonary artery are very small. DOUBLE OUTLET RIGHT VENTRICLE - MODIFIED. Subscribe to: Posts (Atom). Helpful Links about HLHS. Understanding HLHS for parents! Learn About CHD - blog. My Little Heart Warrior.

daylensdream.blogspot.com

A Heart of Hopes and Dreams: BIG milestone!

http://daylensdream.blogspot.com/2014/03/big-milestone.html

A Heart of Hopes and Dreams. Monday, March 10, 2014. I know he's just three and all they do is run around and enjoy kicking the ball but this is a BIG deal for us because this marks the beginning of his athletic capabilities and takes his HLHS journey to a whole new level! My heart is bursting with joy! Subscribe to: Post Comments (Atom). Helpful Links about HLHS. Understanding HLHS for parents! Learn About CHD - blog. I Closely Follow These Wonderful Ppl. My Little Heart Warrior. Real Life Of A Red Head.

daylensdream.blogspot.com

A Heart of Hopes and Dreams: Tball for Daylen

http://daylensdream.blogspot.com/2015/04/tball-for-daylen.html

A Heart of Hopes and Dreams. Saturday, April 11, 2015. Last year we tried out soccer and Daylen did great with keeping up but he didn't seem interested in chasing the ball during both seasons he played so this year we are doing baseball! He's playing for the school that mommy and daddy both graduated from so that's really exciting! My big 4 year old heart baby is doing big things these days! Oh and here is Daylen's little brother Greyson. Had to post an updated picture of him as well!

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Just Another Day...: House Timeline

http://www.mom2lo.com/p/house-timeline.html

The Story of Chase's Special Heart. HLHS Journey A Dad's Perspective. Saturday, October 3rd, 2011:. We went to check out a Ryan floor plan in a community we thought we'd be interested in. Turns out the home was waaaay too small and the community was not what we had hoped. Friday, October 7th:. We stopped into another Ryan community we thought we'd be interested and checked out the model home. I Fell. In. Love. with the Rome. Floor plan and we decided to pursue the idea of moving. Saturday, October 8th:.

daylensdream.blogspot.com

A Heart of Hopes and Dreams: Eczema nightmare

http://daylensdream.blogspot.com/2014/02/eczema-nightmare.html

A Heart of Hopes and Dreams. Tuesday, February 25, 2014. I will post as soon as I hear what the verdict is. Subscribe to: Post Comments (Atom). Helpful Links about HLHS. Understanding HLHS for parents! Learn About CHD - blog. I Closely Follow These Wonderful Ppl. My Little Heart Warrior. Ally Jean's Special Heart. Real Life Of A Red Head. Travel template. Powered by Blogger.

daylensdream.blogspot.com

A Heart of Hopes and Dreams: Team Daylen

http://daylensdream.blogspot.com/p/march-of-dimes-may-2012-we-had-such.html

A Heart of Hopes and Dreams. We had such an awesome fundraising year for 2012! I want to exceed the amount we raised and go above and beyond for 2013! I set a goal for $500 so lets try for $750! I was BLOWN away by the support friends and family have shown last year, so i'm hoping to get blown away again! Also, to show support for Daylen, I designed a Team Daylen t-shirt last year and not many people walked with us, I had 51 shirt orders and would love to see all 51 shirts there! Http:/ www.marchforb...

daylensdream.blogspot.com

A Heart of Hopes and Dreams: CHD Awareness

http://daylensdream.blogspot.com/p/chd-awareness.html

A Heart of Hopes and Dreams. Daylen has such a huge support group! Family, friends, and even strangers have all been effected by this little man and his heart. He's tiny with a soft voice, but he makes a HUGE difference that doesn't go unnoticed in this world. 3. Little miss Raygen showing her support! Long time friend Angi showing her red! Tiarra Yvonne supporting CHD awareness by wearing red! Jonathen, Kaden, and Talen. Gavin wearing his red sweater! JJ, Reagen, and Jacklynn! Becky and Stephane :).

daylensdream.blogspot.com

A Heart of Hopes and Dreams: Ctrl Shunt

http://daylensdream.blogspot.com/p/1st-surgery.html

A Heart of Hopes and Dreams. November 18, 2010. Daylen had his first surgery where they placed a central shunt in his heart from the pulmonary artery to the aortic valve to help increase oxygen to his lungs. The procedure took place at 1:25 pm and ended at 2:28 pm Daylen did not have to be on the heart-lung machine, which was a good thing or surgery would have lasted longer! November 19, 2010. Recovery is looking great! His sat levels are flying high in the 90's which also makes us happy! He looks great ...

daylensdream.blogspot.com

A Heart of Hopes and Dreams: Day 12

http://daylensdream.blogspot.com/2013/09/day-12.html

A Heart of Hopes and Dreams. Sunday, September 1, 2013. We are currently off of oxygen as of 3pm and even with fluid build up, Daylen has maintained good SAT levels so far unless he gets angry. Fluid drainage today was 107 ml which means we will not be going home tomorrow for labor day. Daylen did get to meet thr other 2 boys here with hlhs that also had their fontans. Their names are Hunter and Carter and both are adorably cute and 2 years old! Subscribe to: Post Comments (Atom). Helpful Links about HLHS.

daylensdream.blogspot.com

A Heart of Hopes and Dreams: Daylen's story

http://daylensdream.blogspot.com/p/daylens-story.html

A Heart of Hopes and Dreams. Daylen Lee . Picture courtesy of Charley Green, Project Acceptance Founder and photographer). 65279;Picture courtesy of Amber Woods, daughter also has HLHS). Daylen recieved an echo at a few days old and doctor's discovered he had an extra artery that was supplying him with more oxygen, they also discovered later that Daylen's PDA was not closing and instead was acting like an artery so that was an advantage for his heart function. Daylen is one of the sweetest and flirtacio...

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My little Heart Warrior

Tuesday, May 22, 2012. Instead of doing a separate Mothers Day post, I will just post a few pictures here. Last Mothers day, Dylan was still in the NICU hooked up to PGE waiting for his Norwood. THIS mothers day, we were out of the hospital, wire and monitor free! Me and my Momma 3. Friday, May 11, 2012. Taking things into my own hands. WOW First off, I want to apologize for neglecting this blog! That being said. It's been a very rough week of doctors appointments and testing and findings. so I g...I'll ...

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