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DMRF Insights by Janet

DMRF Insights by Janet. Friday, April 11, 2014. Making a Difference: Dystonia Advocacy Day. Kimberly Kuman, Executive Director of the NSDA, Diane Zaia, Stephanie Zaia, and Janet Hieshetter with Senator Durbin in his office in the Capitol. DMRF volunteers joined with the Dystonia Advocacy Network. Friday, January 17, 2014. Celebrating a Success for Research. The appropriations bill passed by Congress this week included dystonia on the list of eligible conditions for the DOD Peer Review Medical Research Pr...

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DMRF Insights by Janet | dmrfinsights.blogspot.com Reviews

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DMRF Insights by Janet. Friday, April 11, 2014. Making a Difference: Dystonia Advocacy Day. Kimberly Kuman, Executive Director of the NSDA, Diane Zaia, Stephanie Zaia, and Janet Hieshetter with Senator Durbin in his office in the Capitol. DMRF volunteers joined with the Dystonia Advocacy Network. Friday, January 17, 2014. Celebrating a Success for Research. The appropriations bill passed by Congress this week included dystonia on the list of eligible conditions for the DOD Peer Review Medical Research Pr...

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DMRF Insights by Janet | dmrfinsights.blogspot.com Reviews

https://dmrfinsights.blogspot.com

DMRF Insights by Janet. Friday, April 11, 2014. Making a Difference: Dystonia Advocacy Day. Kimberly Kuman, Executive Director of the NSDA, Diane Zaia, Stephanie Zaia, and Janet Hieshetter with Senator Durbin in his office in the Capitol. DMRF volunteers joined with the Dystonia Advocacy Network. Friday, January 17, 2014. Celebrating a Success for Research. The appropriations bill passed by Congress this week included dystonia on the list of eligible conditions for the DOD Peer Review Medical Research Pr...

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dmrfinsights.blogspot.com

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DMRF Insights by Janet: November 2013

http://dmrfinsights.blogspot.com/2013_11_01_archive.html

DMRF Insights by Janet. Thursday, November 7, 2013. Running for Those Who Can't. On the West coast: Carrie Siu Butt ran because she finally can run. Carrie has dystonia and she has been running and challenging her body in many ways since her deep brain stimulation (DBS). This was her last half marathon and she made it look easy- but we know it wasn’t. She continues to inspire us and we are so happy for her and so proud of her accomplishment. Subscribe to: Posts (Atom). Find us on the web.

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DMRF Insights by Janet: October 2013

http://dmrfinsights.blogspot.com/2013_10_01_archive.html

DMRF Insights by Janet. Thursday, October 24, 2013. Dystonia Community Loses Good Friend. Labels: bill young; department of defense; dystonia; research. Subscribe to: Posts (Atom). Find us on the web. Want to be notified by text message when this blog is updated? View my complete profile. Come tweet with us! Dystonia Community Loses Good Friend.

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DMRF Insights by Janet: Dystonia Community Loses Good Friend

http://dmrfinsights.blogspot.com/2013/10/dystonia-community-loses-good-friend.html

DMRF Insights by Janet. Thursday, October 24, 2013. Dystonia Community Loses Good Friend. Labels: bill young; department of defense; dystonia; research. Subscribe to: Post Comments (Atom). Find us on the web. Want to be notified by text message when this blog is updated? View my complete profile. Come tweet with us! Dystonia Community Loses Good Friend.

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DMRF Insights by Janet: June 2013

http://dmrfinsights.blogspot.com/2013_06_01_archive.html

DMRF Insights by Janet. Monday, June 24, 2013. Last week the National Institute of Neurological Disorders and Stroke held a workshop that brought together investigators, study coordinators, patient advocacy groups, clinicians, NIH representatives and others to discuss how we can enhance recruitment to and retention in neurological clinical studies. I was proud to be invited to participate in the patient-centered research in neurology workgroup. The workshop, INSPIRE ( I. Ubject (and Provider) P. While at...

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DMRF Insights by Janet: December 2012

http://dmrfinsights.blogspot.com/2012_12_01_archive.html

DMRF Insights by Janet. Wednesday, December 19, 2012. DMRF-funded Researchers Discover Latest Dystonia Gene. Congratulations to the team of researchers led by Laurie Ozelius, PhD at Mount Sinai School of Medicine for discovering the latest gene associated with dystonia. The GNAL gene is now the fourth associated with primary torsion dystonia, the symptoms of which may vary from focal to generalized, adult-onset or childhood-onset. Newsletter and other media. Many thanks to the researchers who contributed...

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Swimming And dystonia – The Quintessential Paradox Of Dichotomies | Battery Powered Person

https://patbrogan13.wordpress.com/2013/05/30/swimming-and-dystonia-the-quintessential-paradox-of-dichotomies

Basketball Coach/Athlete Living with dystonia and brain pacemakers raising awareness to help find a cure 4 dystonia. Swimming And dystonia – The Quintessential Paradox Of Dichotomies. May 30, 2013. For anyone who has dystonia, chronic pain and/or any condition that forces your body to do things it doesn’t want to do, you will appreciate this. So, why swim? This entry was posted in athlete. Dystonia Medical Research Foundation. Dystonia Medical Research Foundation. The water blogged triathlete. My daughte...

dystoniacanada.org

Dystonia On Line Support | Dystonia Medical Research Foundation Canada

http://www.dystoniacanada.org/resources/-line-support

Skip to main content. Neurological and Metabolic Diseases. DNA, Genes, Proteins. Related and Differential Disorders. Toronto - Support Group Meeting August 2016. August 26, 2016. Dystonia Fundraiser - Vaughan, ON August 2016. August 27, 2016. Greater Vancouver - August Support Group. August 27, 2016. Mississauga - Support Group Meeting September 2016. September 10, 2016. Ottawa - Support Group Meeting September 2016. September 13, 2016. Edmonton - Support Group Meeting September 2016. September 14, 2016.

detsv.org

Dystonia Links | Dystonia & Essential Tremor Support Group

http://detsv.org/links/dystonia-links

Group Rules and Info. Dystonia and Essential Tremor Support Group. The Dystonia Medical Research Foundation. Http:/ www.spasmodictorticollis.org. Http:/ www.care4dystonia.org. Http:/ www.globaldystoniaregistry.org. DMRF’S ONLINE SUPPORT See below for the variety of ways that you can connect with others through bulletin boards, Facebook forums and social media:. Online Dystonia Bulletin Board. Http:/ www.dystonia-bb.org/forums/asd/. DMRF’s YouTube Channel. Http:/ www.youtube.com/facesofdystonia. Http:/ he...

tonyandrebecca.blogspot.com

Tony, Rebecca, Chip, and Stephens: August 2014

http://tonyandrebecca.blogspot.com/2014_08_01_archive.html

Tony, Rebecca, Chip, and Stephens. The Sharp family. experiencing the Lord on this side of heaven. Journey with us! Saturday, August 16, 2014. Having two is not for the faint of heart. He already now weighs 9 lbs 13 oz and is the apple of his big brother's eye! Chip just adores being a big brother and loves nothing more than to kiss all over him all the time! We are trying to find ourselves in a routine and to establish a new normal and that is proving to be more difficult than we could have imagined!

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Tony, Rebecca, Chip, and Stephens: September 2014

http://tonyandrebecca.blogspot.com/2014_09_01_archive.html

Tony, Rebecca, Chip, and Stephens. The Sharp family. experiencing the Lord on this side of heaven. Journey with us! Wednesday, September 10, 2014. So I'm trying to back off from the posts on Facebook, however, I find myself using Facebook as a means of journaling and keeping a record of life for my kids. Somewhat like a digital scrapbook, etc. So I am going to force myself to blog more, i guess! Also, with Stephens we have gotten his skin and rash under control! Subscribe to: Posts (Atom).

tonyandrebecca.blogspot.com

Tony, Rebecca, Chip, and Stephens: keeping all my plates in the air

http://tonyandrebecca.blogspot.com/2015/08/keeping-all-my-plates-in-air.html

Tony, Rebecca, Chip, and Stephens. The Sharp family. experiencing the Lord on this side of heaven. Journey with us! Thursday, August 13, 2015. Keeping all my plates in the air. Sheesh at how difficult I find it to keep all my plates spinning at the same time. I find myself blogging for the DMRF and falling behind here. I find myself doing tons of design work and falling behind on my school prep. Isn't that just like life, though? Subscribe to: Post Comments (Atom). Keeping all my plates in the air. Makin...

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DMRF eNews

This is the monthly enewsletter blog for the Dystonia Medical Research Foundation. Thursday, September 1, 2011. DMRF eNews - August 2011. To ensure delivery, please add [1]enewsletter@dystonia-foundation.org to your. Investigators Close In on Function of TorsinA. A significant piece of the dystonia puzzle has been identified helping us to. Understand why a mutation in the DYT1 gene might lead to dystonia. This. Research study conducted by DMRF grant recipient Flavia Nery, PhD, and longtime. Of dystonia r...

dmrfinancial.ca

Dale Rafuse of DMR Financial Services Inc., Mahone Bay, Nova Scotia - Financial Planning

DMR Financial Services Inc. is a dynamic company with a talented and knowledgeable team of professionals. Individuals, Groups, and Corporate clients can benefit from DMR's commitment to unparalleled customer service. Do or Do Not, there is no try! Information on this site is intended for residents of Nova Scotia only. Tel: 902.624.1555 Fax: 902.531.3034 Email DMR Financial. 237 Edgewater Street, PO Box 539, Mahone Bay, Nova Scotia, B0J 2E0.

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D.M.R. Fine Foods

Food Travel. Culture. Lifestyle. Inspiration. The Good Life. Pop Up Cooking School. Wednesday, March 14, 2018. Life has been on the busier side lately, so I've been away longer than usual here on the blog. And if I had to be away, I'm glad to share that it's been a "good" busy spell. Some exciting (but admittedly time-infringing) work to produce a second-to-none International Women's Day. Along with ministry and plain 'ole adulting! Was ready to be consumed. I normally make a tried and true pastry dough,...

dmrfinsights.blogspot.com

DMRF Insights by Janet

DMRF Insights by Janet. Friday, April 11, 2014. Making a Difference: Dystonia Advocacy Day. Kimberly Kuman, Executive Director of the NSDA, Diane Zaia, Stephanie Zaia, and Janet Hieshetter with Senator Durbin in his office in the Capitol. DMRF volunteers joined with the Dystonia Advocacy Network. Friday, January 17, 2014. Celebrating a Success for Research. The appropriations bill passed by Congress this week included dystonia on the list of eligible conditions for the DOD Peer Review Medical Research Pr...

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The DMR Foundation | Bridging the gap between dreams and reality.

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