treatingnf.blogspot.com
Treating NF: August 2014
http://treatingnf.blogspot.com/2014_08_01_archive.html
Wednesday, August 20, 2014. For more information and click "Join Team" to join us or scroll down and select your favorite Team Logan member to support (I know who my favorite team member is! End of the summer catch-up. I've been a little behind on updating you all as I have been pretty busy. The last month has been filled with some extra appointments and some fun vacation. I will try my best to remember and fill you in on it all. Fishing with Uncle Bobby. Subscribe to: Posts (Atom). A Child's View into NF.
treatingnf.blogspot.com
Treating NF: April 2014
http://treatingnf.blogspot.com/2014_04_01_archive.html
Friday, April 25, 2014. A long 2 weeks. The last two weeks had some ups and downs (more downs than ups.). Up- I had a week off work. (I work in schools so I get "built-in" vacation when the schools have breaks.). Down- I spent most of that week cleaning up vomit and tending to a sick Logan and our original plans to spend that week visiting family for Easter had to be abandoned. Up- We had a great time spending Easter with great friends. Smiling through the nausea. Thursday, April 10, 2014. This week has ...
treatingnf.blogspot.com
Treating NF: The end??
http://treatingnf.blogspot.com/2014/09/the-end.html
Sunday, September 21, 2014. This week was a very big week at chemo. This may have been his LAST chemo session! In 2 weeks, Logan will go for an MRI and if it is stable and there are no other concerns, we will be done with chemo! I wish I could have made a bigger deal about it and told Logan that it would be the last time, but I wouldn't be able to handle it if it that were not true. We'll have to wait for his MRI to hopefully celebrate the good news. It is not too late to contribute to the NF Walk for th...
nfnetwork.org
NF Network Scientific Papers
http://www.nfnetwork.org/understanding-nf/papers
What is NF 1? What is NF 2? NF Clinical Care Options. NF1 Clinical Care Options. The Network Edge Science Column. What is the NF Network Advocacy Program. How is NF Research Funded. Military Benefit: Department of Defense NF Research Program. NIH NF Research Language FY17. Fundraise w/NF Supporters Circle. NF Supporters Circle Recipients. Missouri, Kansas City. North Carolina, Oxford. Ways to Help NF Network. Other Ways to Give. Understanding NF Scientific Papers. Medical Journal Abstracts (Pub Med).
nfnetwork.org
NF Network
http://www.nfnetwork.org/understanding-nf/clinical-care-options/nf1-clinical-care-options
What is NF 1? What is NF 2? NF Clinical Care Options. NF1 Clinical Care Options. The Network Edge Science Column. What is the NF Network Advocacy Program. How is NF Research Funded. Military Benefit: Department of Defense NF Research Program. NIH NF Research Language FY17. Fundraise w/NF Supporters Circle. NF Supporters Circle Recipients. Missouri, Kansas City. North Carolina, Oxford. Ways to Help NF Network. Other Ways to Give. Understanding NF NF Clinical Care Options. NF1 Clinical Care Options. Neurof...
nfnetwork.org
NF Network NF Network
http://www.nfnetwork.org/home
What is NF 1? What is NF 2? NF Clinical Care Options. NF1 Clinical Care Options. The Network Edge Science Column. What is the NF Network Advocacy Program. How is NF Research Funded. Military Benefit: Department of Defense NF Research Program. NIH NF Research Language FY17. Fundraise w/NF Supporters Circle. NF Supporters Circle Recipients. Missouri, Kansas City. North Carolina, Oxford. Ways to Help NF Network. Other Ways to Give. Washington State NF Families (WSNF). Coast to the Cure Bike Ride.
eternal-gillian-anderson.blogspot.com
EGA: mayo 2013
http://eternal-gillian-anderson.blogspot.com/2013_05_01_archive.html
Jueves, 23 de mayo de 2013. Gillian Anderson y Jamie Dornan en Red Magazine. Gillian Anderson junto al actor . Su compañero protagónico en The Fall. Participaron de una amena entrevista y una muy simpática sesión fotográfica para la . Edición del mes de julio. 160;de la revista británica. Cans gracias a . Por cierto, The Fall. Al igual que sus protagonistas aparecen en el listado preliminar de . 160;para los . TV Choice Awards 2013. 160;en las categorías de . Enviar por correo electrónico. Ottawa Comic C...
treatingnf.blogspot.com
Treating NF: July 2014
http://treatingnf.blogspot.com/2014_07_01_archive.html
Sunday, July 20, 2014. Big brother looking on. Another point of discussion with the neuro-oncologist, was figuring out when there might be an end to this treatment. There are a lot of factors at play and a lot of options moving forward. Next steps will be discussed in more depth in October. Thursday, July 10, 2014. Logan did a great job. He laid still for nearly an hour while 3 different techs/doctors poked and prodded at his belly. Thank god for iPads! One step closer to knowing nothing more. As a paren...
treatingnf.blogspot.com
Treating NF: May 2014
http://treatingnf.blogspot.com/2014_05_01_archive.html
Tuesday, May 20, 2014. Bracelets Parker helped make in NF awareness colors. Momsie works for the Township of wonderful Toms River, NJ. Friday we set out to visit many of the township departments to collect donations and share a bit of Logan's story. The boys had a great time handing out stickers and lollipops and meeting so many wonderful and generous people. Order in the court! Logan's best "I just got arrested" face. Friday, May 9, 2014. Working in schools, I've heard a lot this week about "Teacher App...
treatingnf.blogspot.com
Treating NF: September 2014
http://treatingnf.blogspot.com/2014_09_01_archive.html
Sunday, September 21, 2014. This week was a very big week at chemo. This may have been his LAST chemo session! In 2 weeks, Logan will go for an MRI and if it is stable and there are no other concerns, we will be done with chemo! I wish I could have made a bigger deal about it and told Logan that it would be the last time, but I wouldn't be able to handle it if it that were not true. We'll have to wait for his MRI to hopefully celebrate the good news. It is not too late to contribute to the NF Walk for th...
SOCIAL ENGAGEMENT