Laura is 10 years old and has Dravet syndrome. This is a rare neurological condition caused by a genetic mutation on the SCN1A gene. This has resulted in complex epilepsy, autism, ADHD, ataxia and severe learning difficulties. Laura is non verbal and walks unsteadily but is a very happy and mischievous girl who loves everybody and enjoys life.
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Laura's Dravet syndrome journey | dravetsyndrome.blogspot.com Reviews
https://dravetsyndrome.blogspot.com
Laura is 10 years old and has Dravet syndrome. This is a rare neurological condition caused by a genetic mutation on the SCN1A gene. This has resulted in complex epilepsy, autism, ADHD, ataxia and severe learning difficulties. Laura is non verbal and walks unsteadily but is a very happy and mischievous girl who loves everybody and enjoys life.
dravetsyndrome.blogspot.com
Laura's Dravet syndrome journey: The simple things
http://dravetsyndrome.blogspot.com/2009/07/simple-things.html
Laura's Dravet syndrome journey. Laura is 10 years old and has Dravet syndrome. This is a rare neurological condition caused by a genetic mutation on the SCN1A gene. This has resulted in complex epilepsy, autism, ADHD, ataxia and severe learning difficulties. Laura is non verbal and walks unsteadily but is a very happy and mischievous girl who loves everybody and enjoys life. Saturday, 4 July 2009. Laura has at last been back out into the back garden. Subscribe to: Post Comments (Atom).
Laura's Dravet syndrome journey: May 2009
http://dravetsyndrome.blogspot.com/2009_05_01_archive.html
Laura's Dravet syndrome journey. Laura is 10 years old and has Dravet syndrome. This is a rare neurological condition caused by a genetic mutation on the SCN1A gene. This has resulted in complex epilepsy, autism, ADHD, ataxia and severe learning difficulties. Laura is non verbal and walks unsteadily but is a very happy and mischievous girl who loves everybody and enjoys life. Saturday, 2 May 2009. Subscribe to: Posts (Atom). View my complete profile.
Laura's Dravet syndrome journey: People's comments sometimes hit home
http://dravetsyndrome.blogspot.com/2010/02/peoples-comments-sometimes-hit-home.html
Laura's Dravet syndrome journey. Laura is 10 years old and has Dravet syndrome. This is a rare neurological condition caused by a genetic mutation on the SCN1A gene. This has resulted in complex epilepsy, autism, ADHD, ataxia and severe learning difficulties. Laura is non verbal and walks unsteadily but is a very happy and mischievous girl who loves everybody and enjoys life. Thursday, 11 February 2010. People's comments sometimes hit home. Subscribe to: Post Comments (Atom). Long time no blog.
Laura's Dravet syndrome journey: June 2009
http://dravetsyndrome.blogspot.com/2009_06_01_archive.html
Laura's Dravet syndrome journey. Laura is 10 years old and has Dravet syndrome. This is a rare neurological condition caused by a genetic mutation on the SCN1A gene. This has resulted in complex epilepsy, autism, ADHD, ataxia and severe learning difficulties. Laura is non verbal and walks unsteadily but is a very happy and mischievous girl who loves everybody and enjoys life. Saturday, 6 June 2009. Lots of help in the garden from Dad and Helen. I've just finished putting some pond plants in the newly cle...
Laura's Dravet syndrome journey: February 2009
http://dravetsyndrome.blogspot.com/2009_02_01_archive.html
Laura's Dravet syndrome journey. Laura is 10 years old and has Dravet syndrome. This is a rare neurological condition caused by a genetic mutation on the SCN1A gene. This has resulted in complex epilepsy, autism, ADHD, ataxia and severe learning difficulties. Laura is non verbal and walks unsteadily but is a very happy and mischievous girl who loves everybody and enjoys life. Saturday, 28 February 2009. I've been on eBay to order some signs for the new house. So I have bought 3 signs:. I've just booked a...
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Dravet Syndrome Foundation Delegación en España
Promoción de la investigación. Sobre el síndrome de Dravet. Y las canalopatías epilépticas asociadas. Beneficios de la Fundación. El objetivo principal es avanzar en. El conocimiento de la causas de la. Enfermedad, mejorar su tratamiento y hallar. Medicamentos efectivos que permitan. Eliminar, mitigar e incluso. Misión, visión y valores. Fundación Síndrome de Dravet. QUÉ ES EL SÍNDROME DE DRAVET. Misión, valores y objetivos. Solicitud del test genético. Solicitud del test genético. El Síndrome de Dravet.
Home - Dravet Syndrome Foundation
What is Dravet Syndrome? DSF Family Network & Support Groups. Patient Assistance Grant Program. Disaster Relief & Recovery Fund. DSF Research Grant Program. Give Up Your Cup. Dash for Dravet on Turkey Day. Steps Toward a Cure. NYC City Bash 2018. Double Down for Dravet 2018. NYC City Bash 2017. What is Dravet Syndrome? Click here to learn more about Dravet syndrome and childhood Epilepsy. Meet our superheroes who fight every day against Dravet! Find out why Dravet Syndrome Research is our hope for a cure.
Dravet Italia Onlus - Donazioni
Tempo per la famiglia e le persone che amiamo. Tempo per essere felici. Tempochevale sono i momenti per i quali vale la pena lottare. Matteo Manassero - Ambasciatore per Dravet Italia Onlus. Dai valore al tuo tempo. Abbiamo un sogno che ci motiva più di tutti: migliorare la qualità della vita dei bambini affetti dalla sindrome di Dravet*. In questi anni grazie al vostro aiuto abbiamo realizzato:. La APP - Dravet Diary. La tua donazione è detraibile dalle tasse.
Single Mother's Dravet Journal | Just another WordPress.com weblog
Single Mother's Dravet Journal. Just another WordPress.com weblog. Sorry, but you are looking for something that isn’t here. Create a free website or blog at WordPress.com. Follow “Single Mother's Dravet Journal”. Get every new post delivered to your Inbox. Build a website with WordPress.com.
DSAS - Dravets Syndrome Association Sweden
Vi behöver din hjälp! Med din hjälp kan vi samla in pengar till framtida forskning, och för att sprida information och kunskap. Intresseförening för familjer i Sverige med barn eller. Unga vuxna som har diagnosen Dravets Syndrom. Dravets Syndrome Association Sweden. Vi är en intresseförening för familjer i Sverige med barn eller unga vuxna som har diagnosen Dravets syndrom eller liknande tillstånd. DSAS är riksomfattande, ideell, allmännyttig, partipolitiskt och religiöst obunden. Vad är Dravets Syndrom?
Laura's Dravet syndrome journey
Laura's Dravet syndrome journey. Laura is 10 years old and has Dravet syndrome. This is a rare neurological condition caused by a genetic mutation on the SCN1A gene. This has resulted in complex epilepsy, autism, ADHD, ataxia and severe learning difficulties. Laura is non verbal and walks unsteadily but is a very happy and mischievous girl who loves everybody and enjoys life. Tuesday, 5 October 2010. New Sensory Ball Pool. Sunday, 5 September 2010. Laura had a great summer off school! Sunday, 16 May 2010.
OUR DRAVET BUTTERFLY, VANESSA
Welcome To Our Website. This website has been created to provide a greater awareness of Dravet Syndrome,. Which our daughter Vanessa has. We would like to provide as much information and support for all families who are affected by this syndrome. We know how difficult life is, so we would like to share with you, the story of our daughter Vanessa,who lives with Dravet Syndrome each day of her life. Maggie and John, Melbourne, Australia. We are on a mission, to help find a cure for this condition.
Febrile Seizures, GEFS+, ICE-GTC, SIMFE, SMEB, Dravet syndrome
dravetsyndrome.org - This website is for sale! - dravetsyndrome Resources and Information.
The owner of dravetsyndrome.org. Is offering it for sale for an asking price of 1088 USD! This webpage was generated by the domain owner using Sedo Domain Parking. Disclaimer: Sedo maintains no relationship with third party advertisers. Reference to any specific service or trade mark is not controlled by Sedo nor does it constitute or imply its association, endorsement or recommendation.
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Stichting Dravetsyndroom - Dravetsyndroom
Wat is het Dravetsyndroom? Stoppen van een aanval. Therapieën voor bijkomende problemen. Welkom op de website van Stichting Dravetsyndroom Nederland/Vlaanderen. Het Dravetsyndroom is een zeldzaam en ernstig. Naar schatting wordt wereldwijd 1 op de 30.000 kinderen geboren met het Dravetsyndroom. In Nederland zijn momenteel ongeveer 200 patiënten bekend. In Vlaanderen zijn dat tussen de 100 en 150 patiënten. 23 juni 2015 2e internationale Dravet Syndrome Awareness Day. Noteer alvast in uw agenda:. We zijn ...
