dravetssweden.se
Om DSAS | DSAS - Dravets Syndrome Association Sweden
http://www.dravetssweden.se/om-dsas
Dravets Syndrome Association Sweden. Grundad av föräldrar i mars 2013. Vi är en intresseförening för familjer i Sverige med barn eller unga vuxna som har diagnosen Dravets Syndrom. DSAS är riksomfattande, ideell, allmännyttig, partipolitiskt och religiöst obunden. Föreningen ska bl.a. arbeta med att:. Informera allmänhet och myndigheter om Dravets Syndrom och om de problem och behov som är förenade med Dravets Syndrom (DS). Motverka fördomar om DS. Verka för vetenskaplig forskning och utveckling inom DS.
dravetfoundation.eu
Dravet Syndrome Foundation Delegación en España
http://www.dravetfoundation.eu/es
Promoción de la investigación. Sobre el síndrome de Dravet. Y las canalopatías epilépticas asociadas. Beneficios de la Fundación. El objetivo principal es avanzar en. El conocimiento de la causas de la. Enfermedad, mejorar su tratamiento y hallar. Medicamentos efectivos que permitan. Eliminar, mitigar e incluso. Misión, visión y valores. Sobre el Síndrome de Dravet. Wacean, nuestro nuevo proyecto. Sobre el Síndrome de Dravet. El Síndrome de Dravet. Aproximadamente un 25% de los pacientes presenta una his...
dravetfoundation.org
Resources | Dravet Syndrome Foundation
http://www.dravetfoundation.org/dravet-syndrome/medical-information/resources
Directors & Staff. What is Dravet Syndrome? International Ion Channel Patient Registry. Patient Assistance Grant Program. Making A Difference For Dravet. American Epilepsy Outreach Foundation. Epilepsy Therapy Development Project. Joey’s Song The Joseph Gomoll Foundation. National Institute of Neurological Disorders and Stroke (NINDS). International Dravet Syndrome Organizations. Alliance Syndrome de Dravet). La Fundación Síndrome de Dravet). Dravets Syndrome Association Sweden). My Seizures No More.
draveteu.wordpress.com
About us | Dravet Syndrome European Federation
https://draveteu.wordpress.com/aboutus
Dravet Syndrome European Federation. Dravet Syndrome European Federation. The founding members of DSEF:. Alliance Syndrome de Dravet (France). Dravet Syndrome e.V. (Germany). Dravet Italia Onlus and Gruppo Famiglie Dravet Onlus (both from Italy). Stichting Dravetsyndroom Nederland/Vlaanderen (Netherlands). Asociatia pentru Dravet si alte Epilepsii Rare (Romania). Dravet Syndrome Foundation Delegation en Espana (Spain). Swiss Dravet Syndrome Association (Switzerland). Julian Isla, chairman. Profession, po...
draveteu.wordpress.com
Dravet Syndrome | Dravet Syndrome European Federation
https://draveteu.wordpress.com/dravet-syndrome
Dravet Syndrome European Federation. Dravet Syndrome European Federation. What is Dravet Syndrome. Behavioral and developmental delays. Movement and balance issues. Delayed language and speech issues. Growth and nutrition issues. Disruptions of the autonomic nervous system (which regulates things such as body temperature and sweating). Children with Dravet syndrome do not outgrow this condition and it affects every aspect of their daily lives. Search in the Web. A life without Seizures. Swiss Dravet Synd...
draveteu.wordpress.com
News and Events | Dravet Syndrome European Federation
https://draveteu.wordpress.com/news-and-events
Dravet Syndrome European Federation. Dravet Syndrome European Federation. Families of patients with Dravet syndrome join forces to carry out one of the largest scientific survey. Ever published for this rare disease. In an unprecedented study, the Dravet Syndrome Foundation Spain. Dravet Syndrome European Foundation. Is now member of Eurordis. With 667 direct member organisations, Eurordis is recognised and listened to as the European organisation specialised in the needs of patients with rare diseases.
draveteu.wordpress.com
Our Projects | Dravet Syndrome European Federation
https://draveteu.wordpress.com/our-projects
Dravet Syndrome European Federation. Dravet Syndrome European Federation. This page will show the projects around all Europe. Search in the Web. A life without Seizures. The Dravet Syndrome European Federation (DSEF) is dedicated to finding a cure for Dravet Syndrome through funding research and to save lives by increasing awareness and early detection. Alone we are strong, together we are stronger. Alliance Syndrome de Dravet (France). Dravet Italia Onlus (Italy). Gruppo Famiglie Dravet Onlus (Italy).
draveteu.wordpress.com
Make a Donation | Dravet Syndrome European Federation
https://draveteu.wordpress.com/donation
Dravet Syndrome European Federation. Dravet Syndrome European Federation. If you would like to support our projects, please find below the details for bank transfer:. Bank Name: BANCA PROSSIMA. Bank Address: BANCA PROSSIMA, Piazza Ferrari, 10, 20121 MILANO (MI). Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. Notify me of new comments via email.
