genmedlabmom.blogspot.com
GenMed lab mom: April 2009
http://genmedlabmom.blogspot.com/2009_04_01_archive.html
April 7, 2009. A Poem for Uncle Petey. Below is a poem that Petey wrote about his uncle, who died Saturday after battling ALS. Even though there are allusions to family connections - karate kid, movies, Stephen Segal - it's easy to follow. One more note - Uncle Petey was the president of the regional CWA for twenty years or so - hence the 'union' references. I remember that grin. Even when the disease loomed. I knew how it must have grown heavy. But his strength was there. I could see it. OUR KIDS (email...
genmedlabmom.blogspot.com
GenMed lab mom: Men over 40 with duchenne
http://genmedlabmom.blogspot.com/2009/06/men-over-40-with-duchenne.html
June 19, 2009. Men over 40 with duchenne. Now you can join the likes of Mark Twain and say: "The report of my death is an exaggeration." There are over 400 men with duchenne muscular dystrophy over 40. Who are you? What do you have to say for yourselves? Where are you ' oh miracles of the living'. If you know of someone who doesn't have a computer and would like to participate, please feel free to send me their contact information. Click Here to take survey. Eric Hoffman explains exon skipping. Translati...
genmedlabmom.blogspot.com
GenMed lab mom: October 2009
http://genmedlabmom.blogspot.com/2009_10_01_archive.html
October 7, 2009. Morpholinos 101: An Introduction. I want to take a brief moment to introduce my guest blogger today, Jon Moulton. Jon works for Gene Tools. Below, he gives a brief biography but here is what he doesn't say is:. He is a friend of duchenne parents. Actively involved in education scientists as well as amateurs like me! I understand so much more now! A scientists of the finest caliber. A caring and compassionate human being. Morpholinos have genetic bases identical to those of DNA connected ...
genmedlabmom.blogspot.com
GenMed lab mom: A Poem for Uncle Petey
http://genmedlabmom.blogspot.com/2009/04/a-poem-for-uncle-petey.html
April 7, 2009. A Poem for Uncle Petey. Below is a poem that Petey wrote about his uncle, who died Saturday after battling ALS. Even though there are allusions to family connections - karate kid, movies, Stephen Segal - it's easy to follow. One more note - Uncle Petey was the president of the regional CWA for twenty years or so - hence the 'union' references. I remember that grin. Even when the disease loomed. I knew how it must have grown heavy. But his strength was there. I could see it. OUR KIDS (email...
killowenfundraising.com
News | killowenfundraising.com
http://www.killowenfundraising.com/news
Action Today. Hope For Tomorrow. 2015 MILES FOR MUSCLES. Posted on Feb 22, 2015 in News. BACK FOR 2015 DATE FOR YOUR RUNNING/WALKING DIARY SIXTH ANNUAL MILES FOR MUSCLES EASTER MONDAY 6TH APRIL 2015 AT 12 NOON 10KM KILBRONEY FOREST RACE/WALK and 5KM FOREST FAMILY WALK 10KM RACE – 10 (CHIPPED EVENT) 10KM WALK/5KM FAMILY WALK – 5.00 PER ADULT/CHILDREN FREE ALL PROCEEDS IN AID OF KILLOWEN FUNDRAISING GROUP – MUSCULAR. ALL IRELAND TICKETS WINNERS. Posted on Sep 19, 2014 in News. Posted on Feb 16, 2014 in News.
uppmd.org
UPPMD members |
http://www.uppmd.org/membership/members
Skip to primary content. Mission & Vision. Please see below all UPPMD members in alphabetical order:. Http:/ www.actionduchenne.org/. Asociación de Distrofia Muscular de Occidente A.C. Http:/ www.admo.org.mx/. Aktion Benni and co e.V. Http:/ www.aktionbenniundco.de/. Http:/ www.cureduchenne.org/. Duchenne Children s Trust. H ttp:/ www.dc-trust.org/. Http:/ www.duchennefoundation.org.au/. Http:/ www.duchenne.ie/. Duchenne Parent Project Belgium. Https:/ www.facebook.com/DuchenneParentProjectBelgie?
pl.care-nmd.eu
CARE-NMD: Organizacje Pacjentów
http://pl.care-nmd.eu/international/patient-organisations
Poprawa opieki nad pacjentami z dystrofią mięśniową Duchenne'a. 2013 International Conference on DMD. O dystrofii mięśniowej Duchenne’a. CARE-NMD w Twoim kraju. Rozpoznanie rzadkiej choroby, takiej jak dystrofia Duchenne’a zmienia wiele w życiu rodziny. Istnieje jednak wiele organizacji stworzonych po to, aby pomagać pacjentowi i jego rodzinie. W niektórych krajach organizacje te zajmują się pacjentami z wieloma chorobami nerowowo-mięśniowymi lub wyłącznie z dystrofią Duchenne’a. 49 Nedko Voyvoda Str.
en.care-nmd.eu
CARE-NMD: Patient Organisations
http://en.care-nmd.eu/international/patient-organisations
Improving care for Duchenne muscular dystrophy. 2013 International Conference on DMD. CARE-NMD IN YOUR COUNTRY. The diagnosis of a rare disease such as Duchenne muscular dystrophy is often a life-changing event, but there are many organisations dedicated to helping patients and their families. Depending on the country in question some address a range of neuromuscular diseases while others are specific to Duchenne muscular dystrophy. Belarussian Neuro-Muscular Disorders Section of BelAPDliMI. 36 1 215 0712.
genmedlabmom.blogspot.com
GenMed lab mom: Morpholinos 101: An Introduction
http://genmedlabmom.blogspot.com/2009/10/morpholinos-101-introduction.html
October 7, 2009. Morpholinos 101: An Introduction. I want to take a brief moment to introduce my guest blogger today, Jon Moulton. Jon works for Gene Tools. Below, he gives a brief biography but here is what he doesn't say is:. He is a friend of duchenne parents. Actively involved in education scientists as well as amateurs like me! I understand so much more now! A scientists of the finest caliber. A caring and compassionate human being. Morpholinos have genetic bases identical to those of DNA connected ...