thegrannyblog.blogspot.com
The Granny Blog: November 2009
http://thegrannyblog.blogspot.com/2009_11_01_archive.html
Tuesday, November 24, 2009. So now it is time for us to care for her. In October, it was discovered that she had 4 brain aneurysms. Yes 4! I added the picture of my son Scott and his deer. You can see he really looks like a happy hunter. Later that morning he came back with the boys for a few minutes. Jayden and Bryce were so excited to tell me that Daddy got a big deer! I love the excitment in their little voices. But who can resist those huge chocolate brown eyes! Links to this post. Days in the life.
tobypannone.blogspot.com
Toby Pannone: August 2009
http://tobypannone.blogspot.com/2009_08_01_archive.html
Monday, August 10, 2009. Thankful for every day. Toby's summer has been full of sunshine, beach days, hot dog cookouts, puddle jumping, bike rides and ice cream. He's doing really well, finishing up his 10th cycle of ABT-751, with clean MiBG CT scans and clear bone marrows. We are so very, very lucky. And yet, shouldn't this be the norm? Recently relapsed and is spending his third summer battling neuroblastoma. He is all of 5 years old. Sweet Evan. Subscribe to: Posts (Atom). Blood and Platelet Drive.
tobypannone.blogspot.com
Toby Pannone: Walk
http://tobypannone.blogspot.com/2010/05/walk.html
Wednesday, May 5, 2010. During the year that hospital became home, Toby spent most of his waking hours in bed. Moving was difficult. So we used a wheelchair to get to surgery, radiation and countless middle-of-the-night emergency scans. And we carried Toby everywhere else: to the bathroom and the IV room, to look out the window as the world spun madly on. And we cried as his body withered, his little bones pushing through skin. After a year Toby began to walk again. My gosh, Toby! Thank you for posting&#...
tobypannone.blogspot.com
Toby Pannone: December 2008
http://tobypannone.blogspot.com/2008_12_01_archive.html
Thursday, December 4, 2008. In the 20 months since Toby got sick, Stephen and I have watched 30 children die. They are children we shared rooms with and children we came to love through their parents’ writings. Their names are Gus, Jack, Max, Katie, Lillie, Lucas, Penelope, Brody. Their parents cope with unfathomable grief. We think about death a lot, over here. It is forever knocking at our door, lingering in corners, forcing us to ask, “is today the day? But we also focus on the joy of each day. We...
tobypannone.blogspot.com
Toby Pannone: March 2010
http://tobypannone.blogspot.com/2010_03_01_archive.html
Friday, March 12, 2010. When I started this blog almost three years ago, I spent most nights in a pit of fear, adjusting tubes, cleaning vomit and watching my child waste away. In between terror and tears I searched constantly for "neuroblastoma blog" online, in desperate need of finding others like Toby. They each lived so large—running, laughing, overcoming every obstacle with pluck, determination and joy. In less than 2 years, four of these five children have died. Sam died today. Liam I miss you.
tobypannone.blogspot.com
Toby Pannone: January 2011
http://tobypannone.blogspot.com/2011_01_01_archive.html
Wednesday, January 26, 2011. Good-night, sweet Prince. I loved Liam before I ever met him. In April 2007, after Toby was diagnosed with stage IV neuroblastoma, after we saw the scans of his body filled with metastatic cancer, and after our doctor told us that Toby might die from the baseball-sized tumor in his abdomen, a parent from Toby's preschool sent me a clipping from Cookie magazine. "Maybe you've seen this," she wrote. "This boy has cancer too.". Imagine if Liam was your child. Imagine adminis...
tobypannone.blogspot.com
Toby Pannone: November 2009
http://tobypannone.blogspot.com/2009_11_01_archive.html
Monday, November 2, 2009. It's all so good around here. And it seems I've forgotten how to write. Mostly I drink the beauty of normal. We ride our bikes to soccer in the park, we read chapter books. and we have regular tooth fairy visits. Not a day goes by that we don't count our blessings. An empty one has been hanging out with the bath toys, but surely that can't be it. "Toby, do you remember what these are? Thanks for dropping in. Subscribe to: Posts (Atom). Blood and Platelet Drive. Liam I miss you.
tobypannone.blogspot.com
Toby Pannone: Financial Support
http://tobypannone.blogspot.com/2007/04/from-rabbi-carie-carter-at-park-slope.html
Monday, April 23, 2007. Contributions can be made in two ways:. To make a tax-deductible donation to Toby via Park Slope Jewish Center, please make your check out to "Rabbi's Discretionary Fund" and put "Toby" in the memo. All funds raised will be put aside specifically for Toby and his family to pay or reimburse medically-related expenses. All contributions to this fund are tax-deductible. Park Slope Jewish Center. Brooklyn, NY 11215. For account reference numbers. New York, NY. Bank swift code- WMSBUS66.
thegrannyblog.blogspot.com
The Granny Blog: 6 Degrees of Seperation
http://thegrannyblog.blogspot.com/2011/05/6-degrees-of-seperation.html
Monday, May 16, 2011. 6 Degrees of Seperation. Wow look at how long it has been since I wrote on this blog! Shame on me. The picture is Laura reading to me one night a couple of months ago. There has been so much happening recently. Laura has relapsed with her neuroblastoma and the chemo does not seem to be working. We have so many people praying for us that we feel completely surrounded by love. Sure enough, here was a poster of Laura! Kara Lynn has organized a fund raiser for Laura at the Grand Ledge P...
SOCIAL ENGAGEMENT