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Dystonia Daughter

Adventures of a daughter of Dystonia. Tuesday, August 11, 2015. Disability is all inclusive. So many of you reading this are affected in some way by dystonia. Many of you have dystonia and there are so many others of you that are reading this that do not have dystonia, but love and care greatly for someone who has dystonia. What, though, about the family members? Thursday, August 6, 2015. What we all have in common. Mercy what a great question! The answer is that they are ALL people that are braver than ...

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Dystonia Daughter | dystoniadaughter.blogspot.com Reviews
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Adventures of a daughter of Dystonia. Tuesday, August 11, 2015. Disability is all inclusive. So many of you reading this are affected in some way by dystonia. Many of you have dystonia and there are so many others of you that are reading this that do not have dystonia, but love and care greatly for someone who has dystonia. What, though, about the family members? Thursday, August 6, 2015. What we all have in common. Mercy what a great question! The answer is that they are ALL people that are braver than ...
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Dystonia Daughter | dystoniadaughter.blogspot.com Reviews

https://dystoniadaughter.blogspot.com

Adventures of a daughter of Dystonia. Tuesday, August 11, 2015. Disability is all inclusive. So many of you reading this are affected in some way by dystonia. Many of you have dystonia and there are so many others of you that are reading this that do not have dystonia, but love and care greatly for someone who has dystonia. What, though, about the family members? Thursday, August 6, 2015. What we all have in common. Mercy what a great question! The answer is that they are ALL people that are braver than ...

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Dystonia Daughter: July 2013

http://www.dystoniadaughter.blogspot.com/2013_07_01_archive.html

Adventures of a daughter of Dystonia. Thursday, July 25, 2013. You win some. you lose some. Well, unfortunately, I am blogging today about news that was NOT what we were hoping for. The Baclofen Pump Lumbar Injection (test) was not successful. What does that mean? So, what does that. Until then, please continue to share your story, my dad's story, or just share what you know about this horrible disorder! Awareness is key and we are hoping for relief soon! Thursday, July 11, 2013. What is a Baclofen Pump?

2

Dystonia Daughter: July 2015

http://www.dystoniadaughter.blogspot.com/2015_07_01_archive.html

Adventures of a daughter of Dystonia. Thursday, July 30, 2015. Feeling like i'm looking in from the outside. So in the time since November of 2008 that my dad was diagnosed with Dystonia, I have never felt like an outsider in this journey called "life" with other Dystonia patients or families. Now, though, I'm feeling that pressure. Where do I allow my thoughts to take me? All of these are questions I plan on continually churning in my head but for now, I will share what is going on in my life that has a...

3

Dystonia Daughter: April 2015

http://www.dystoniadaughter.blogspot.com/2015_04_01_archive.html

Adventures of a daughter of Dystonia. Saturday, April 18, 2015. Dystonia Advocacy Day 2015. I was honored this year to attend the Dystonia Advocacy Network's Dystonia Advocacy Day yesterday on Capital Hill. I joined 100 other advocated and proceeded to share my dad's Dystonia story and ask congress to help us in the fight for research funds. What a great day and what beautiful weather we had! Bless you all and thanks for everything! Subscribe to: Posts (Atom). Dystonia Advocacy Day 2015.

4

Dystonia Daughter: April 2013

http://www.dystoniadaughter.blogspot.com/2013_04_01_archive.html

Adventures of a daughter of Dystonia. Sunday, April 28, 2013. I also quickly realized that my mother had almost had all she can handle 'alone'. Exhaustion has truly set in and being a care taker has taken its toll. I am getting ready to begin the home health battle, medical accessory battle, and any other battle that my mom and dad don't have the energy to fight alone. The troops are here, and we've come a long way which means, we are that much more determined to make happen what needs to happen! Be your...

5

Dystonia Daughter: Disability is all inclusive

http://www.dystoniadaughter.blogspot.com/2015/08/disability-is-all-inclusive.html

Adventures of a daughter of Dystonia. Tuesday, August 11, 2015. Disability is all inclusive. So many of you reading this are affected in some way by dystonia. Many of you have dystonia and there are so many others of you that are reading this that do not have dystonia, but love and care greatly for someone who has dystonia. What, though, about the family members? Subscribe to: Post Comments (Atom). Disability is all inclusive. What we all have in common. To know a little more about Dystonia. I am the dau...

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Tony, Rebecca, Chip, and Stephens: August 2014

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Tony, Rebecca, Chip, and Stephens. The Sharp family. experiencing the Lord on this side of heaven. Journey with us! Saturday, August 16, 2014. Having two is not for the faint of heart. He already now weighs 9 lbs 13 oz and is the apple of his big brother's eye! Chip just adores being a big brother and loves nothing more than to kiss all over him all the time! We are trying to find ourselves in a routine and to establish a new normal and that is proving to be more difficult than we could have imagined!

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Tony, Rebecca, Chip, and Stephens: September 2014

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Tony, Rebecca, Chip, and Stephens. The Sharp family. experiencing the Lord on this side of heaven. Journey with us! Wednesday, September 10, 2014. So I'm trying to back off from the posts on Facebook, however, I find myself using Facebook as a means of journaling and keeping a record of life for my kids. Somewhat like a digital scrapbook, etc. So I am going to force myself to blog more, i guess! Also, with Stephens we have gotten his skin and rash under control! Subscribe to: Posts (Atom).

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Tony, Rebecca, Chip, and Stephens: keeping all my plates in the air

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Tony, Rebecca, Chip, and Stephens. The Sharp family. experiencing the Lord on this side of heaven. Journey with us! Thursday, August 13, 2015. Keeping all my plates in the air. Sheesh at how difficult I find it to keep all my plates spinning at the same time. I find myself blogging for the DMRF and falling behind here. I find myself doing tons of design work and falling behind on my school prep. Isn't that just like life, though? Subscribe to: Post Comments (Atom). Keeping all my plates in the air. Makin...

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Tony, Rebecca, Chip, and Stephens: May 2014

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Tony, Rebecca, Chip, and Stephens. The Sharp family. experiencing the Lord on this side of heaven. Journey with us! Tuesday, May 27, 2014. The best weekend yet! Well, this post finds itself as a 'must' after our weekend. We had absolutely the best weekend, yet probably one of the most exhausting weekends, since we have lived in PA! He partook in Yahtzee and Guess Who. Chip had gotten a fishing pole for Easter from Lee and so we went and tried it out. We went to two different places: the Montour Prese...

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Tony, Rebecca, Chip, and Stephens: August 2013

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Tony, Rebecca, Chip, and Stephens. The Sharp family. experiencing the Lord on this side of heaven. Journey with us! Saturday, August 31, 2013. It's been two months! People continually are saying to me, "Gosh, so how was it? But on the flip side, what an experience. I know beyond a shadow of a doubt that the Lord had me go to Alabama for the summer. It was a trip that I would have never done on my own had i known all it would have entailed, but isn't that how it is with the Lord? Subscribe to: Posts (Atom).

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Tony, Rebecca, Chip, and Stephens: September 2013

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Tony, Rebecca, Chip, and Stephens. The Sharp family. experiencing the Lord on this side of heaven. Journey with us! Monday, September 23, 2013. Homeschool, pirate day, and more. So I have finally realized that I don't wear a cape and I won't get it all done in one day. What else I have realized, though, is that even if it doesn't all get done, it is OK! Believe it or not, we also have a LOT of fun! What in the world have you done OUTSIDE of school? You might be wondering! We have done lots of canning veg...

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Tony, Rebecca, Chip, and Stephens: January 2014

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Tony, Rebecca, Chip, and Stephens. The Sharp family. experiencing the Lord on this side of heaven. Journey with us! Thursday, January 23, 2014. So as most of you have already heard from one way or another, we are expecting a baby. This came to a surprise to us as we were not quite ready for baby number two. I (Rebecca) was fighting some health issues and was trying to get that resolved when the Lord decided it would be humorous to foil our plans and the doctors'! Friday, January 10, 2014. The holiday sta...

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Tony, Rebecca, Chip, and Stephens: October 2013

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Tony, Rebecca, Chip, and Stephens. The Sharp family. experiencing the Lord on this side of heaven. Journey with us! Sunday, October 27, 2013. Wow are you smarter than a Kindergartner! I continue to be amazed by Chip in school. Kids this age are totally into learning. If it is a game, interesting in the least bit, or makes them feel "Big", they are usually into it. This is what i have found, at least, with Chip! What a great bird to learn about! He has learned his continents and is in the process of tryin...

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Tony, Rebecca, Chip, and Stephens: March 2014

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Tony, Rebecca, Chip, and Stephens. The Sharp family. experiencing the Lord on this side of heaven. Journey with us! Thursday, March 20, 2014. 22 weeks and a life catch up. Well not much has happened on the baby front lately except a few HUGE things! We have reached the halfway mark, had our 20 week ultrasound, Chip has been diagnosed with pneumonia, I had a computer tragedy. oh and i think that's it. WHEW - what a few weeks. I'll start with the fun ultrasound:. Tinky Tiny on February 28, 2014. DMRF Insig...

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Tony, Rebecca, Chip, and Stephens: June 2013

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Tony, Rebecca, Chip, and Stephens. The Sharp family. experiencing the Lord on this side of heaven. Journey with us! Saturday, June 8, 2013. A new found respect. Recently, I have found myself a long way from home and yet so close to those people and things that I find dear! In this time of learning, healing, praying, hoping, and caring, it has also been a time for me to reflect on a lot of things! Subscribe to: Posts (Atom). A new found respect. Bellamia. a children's shop. Disability is all inclusive.

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Make September Dystonia Awareness Month - Home

Make September Dystonia Awareness Month. September is Dystonia Awareness Month and we want to make it official! Starting September 1st we'll be petitioning the White House to recognize September as Dystonia Awareness Month! Have You Jumped for Dystonia Yet? By sharing your #jumpfordystonia!

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Home | Dystonia Medical Research Foundation Canada

Skip to main content. How We Support Research. Find Us on Social. Does your child have dystonia? Learn more about the Parent Support Group. Join one of our local support groups. Signup for our E-newsletter. Our E-newsletter Sign-up is offline at the moment pending system upgrades. Check back later for an update. Join a group of dedicated individuals who are committed to improving the lives of individuals suffering from dystonia. Join a Support Group. Free Yoga Class in Edmonton: March 2018. March 26, 2018.

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Welcome to the Dystonia Coalition Web Site

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Welcome to the Dystonia Coalition Web Site

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Dystonia Daughter

Adventures of a daughter of Dystonia. Tuesday, August 11, 2015. Disability is all inclusive. So many of you reading this are affected in some way by dystonia. Many of you have dystonia and there are so many others of you that are reading this that do not have dystonia, but love and care greatly for someone who has dystonia. What, though, about the family members? Thursday, August 6, 2015. What we all have in common. Mercy what a great question! The answer is that they are ALL people that are braver than ...

dystoniadc.com dystoniadc.com

Dystonia Support Group of Greater Washington DC

Dystonia Support Group of Greater Washington DC. Welcome to the Dystonia Support Group of Greater Washington DC. We are here to help individuals with dystonia and their care givers with. Conducts Support Group Meetings with guest speakers discussing topics of interest to dystonia affected individuals. Produces newsletters featuring events, speakers’ presentations and advances in research. Maintains a website to keep members informed. Participates in health expos. Legislative and Policy Advocacy.

dystoniadiary.blogspot.com dystoniadiary.blogspot.com

Dystonia Diary

This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Friday, June 10, 2011. Fairly good this time. It's been about a month since my last Botox shots, and things are going fairly well. Not as good as I'd hoped, but there's been noticeable improvement. Although I still can't turn my head to the left when I walk, I can hold it mostly straight. It still pulls back, but not quite. Posted by I go by many names. @ 11:16 PM. Th only problem ...

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Hope for dystonia - Home

Call 410-486-2525 for a free consultation. Learn how we are helping people with dystonia, all over the world, improve the quality of their lives! Read inspiring stories of people with dystonia and blepharospasm who have improved the quality of their lives and found hope! Steve Zarren, President Feel Better LLC. Bruary 1993, I began blinking excessively and uncontrollably. My Focal Eyelid Dystonia Symptoms Intensify. Two Years and Not a Solution. A neurologist told me that the preferred treatment was eyel...