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Dystonia Diary

This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Friday, June 10, 2011. Fairly good this time. It's been about a month since my last Botox shots, and things are going fairly well. Not as good as I'd hoped, but there's been noticeable improvement. Although I still can't turn my head to the left when I walk, I can hold it mostly straight. It still pulls back, but not quite. Posted by I go by many names. @ 11:16 PM. Th only problem ...

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Dystonia Diary | dystoniadiary.blogspot.com Reviews
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This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Friday, June 10, 2011. Fairly good this time. It's been about a month since my last Botox shots, and things are going fairly well. Not as good as I'd hoped, but there's been noticeable improvement. Although I still can't turn my head to the left when I walk, I can hold it mostly straight. It still pulls back, but not quite. Posted by I go by many names. @ 11:16 PM. Th only problem ...
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1 dystonia diary
2 0 comments
3 botox time
4 more botox
5 what a mess
6 2 comments
7 a little off topic
8 1 comments
9 5 comments
10 about me
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dystonia diary,0 comments,botox time,more botox,what a mess,2 comments,a little off topic,1 comments,5 comments,about me,name,location,links,disorder org,google news,we move,care4dystonia,life in motion,st dytstonia,dystonia support,dystonia blogs
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Dystonia Diary | dystoniadiary.blogspot.com Reviews

https://dystoniadiary.blogspot.com

This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Friday, June 10, 2011. Fairly good this time. It's been about a month since my last Botox shots, and things are going fairly well. Not as good as I'd hoped, but there's been noticeable improvement. Although I still can't turn my head to the left when I walk, I can hold it mostly straight. It still pulls back, but not quite. Posted by I go by many names. @ 11:16 PM. Th only problem ...

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dystoniadiary.blogspot.com dystoniadiary.blogspot.com
1

Dystonia Diary: Botox time

http://dystoniadiary.blogspot.com/2011/05/botox-time.html

This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Tuesday, May 03, 2011. Got more than a dozen Botox shots this morning. I'm not sure how many more because I wasn't paying that much attention. All the shots were on the left side of my neck this time, so this treatment should turn out better. Posted by I go by many names. @ 9:31 PM. Links to this post:. I go by many names. California, United States. View my complete profile.

2

Dystonia Diary: May 2006

http://dystoniadiary.blogspot.com/2006_05_01_archive.html

This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Saturday, May 20, 2006. Since my 16 Botox shots, I expected to have great pain relief. And I expected to be able to hold my head more-or-less straight while walking, without having to use my hand. I also expected to get a good night's sleep. Well, about a month later, I have great pain relief. Posted by I go by many names. @ 2:27 PM. Links to this post. I go by many names.

3

Dystonia Diary: Most recent follow-up

http://dystoniadiary.blogspot.com/2010/03/most-recent-follow-up.html

This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Saturday, March 20, 2010. Sheesh. Oh well. All I can do is hope those muscles will eventually recover. I want an alternative to more meds! Anyway, I'm starting to ramble. I'm tired. Hopefully I'll have something more coherent to say next time. :). Posted by I go by many names. @ 3:13 PM. This comment has been removed by a blog administrator. Http:/ www.youtube.com/watch? This comme...

4

Dystonia Diary: Botox day tomorrow

http://dystoniadiary.blogspot.com/2010/02/botox-day-tomorrow.html

This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Monday, February 01, 2010. My Dr won't listen to the research I did because it was all online. He says you can't believe everything you see online because the internet is full of misinformation (duh! And that there are lots of people who want to take advantage of people like me. "People like me"? Posted by I go by many names. @ 6:04 PM. Links to this post:. I go by many names.

5

Dystonia Diary: More Botox

http://dystoniadiary.blogspot.com/2010/09/more-botox.html

This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Wednesday, September 01, 2010. Got about 14 shots of Botox a couple of days ago - mostly on the left side of my neck (the correct side).I'll know if it worked in 2 weeks. The deviation should be noticeably improved by then. Hopefully. My netbook battery is almost dead. Gotta go. Posted by I go by many names. @ 9:02 PM. Links to this post:. I go by many names.

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neuronswithdystonia.blogspot.com neuronswithdystonia.blogspot.com

Quest of a dystonic buddhist neuroscientist: July 2007

http://neuronswithdystonia.blogspot.com/2007_07_01_archive.html

Quest of a dystonic buddhist neuroscientist. Thoughts of a graduate student living with mitochondrial disease, the dilemmas of disability, science and consciousness. Saturday, July 07, 2007. Back to the Big Horns. Our family cabin is near Antelope Butte in the Shell Canyon. Shell Creek and the mountains were as beautiful as I remember, but unfortunately many of the trees have died from the mountain pine beetle. And much of the mountain is being cut down due to the beetle. Posted by Synaptic Jen @ 2:15 PM.

curecervicaldystonia.com curecervicaldystonia.com

Uncategorized - Cure Cervical Dystonia (Spasmodic Torticollis)

http://curecervicaldystonia.com/category/uncategorized

Cure Cervical Dystonia (Spasmodic Torticollis). My quest to shed light on – and cure – this mysterious phenomenon! Skip to primary content. Skip to secondary content. December 30, 2013. On the brink of the new year, I feel inspired to share some further points of view regarding the meaning of CD. We can disentangle willpower and self-expression by viewing these aspects from multiple angles, which are all correlated yet slightly different. Below I am giving you the various angles or sub-aspects that I...

curecervicaldystonia.com curecervicaldystonia.com

Perspectives - Cure Cervical Dystonia (Spasmodic Torticollis)

http://curecervicaldystonia.com/perspectives

Cure Cervical Dystonia (Spasmodic Torticollis). My quest to shed light on – and cure – this mysterious phenomenon! Skip to primary content. Skip to secondary content. After having put together the information in the section Phenomena of this blog, I went on to search for answers and perspectives. Below you will find my first findings. For most of them I will attach documents in the Documents section of this blog. Much of the information on trauma comes from the work of Dr. Robert Scaer. Human beings appa...

curecervicaldystonia.com curecervicaldystonia.com

cure cervical dystonia (spasmodic torticollis) without surgery

http://curecervicaldystonia.com/sample-page

Cure Cervical Dystonia (Spasmodic Torticollis). My quest to shed light on – and cure – this mysterious phenomenon! Skip to primary content. Skip to secondary content. Welcome to my blog about cervical dystonia! I have decided to start writing this blog for several reasons. In the spring of 2011, at the age of 43, I have been diagnosed with cervical dystonia (CD), a.k.a. spasmodic torticollis (ST). Also, I want to understand what the disorder means, from different points of view, on different levels.

curecervicaldystonia.com curecervicaldystonia.com

Cure Cervical Dystonia

http://curecervicaldystonia.com/author/cure5306

Cure Cervical Dystonia (Spasmodic Torticollis). My quest to shed light on – and cure – this mysterious phenomenon! Skip to primary content. Skip to secondary content. December 30, 2013. On the brink of the new year, I feel inspired to share some further points of view regarding the meaning of CD. We can disentangle willpower and self-expression by viewing these aspects from multiple angles, which are all correlated yet slightly different. Below I am giving you the various angles or sub-aspects that I...

curecervicaldystonia.com curecervicaldystonia.com

Cure Cervical Dystonia

http://curecervicaldystonia.com/page/2

Cure Cervical Dystonia (Spasmodic Torticollis). My quest to shed light on – and cure – this mysterious phenomenon! Skip to primary content. Skip to secondary content. Newer posts →. The mysteries of ST. May 4, 2012. ST is an enigmatic disorder indeed. Consider the following mysteries. Why does ST affect women twice as frequently as men? Why does the onset of ST occur most often just after 40? Why do many people with ST have sensory tricks? Why do spontaneous remissions occur? Continue reading →. I want t...

neuronswithdystonia.blogspot.com neuronswithdystonia.blogspot.com

Quest of a dystonic buddhist neuroscientist: January 2007

http://neuronswithdystonia.blogspot.com/2007_01_01_archive.html

Quest of a dystonic buddhist neuroscientist. Thoughts of a graduate student living with mitochondrial disease, the dilemmas of disability, science and consciousness. Tuesday, January 30, 2007. Posted by Synaptic Jen @ 4:26 PM. Links to this post. Friday, January 12, 2007. Mold moves in, we move out. Sometimes change is difficult, especially when it is so sudden. I am finding once again the importance of appreciating the small things in life. Posted by Synaptic Jen @ 4:02 PM. Links to this post.

neuronswithdystonia.blogspot.com neuronswithdystonia.blogspot.com

Quest of a dystonic buddhist neuroscientist: March 2007

http://neuronswithdystonia.blogspot.com/2007_03_01_archive.html

Quest of a dystonic buddhist neuroscientist. Thoughts of a graduate student living with mitochondrial disease, the dilemmas of disability, science and consciousness. Saturday, March 24, 2007. Before I aquired dystonia I enjoyed rock climbing in the Tetons of Wyoming with my father and brother. I started climbing and learning technical rock climbing skills with my Dad when I was very young. At age 13 I started taking classes every summer at Exum Mountain Guides. In the last several weeks and days dystonia.

neuronswithdystonia.blogspot.com neuronswithdystonia.blogspot.com

Quest of a dystonic buddhist neuroscientist: December 2006

http://neuronswithdystonia.blogspot.com/2006_12_01_archive.html

Quest of a dystonic buddhist neuroscientist. Thoughts of a graduate student living with mitochondrial disease, the dilemmas of disability, science and consciousness. Sunday, December 17, 2006. I recently read "Peace Is Every Step: The Path of Mindfulness in Everyday Life" by Thich Nhat Hanh. Posted by Synaptic Jen @ 8:37 PM. Links to this post. Monday, December 04, 2006. Baclofen is a GABA B. Baclofen acts like GABA, increasing activity of the GABA B. Posted by Synaptic Jen @ 7:41 PM. Links to this post.

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Dystonia Support Group of Greater Washington DC. Welcome to the Dystonia Support Group of Greater Washington DC. We are here to help individuals with dystonia and their care givers with. Conducts Support Group Meetings with guest speakers discussing topics of interest to dystonia affected individuals. Produces newsletters featuring events, speakers’ presentations and advances in research. Maintains a website to keep members informed. Participates in health expos. Legislative and Policy Advocacy.

dystoniadiary.blogspot.com dystoniadiary.blogspot.com

Dystonia Diary

This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Friday, June 10, 2011. Fairly good this time. It's been about a month since my last Botox shots, and things are going fairly well. Not as good as I'd hoped, but there's been noticeable improvement. Although I still can't turn my head to the left when I walk, I can hold it mostly straight. It still pulls back, but not quite. Posted by I go by many names. @ 11:16 PM. Th only problem ...

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Hope for dystonia - Home

Call 410-486-2525 for a free consultation. Learn how we are helping people with dystonia, all over the world, improve the quality of their lives! Read inspiring stories of people with dystonia and blepharospasm who have improved the quality of their lives and found hope! Steve Zarren, President Feel Better LLC. Bruary 1993, I began blinking excessively and uncontrollably. My Focal Eyelid Dystonia Symptoms Intensify. Two Years and Not a Solution. A neurologist told me that the preferred treatment was eyel...

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