ehlers-danlos.livejournal.com

Talk about EDS....

Navigate: ( Previous 10 Entries. Nov 8th, 2009. Meniscal repair and weight bearing? Any and all help appreciated, especially anecdata. Teh Lair v3.0. Land Downunder - Pennywise. Jun 27th, 2009. Australian/NZ EDS folks Website. LiveJournal is a great place and I don't mean to drag you away from it, but there's also another place now where Australians and Kiwis with EDS (Ehlers-Danlos Syndrome) are gathering to share information and support. The web address is http:/ edsaus.ning.com/. Hope to see you there!

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Talk about EDS.... | ehlers-danlos.livejournal.com Reviews

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Navigate: ( Previous 10 Entries. Nov 8th, 2009. Meniscal repair and weight bearing? Any and all help appreciated, especially anecdata. Teh Lair v3.0. Land Downunder - Pennywise. Jun 27th, 2009. Australian/NZ EDS folks Website. LiveJournal is a great place and I don't mean to drag you away from it, but there's also another place now where Australians and Kiwis with EDS (Ehlers-Danlos Syndrome) are gathering to share information and support. The web address is http:/ edsaus.ning.com/. Hope to see you there!

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Talk about EDS.... | ehlers-danlos.livejournal.com Reviews

https://ehlers-danlos.livejournal.com

Navigate: ( Previous 10 Entries. Nov 8th, 2009. Meniscal repair and weight bearing? Any and all help appreciated, especially anecdata. Teh Lair v3.0. Land Downunder - Pennywise. Jun 27th, 2009. Australian/NZ EDS folks Website. LiveJournal is a great place and I don't mean to drag you away from it, but there's also another place now where Australians and Kiwis with EDS (Ehlers-Danlos Syndrome) are gathering to share information and support. The web address is http:/ edsaus.ning.com/. Hope to see you there!

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ehlers-danlos.livejournal.com

1

Nationwide Registry/Study - Talk about EDS....

https://ehlers-danlos.livejournal.com/14240.html

Nationwide Registry/Study - Talk about EDS. Jan 8th, 2008. It focuses on preventing aortic aneurysms for a few different genetic conditions. The EDNF is affiliated with this project, but I don't know much more than what's on the GenTAC. Site Here's information on joining the registry. Including contact info for the enrollment centers in New York, Maryland, Pennsylvania, Texas and Oregon.

2

We're famous! - Talk about EDS....

https://ehlers-danlos.livejournal.com/13235.html

Sep 17th, 2007. Hey kiddies, we made it into the New England Journal of Medicine! Sin Park; Out in the Styx. Add It Up - Violent Femmes. September 17th, 2007 04:58 am (UTC). Maybe someday doctors will know what the hell to look for long before someone suffers as much as I have. September 17th, 2007 11:56 am (UTC). Agree - Doctors need to start recognizing unusual symptoms/signs/findings/results whatever is out of the ordinary - as a need to investigate further before treating as usual. N.

3

2011 - Talk about EDS....

https://ehlers-danlos.livejournal.com/calendar

2011 - Talk about EDS.

4

EDS primer - Talk about EDS....

https://ehlers-danlos.livejournal.com/14565.html

EDS primer - Talk about EDS. Jan 14th, 2009. Just a heads-up, for y'all:. I recently posted on my journal an article about EDS and massage therapy here. Over on my journal. It's mostly designed to be something you can print off and hand over to a new massage therapist who has no background on EDS but it does cover some of the benefits of massage therapy and bodywork in general for those who have EDS. Hopefully some of y'all will find this helpful. :).

5

Australian/NZ EDS folks Website - Talk about EDS....

https://ehlers-danlos.livejournal.com/14667.html

Australian/NZ EDS folks Website - Talk about EDS. Jun 27th, 2009. Australian/NZ EDS folks Website. LiveJournal is a great place and I don't mean to drag you away from it, but there's also another place now where Australians and Kiwis with EDS (Ehlers-Danlos Syndrome) are gathering to share information and support. The web address is http:/ edsaus.ning.com/. So I've appointed myself evangelist and I'm spreading the news :). Hope to see you there!

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ehlers-danlos.blogspot.com

The Ehlers-Danlos Blog

A resource for those afflicted with Ehlers-Danlos Syndrome and their families. Sunday, November 11, 2012. US NEEDS 'REAL' NATIONAL HEALTH CARE, BUT CANADIAN HORROR STORIES KEEP TRUE REFORM AT BAY. For Canadian Erika Crawford, the pain of Ehlers-Danlos was exacerbated by both Chiari Malformation—and a seemingly uncaring Ontario health care bureaucracy, reports the Toronto Sun. Schools and churches are rallying with fundraisers. While health ministry officials insist the surgery can be done here, those fam...

ehlers-danlos.egetforum.se

EDS-FORUM • Index

Ehlers-Danlos syndrom Riksförbund Sverige. RSS 2 Feed Forum. RSS 2 Feed Bifogningar. Senaste besöket: lör 8 aug, 2015 3:51. Aktuellt datum och tid: lör 8 aug, 2015 3:51. Senaste besöket: lör 8 aug, 2015 3:51 ]. Man måste vara registrerad (ovan till vänster under Registrera) för att göra inlägg i EDS-forumet. Tis 4 nov, 2008 9:54. Ehlers-Danlos Riksförbunds forumregler. Läs här innan du gör ett inlägg. Tor 11 dec, 2008 21:14. Här finns information om vissa funktioner i forumet. Ons 16 jan, 2013 16:11.

ehlers-danlos.fi

Suomen Ehlers-Danlos Yhdistys

Suomen Ehlers-Danlos yhdistys ry. On harvinainen kromosomivauriosta johtuva sidekudossairaus joka on usein hyvin invalidisoiva mutta ei juurikaan näy ulospäin. EDS on multisysteemisairaus, jossa krooninen kipu, päivittäiset luksaatiot, autonomisen hermoston, ruoansulatuselimistön, koordinaation, proprioseptiikan, aistielimistön ja liikkumisen vaikeudet ovat sairastajalleen arkipäivää. Tietoa sairaudesta ja osaavia auttajia on vähän. EDS jää usein diagnosoimatta ja hoito on hajanaista. EDS...2015 Suomen E...

ehlers-danlos.geef.nl

Geef.nl

Maak je eigen actie pagina. Hoe het precies werkt. Maak je eigen actie pagina. Actuele acties met een recente donatie. Hieronder een overzicht met de meest actuele acties waaraan gedoneerd is. Klik of zoek je kennis met een actie en ondersteun hem of haar bij het realiseren van hun actie. Wil je zelf in actie komen voor een goed doel? Registreer jezelf, maak je eigen geefpagina en deel deze met vrienden en haal direct geld op voor jouw favoriete goede doel. Patricia Gieling - Veluwenkamp. EDS is een zeld...

ehlers-danlos.livejournal.com

Talk about EDS....

Navigate: ( Previous 10 Entries. Nov 8th, 2009. Meniscal repair and weight bearing? Any and all help appreciated, especially anecdata. Teh Lair v3.0. Land Downunder - Pennywise. Jun 27th, 2009. Australian/NZ EDS folks Website. LiveJournal is a great place and I don't mean to drag you away from it, but there's also another place now where Australians and Kiwis with EDS (Ehlers-Danlos Syndrome) are gathering to share information and support. The web address is http:/ edsaus.ning.com/. Hope to see you there!

ehlers-danlos.nl

Vereniging Ehlers-Danlos Patienten

HEDS en HSD criteria. ALV - Algemene Leden Vergadering. Aanmelden als nieuw lid. VED in uw testament. Op deze website vindt u informatie over het Syndroom van Ehlers-Danlos (EDS). Tweets van @Ver EDS. Klein kaartje met informatie over uw type Ehlers-Danlos inEngels and Nederlands of Frans and Nederlands. Brochure over EDS voor fysiotherapeuten.Dit artikel is tijdelijk uitverkocht! Verenigingbureau: Gooimeer 4-15 - 1411 DC - Naarden. Tel: 0900 - INFO VED (0900 - 4636 833).

ehlers-danlos.org

The Ehlers-Danlos Support UK – Support for people touched by the Ehlers-Danlos syndromes

Freephone helpine: 0800 907 8518. Hypermobile EDS and hypermobility spectrum disorders. How to get assessed for hEDS or HSD. How to get assessed for a rare type of EDS. Genetic counselling for the Ehlers-Danlos syndromes. 8230;more on diagnosis. Conditions linked to EDS. Postural tachycardia syndrome (PoTS). 8230;more conditions linked to EDS. Your child and the Ehlers-Danlos syndromes. Gastrointestinal problems in children with Ehlers-Danlos syndrome. 8230;more on children. Central and Greater London.

ehlers-danlos.pl

Zespół Ehlersa-Danlosa

Mamy przetłumaczony kolejny dokument! W zakładce Artykuły medyczne. Pojawiło się tłumaczenie zaświadczenia lekarskiego dotyczącego typu hipermobilnego, zachęcamy do zapoznania się z dokumentem. Udostępnij w usłudze Twitter. Udostępnij w usłudze Facebook. Udostępnij w serwisie Pinterest. Mamy nadzieję, że ta strona pomoże zarówno chorym w dotarciu do kompetentnych lekarzy i rehabilitantów oraz w codziennym radzeniu sobie z ograniczeniami jak i ich bliskim w zrozumieniu natury problemu. Z czasem, wraz ...

ehlers-danlos.ru

Синдром Элерса-Данло | он же — синдром Элерса-Данлоса (Ehlers-Danlos Syndrome)

Он же синдром Элерса-Данлоса (Ehlers-Danlos Syndrome). 11 Авг, 2016. Найти подходящего врача зачастую является довольно сложным делом, особенно при таком заболевании, как синдром Элерса-Данло. Из этой статьи Вы узнаете важные нюансы, которые помогут Вам выбрать врача. 9 Июн, 2016. Артроз является очень частым проявлением синдрома Элерса-Данло, а также других видов дисплазии соединительной ткани. При этом заболевании медленно разрушаются суставные хрящи, что приводит к постоянным болям в суставе. Представ...

ehlers-danlos.se

Ehlers-Danlos syndrom riksförbund

Om EDS och HSD. På denna sida kan du hitta information om förbundets verksamhet och de olika Ehlers-Danlos-syndromen samt HSD (Hypermobility spectrum disorders). Informationen riktar sig till diagnosbärare och anhöriga, men även till dig som arbetar inom vården. För den som vill prata om EDS/HSD eller har funderingar finns våra kontaktpersoner som är utspridda över hela landet. Till dem kan du ringa eller mejla oavsett om du är medlem i förbundet eller inte. Här hittar du dem: kontaktpersoner. Det slutli...