Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story
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Ellie's Story | ellieedayoung.blogspot.com Reviews
https://ellieedayoung.blogspot.com
Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story
ellieedayoung.blogspot.com
Ellie's Story: September 2012
http://ellieedayoung.blogspot.com/2012_09_01_archive.html
Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story. Being happy doesnt mean that everything is perfect. It means that you have decided to look beyond the imperfections. Wednesday, September 26, 2012.
Ellie's Story: May 2012
http://ellieedayoung.blogspot.com/2012_05_01_archive.html
Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story. Being happy doesnt mean that everything is perfect. It means that you have decided to look beyond the imperfections. Saturday, May 12, 2012. I even ...
Ellie's Story: Bitter Sweet
http://ellieedayoung.blogspot.com/2012/09/bitter-sweet.html
Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story. Being happy doesnt mean that everything is perfect. It means that you have decided to look beyond the imperfections. Wednesday, September 26, 2012.
Ellie's Story: April 2012
http://ellieedayoung.blogspot.com/2012_04_01_archive.html
Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story. Being happy doesnt mean that everything is perfect. It means that you have decided to look beyond the imperfections. Monday, April 30, 2012. I did a...
Ellie's Story: 5.. How did we get here??
http://ellieedayoung.blogspot.com/2013/08/5-how-did-we-get-here.html
Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story. Being happy doesnt mean that everything is perfect. It means that you have decided to look beyond the imperfections. Monday, August 26, 2013. Howeve...
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18
ourlittledillpickle.blogspot.com
Our Little Pickle: May 2012
http://ourlittledillpickle.blogspot.com/2012_05_01_archive.html
Wednesday, May 16, 2012. A dose of reality. This scared me to death and to be honest it made me think, "is this going to be the horrible seizure that takes him from us? It reminded me how fragile Dylan really is and it made me sad. I was once again asking, "why did this happen? Why did our child get diagnosed with this rare syndrome? Subscribe to: Posts (Atom). Make a donation directly to Dylan's trust. To read about Dylan's medical diagnosis click HERE. A dose of reality. View my complete profile.
Karly's World: Busy Days...And Make a Wish Update!
http://4karlysworld.blogspot.com/2010/03/busy-daysand-make-wish-update.html
This blog is to keep family and friends updated on the things going on in Karly's World. Karly is our daughter who was diagnosed with Wolf Hirschorn Syndrome (4P-). She is 5 years old and is such a loveable little girl. Busy Days.And Make a Wish Update! PA, United States. View my complete profile. Monday, March 22, 2010. Busy Days.And Make a Wish Update! Another day at the park! Happy as can be. Ethan met this favorite Hershey Bears player last night. Autograph and all. March 22, 2010 at 2:01 PM.
Karly's World: February 2011
http://4karlysworld.blogspot.com/2011_02_01_archive.html
This blog is to keep family and friends updated on the things going on in Karly's World. Karly is our daughter who was diagnosed with Wolf Hirschorn Syndrome (4P-). She is 5 years old and is such a loveable little girl. Some of my favorites. PA, United States. View my complete profile. Wednesday, February 16, 2011. Some of my favorites. Karly riding rides at Hershey Park this past summer. Hershey, PA Home of the 2014 4P- Support Group National Conference! Family Time at PENN STATE! No need to say anymore.
Karly's World: Life...
http://4karlysworld.blogspot.com/2011/03/life.html
This blog is to keep family and friends updated on the things going on in Karly's World. Karly is our daughter who was diagnosed with Wolf Hirschorn Syndrome (4P-). She is 5 years old and is such a loveable little girl. PA, United States. I am the proud mom of Ethan (9 yrs. old) and Karly (5 yrs old). My wonderful husband is Jim and we have been married for 6 years. Karly is our special little girl. She has Wolf-Hirschhorn Syndrome (WHS) an extremely rare chromosome disorder. View my complete profile.
MissFloss: October 2011
http://missfloss.blogspot.com/2011_10_01_archive.html
Ramblings on being a wife, mother and discombobulated woman in modern Melbourne. Sunday, October 30, 2011. My top five style wanna-be's. Its Sunday and a day to faff about. Jack and the husband are off my hands for the day, Nellie is just about asleep, and before I attack my half-made skirt project in an attempt to complete it (on this perfect Sunday for sewing - cold and rainy! I thought I would share a list. Click here for more ramblings! Posted by Rachelle B. Links to this post. Posted by Rachelle B.
Holly's journey: December 2010
http://prue-hollygrace.blogspot.com/2010_12_01_archive.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Friday, December 3. Happy First Birthday my beautiful girl. I can't belive we got her here! Its been such an amazing, joyous, heart breaking, scarey year. I just don't know how many adjectives I can use! Holly was quite unsettled throughout the day. I really think that it was all the noise and everyone getting up in her face. She just got grumpy and she did a ...She d...
Holly's journey: Hospital
http://prue-hollygrace.blogspot.com/p/hospital.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. L was bringing back photos for me. I had been told I wasn't able to go and see her until the spinal had worn off and I was able to get myself into a wheel chair. Holly couldn't leave the nursery and the bed I was in wasn't going to fit in! So by 3pm, come hell or high water I was going to get into that chair! She was home and the learning began. Big Brother, Little Si...
Holly's journey: Up and downs of the last few months...
http://prue-hollygrace.blogspot.com/2012/02/up-and-downs-of-last-few-months.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Wednesday, February 22. Up and downs of the last few months. What a journey we have been on in the last few months! I'm really not sure if at the time I last posted Holly had her PEG insertion. Anyway, in September 2011 she had her PEG inserted and her hips released. She recovered really well from that. That was until about a month ago. I had sent L home for some slee...
Holly's journey: November 2010
http://prue-hollygrace.blogspot.com/2010_11_01_archive.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Wednesday, November 17. We got to the hospital pretty quick, she was just lethargic in the ambulance, but by the time we waited for the doctors to come around and check her out, she was totally fine. She was her usual happy self, just wanting dinner! Saturday, November 13. Far out its been ages! I can't believe its been since September that I posted last. Crazy. Benja...
Holly's journey: Some weeks are really tough...
http://prue-hollygrace.blogspot.com/2011/04/some-weeks-are-really-tough.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Tuesday, April 26. Some weeks are really tough. Be putting her in her chair more often, I should. Be putting her arm and leg braces on more often, I should. Put her in her corner chair more often, I should. Feed her orally more often so she doesn't lose the ability to do so, I should. Big brother, Little sister. April 26, 2011 at 7:12 PM. September 11, 2011 at 2:31 PM.
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Blogue de elliee731 - Elliiee!! - Skyrock.com
Mot de passe :. J'ai oublié mon mot de passe. Bienvenue sur mon sky! Laisser bcp de com's! Mise à jour :. Abonne-toi à mon blog! Bienvenue sur mon blog! Ici vous aller trouver des photos des personnes que jaime et plein dautre chose! Si vous etes ici pour lacher des Bad Call comme comm'ss bin.crisser votre camp! Sur cette article, laisser vos sky et votre msn! Ou poster avec :. Retape dans le champ ci-dessous la suite de chiffres et de lettres qui apparaissent dans le cadre ci-contre. Ou poster avec :.
Ellie Eagle
Skip to main content. Your Personal Guide to Health and Wellness. A new you is waiting. Learn the secrets to healthy living. Find your healthy balance. ENERGY. FLEXIBILITY. FITNESS. Everyone deserves to live a happy, healthy life. Whether you are struggling with weight issues, time management, relationships, need guidance finding exercise that works for you, or are looking to overhaul your diet, Ellie can help. Contact Ellie today to set up a free consult. The world's leading Health Coach Training Program.
EllieEarhart | Life is a lifestyle.
Life is a lifestyle. Not On the News. Musings of a Writer’s Mind. 10 Things You Should Know About the Middle East. September 24, 2014. September 26, 2014. With ISIS, the Israel/Palestinian Conflict, and more headlining the news so often, here are a few things you should know about the region. Continue reading →. September 24, 2014. September 24, 2014. It’s late. I’m awake and wound up, my mind full of ideas and travel schemes (as usual! Continue reading →. The Old City Was Empty, Just Like Their Hope.
ellieeatseducated.wordpress.com
Ellie Eats Educated | Explores, Explains, Engineers, Etc.
Explores, Explains, Engineers, Etc. 3-Ingredient Reese’s Fudge. November 19, 2014. The first recipe that I’m going to start off with is definitely not considered a clean or healthy recipe but it is so delicious and so easy that I just couldn’t resist making it this morning! 1 (14oz) can sweetened condensed milk. 3 cups milk chocolate chips. 1 (12oz) bag mini Reese’s. 4 Allow fudge to set up on the countertop or in the refrigerator. Once firm cut and enjoy. I told you it was a simple easy recipe but I jus...
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Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')" class="mi". Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')". Deviant for 5 Years. This deviant's full pageview. Last Visit: 185 weeks ago. This is the place where you can personalize your profile! By moving, adding and personalizing widgets. Why," you ask?
Ellie's Story
Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story. Being happy doesnt mean that everything is perfect. It means that you have decided to look beyond the imperfections. Sunday, December 29, 2013.
ellie edwards
Monday, 21 March 2011. As this is the first suggestion when searching for Ellie Edwards on Google, I thought I better tell you that this is a little out of date now. My new blog is here. And this is my website. Though do feel free to have a peruse through this blog too as it documents my final year at uni pretty well. Monday, 7 June 2010. To everyone who saw the show. Also check out all the other Goldsmithy designery people because they are ace). Tuesday, 18 May 2010. Wednesday, 28 April 2010.
EllieEDWARDS's blog - EllieEDWARDS - Skyrock.com
12/10/2014 at 10:13 AM. 12/10/2014 at 10:17 AM. Subscribe to my blog! 8734; C'est en te lançant une PlayStation dans la gueule que je te console ∞. Douce - Généreuse - Timide. Don't forget that insults, racism, etc. are forbidden by Skyrock's 'General Terms of Use' and that you can be identified by your IP address (66.160.134.14) if someone makes a complaint. Please enter the sequence of characters in the field below. Posted on Sunday, 12 October 2014 at 10:17 AM. Post to my blog. Here you are free.
ellieedwardsdesign.wordpress.com
ellieedwardsdesign | Drawings, Doings & Designings
Drawings, Doings and Designings. January 7, 2014. December 30, 2013. July 8, 2013. March 22, 2013. January 23, 2013. August 8, 2012. Here’s some work from a personal project I recently worked on:. August 3, 2012. Because it’s always the right time for a cuppa. August 2, 2012. Here’s a little bit of recent work for graze.com. That’s where I work, it’s brilliant) to tell grazers about the healthy benefits of our snacks. If you’d like to try a box for free (yes, FREE! January 24, 2012. April 14, 2011.
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