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My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome

My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome. My sweet little Emmie Bug! A second of stillness. Words can not begin to describe the beauty she has. God Bless these silent angels. Fundraising, Fundraising, Fundraising. Boston here we come! I am that little girls voice and her advocate! I can not and will just sit by and "watch and wait" while her little body destroys itself without giving this a fight! She WANTS to walk, you can see it in her little eyes and on her face! I love her ...

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My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome | emmiebugsstory.blogspot.com Reviews

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My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome. My sweet little Emmie Bug! A second of stillness. Words can not begin to describe the beauty she has. God Bless these silent angels. Fundraising, Fundraising, Fundraising. Boston here we come! I am that little girls voice and her advocate! I can not and will just sit by and watch and wait while her little body destroys itself without giving this a fight! She WANTS to walk, you can see it in her little eyes and on her face! I love her ...

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My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome | emmiebugsstory.blogspot.com Reviews

https://emmiebugsstory.blogspot.com

My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome. My sweet little Emmie Bug! A second of stillness. Words can not begin to describe the beauty she has. God Bless these silent angels. Fundraising, Fundraising, Fundraising. Boston here we come! I am that little girls voice and her advocate! I can not and will just sit by and "watch and wait" while her little body destroys itself without giving this a fight! She WANTS to walk, you can see it in her little eyes and on her face! I love her ...

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emmiebugsstory.blogspot.com

1

My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome: Geneticist

http://emmiebugsstory.blogspot.com/2010/06/geneticist.html

My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome. I am that little girls voice and her advocate! I can not and will just sit by and "watch and wait" while her little body destroys itself without giving this a fight! I can not go to bed at night knowing that I did not do everything in my power to help improve her quality of life and keep her as healthy as I possibly can for as long as I can! She WANTS to walk, you can see it in her little eyes and on her face! What can I get to help her?

2

My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome: Time to see the Geneticist

http://emmiebugsstory.blogspot.com/2010/06/time-to-see-geneticist.html

My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome. Time to see the Geneticist. My aunt is taking Emmaleigh to see the geneticist today Monday, June 14th in Pittsburgh, PA. She did not have a good weekend and my aunt says she is constantly screaming in pain. She also says that it is absolute torture to watch your child suffer as their body is falling apart. I am anticipating hearing what the doctor will tell my aunt. June 15, 2010 at 1:12 PM. Do you guys have the Rett Syndrome Handbook?

3

My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome: A small time line

http://emmiebugsstory.blogspot.com/2010/06/small-time-line.html

My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome. A small time line. Here are a few pictures of little Emmie when she was a baby. From what I have learned from my Aunt, she was a very happy and healthy baby girl. She was developing right on track up until her first birthday. No interest in getting up and walking on her own. Upon returning home to PA, my aunt began investigating her conditions a little further. From that point on Emmaleigh. Began seeing doctors and specialists. She ...

4

My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome

http://emmiebugsstory.blogspot.com/2010/08/well-friends-it-has-been-long-time.html

My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome. Words can not begin to describe the beauty she has. God Bless these silent angels. August 24, 2010 at 6:05 AM. My Brooklyn has Rett Syndrome too - she is five (just started kindergarten! I look forward to getting to know you and your angel through your blog! You can learn more abour Brooklyn at www.brooklynbutler.blogspot.com. Hugs to you today! Subscribe to: Post Comments (Atom). View my complete profile.

5

My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome: Boston here we come!

http://emmiebugsstory.blogspot.com/2010/06/boston-here-we-come.html

My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome. Boston here we come! June 27, 2010 at 6:19 AM. I hope that it brings answers, comfort, and the feeling of community we had the first time we were among a group that understands Rett. JBS and Chickadee practically 3yrs (deletion of the third and partial fourth). Subscribe to: Post Comments (Atom). View my complete profile. Picture Window template. Powered by Blogger.

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My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome

My Blog Dedicated to Emmaleigh and Her Fight Against Retts Syndrome. My sweet little Emmie Bug! A second of stillness. Words can not begin to describe the beauty she has. God Bless these silent angels. Fundraising, Fundraising, Fundraising. Boston here we come! I am that little girls voice and her advocate! I can not and will just sit by and "watch and wait" while her little body destroys itself without giving this a fight! She WANTS to walk, you can see it in her little eyes and on her face! I love her ...

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