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CONTACTS AT ENMC.ORG

European Neuro Muscular Centre

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European Neuro Muscular Centre

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ENMC | enmc.org Reviews

https://enmc.org

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enmc.org enmc.org
1

ENMC

http://www.enmc.org/patient-participation

The patient voice is being heard at ENMC workshops! The ENMC encourages that persons directly involved with a neuromuscular condition participate in ENMC workshops. They are the  experts with a neuromuscular condition on a day-to-day basis. They can share their daily experiences in a workshop and explain to researchers and clinicians what priorities should be given to research. In order to explain their active role as a participant, the ENMC has developed a Patient Toolkit for patients. To be present...

2

ENMC

http://www.enmc.org/young-scientists-program

Purpose of the Young Scientist program is to enable young researchers, clinicians and health care professionals to participate in an ENMC workshop related to their field of expertise, with the aim of giving them the opportunity to obtain state-of-the-art scientific information and networking opportunities, promoting the concept of the ENMC and making the field (more) attractive for young professionals. We wish you good luck and in case of questions please don t hesitate to contact the ENMC.

3

ENMC

http://www.enmc.org/organisation

ENMC: a worldwide network. Most neuromuscular disorders are rare (orphan) diseases, meaning that fewer than 1 in 2,000 people are affected. They all cause a weakening of muscles, which could lead to tremendous disability. Because of this, international collaboration is extremely important to accelerate our knowledge and discovery of new medicines in the field of neuromuscular diseases. The European Neuromuscular Centre (ENMC).  more than 200 workshops on its rà sumà ,.  an active network of over 2500...

4

ENMC

http://www.enmc.org/publications

One of the ENMC s main values is transparency. We facilitate discussions between clinicians and researchers about their most recent results and opinions at our workshop within a confidential setting, and at the same time we would like to inform other people who are interested in the workshop topics. Therefore, after each workshop both a lay report and a scientific full paper will be written by the organizers of the workshop. 124; enmc@enmc.org. 124; 31 35 5480481 | The Netherlands | Route.

5

ENMC

http://www.enmc.org/news

ENMC : Latest News. NEWS: Ionis Pharmaceuticals has joined the ENMC Company Forum! Please read more about the Company Forum here. Next workshop application deadline        15 September 2016. ENMC workshop applications can be submitted the whole year through. The deadline for sending in applications for workshops 15 September, 2016. The forms to be completed for a workshop application can be downloaded via Â. May 5-8, 2017. Global Conference on MyositisÂ. Potomac, Maryland, USA.

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mfn2projet.wordpress.com mfn2projet.wordpress.com

Le 197 ème atelier de travail organisé par l’ENMC sur la Mitofusine 2 – Projet Mitofusine 2 Blog

https://mfn2projet.wordpress.com/2015/07/11/le-197-eme-atelier-de-travail-organise-par-lenmc-sur-la-mitofusine-2

Accéder au contenu principal. Projet Mitofusine 2 Blog. Le 197 ème atelier de travail organisé par l’ENMC sur la Mitofusine 2. Nos amis de l’Association CMT France. Nous ont fait parvenir des nouvelles importantes qui regardent le 197 ème workshop (ou atelier de travail) organisé par l’ENMC, intitulé Maladies neuromusculaires de fusion et de fission mitochondriale mécanismes moléculaires impliquant OPA1 et MFN2 et stratégies thérapeutiques , qui a eu lieu du 26 au 28 avril 2013 dans les Pays-Bas. Cliquez...

csma.org.ua csma.org.ua

Children with Spinal Muscular Atrophy

http://csma.org.ua//index.html

Дети со спинальной мышечной атрофией. Впервые на нашем рынке стали доступны вакуумные подушки и изделия для коррекции положения. В выставочном зале вы можете ознакомится с каталогом, попробовать готовое изделие, получить консультацию и сделать заказ. Фонд обращается ко всем членам Фонда, участникам Реестра пациентов со СМА, неравнодушным оказать финансовую помощь. Мы делаем все, но без вашей помощи не обойтись. Можно воспользоваться он-лайн формой платежа в любой валюте. We sincerely thank all recognized...

myofibrillar-myopathies.com myofibrillar-myopathies.com

Pages - usefullinks

http://www.myofibrillar-myopathies.com/Pages/usefullinks.aspx

Turn on more accessible mode. Skip to main content. Turn off more accessible mode. Molecular Pathogenesis of Myofibrillar Myopathies. FOR 1228: a DFG multilocation research unit. News and Job Offers. Deutsche Gesellschaft für Neurologie. European Neuro Muscular Centre.

treat-nmd.eu treat-nmd.eu

TREAT-NMD : Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world.

http://www.treat-nmd.eu/home.php

All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?

mus0001.hosting.sknetworx.net mus0001.hosting.sknetworx.net

Muskelkranke Stmk

http://mus0001.hosting.sknetworx.net/index.php/partner-links.html

Steirische Gesellschaft für Muskelkranke. Sie sind hier: Home. ÖGM - Österreichische Gesellschaft für Muskelkranke. Landesgruppe Oberösterreich der ÖGM. Marathon. Verein von Eltern und Angehörigen gegen Muskelkrankheiten bei Kindern. European Neuro Muscular Centre: das europäische. Neuro-muskuläre Zentrum in den Niederlanden. Deutsche Gesellschaft für Muskelkranke. Myotobuläre Myopathie - Selbsthilfevereinigung für Familien. Deutsches Netzwerk für mitochondriale Erkrankungen.

mitofusin2projectblog.wordpress.com mitofusin2projectblog.wordpress.com

The 197th Laboratory ENMC about Mitofusin 2 – Mitofusin 2 Project Blog

https://mitofusin2projectblog.wordpress.com/2015/07/10/the-197th-laboratory-nmc-about-mitofusin-2?share=email

Mitofusin 2 Project Blog. The 197th Laboratory ENMC about Mitofusin 2. A very interesting news has been brought to our own attention by CMT France Association. It concerns the 197th Laboratory ENMC entitled “Neuromuscular disorders of mitochondrial fusion and fission Molecular mechanisms and therapeutic strategies”. Which took place in April 2013 in Naarden, Netherlands (the report of which has been recently published). Clinical registry of well-characterised patient cohorts for the purpose of future cli...

mdachina.org mdachina.org

同类网站链接

http://www.mdachina.org/md_links.asp

European Alliance of Neuromuscular Disorders Associations. European Neuro Muscular Centre - ENMC. Muscular Dystrophy Campaign - N. Ireland. Muscular Dystrophy Campaign - UK. Muscular Dystrophy Association - USA. Muscular Dystrophy Association - Canada. Muscular Dystrophy Association - France. Muscular Dystrophy Association - Australia. Muscular Dystrophy Association - Italy. The Jennifer Trust for Spinal Muscular Atrophy - UK. GeneClinics - Myothonic Dystrophy. Ask NOAH about Muscular Dystrophy.

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Home page - Ente Nazionale Mario di Carpegna

Privacy Policy – Uso del Cookie. Ente Mario di Carpegna. Privacy Policy – Uso del Cookie. L’Associazione Ente Nazionale Mario di Carpegna ha lo scopo di sostenere materialmente e promuovere lo sviluppo dell’AGESCI – Associazione Guide e Scouts Cattolici Italiani, nella sua opera di educazione secondo lo spirito e le caratteristiche del metodo scout. L’Ente vuole contribuire alla formazione della persona secondo i principi ed il metodo dello scautismo ideato da Baden-Powell.

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European Network of Maritime Clusters | ENMC

European network of maritime clusters. What we stand for. What is European Blue Economy worth? The European Network of Maritime Clusters (ENMC) welcomes the recent call for tenders regarding the study on the establishment of a framework for processing maritime economic data in Europe. The ENMC, together with DGMare, is one of the two. ENMC delivered two key messages to EC and EP. ENMC delivered two key messages on Blue Growth to European Commission and European. Opening conference - EP Intergroup Seas.

enmc.klasna.com enmc.klasna.com

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Готуємось до 2015-2016 н.р. Статті, бюлетені, вісники. Професійні конкурси для педагогів. Інтелектуальні конкурси для учнів. Конкурси, турніри, змагання, фестивалі. Школи підвищення професійної компетентності. Запам'ятати на цьому комп'ютері. 10 серп. 2015. Пам‘ятка щодо правил поведінки (порядку дій) населення у разі виявлення підозрілого об‘єкта, вибухонебезпечного предмета. 16 лип. 2015. 25 річниця ухвалення Декларації про державний сувернітет України. 22 черв. 2015. 17 черв. 2015. 17 черв. 2015.

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ENMC

15 March 2018: ENMC submission deadline for workshop applications! New submission deadline of workshop applications :. 124; enmc@enmc.org. 124; 31 35 5480481 | The Netherlands | Route. 124; Privacy policy.

enmc.pt enmc.pt

ENMC - Entidade Nacional para o Mercado de Combustíveis

BALCÃO ÚNICO. Estrutura Funcional e Organizacional. Regulamentos e Códigos. Informação Financeira. Mercado de Combustíveis. Pesquisa e Exploração de Recursos Petrolíferos. Arquivo de Notícias. Calendário de Publicações/Eventos. Inquérito de Satisfação para Particulares. Inquérito de Satisfação para Empresas. Mercado de Combustíveis. Exploração de Recursos Petrolíferos. A ENMC é a entidade responsável pela regulação, supervisão, controlo e fiscalização das atividades de ...218;ltimas Notícias. A ENMC real...

enmca.eu enmca.eu

www.enmca.eu

Skip to main content. Europäisches Netzwerk der für die Berufsanerkennung von Ärztinnen/Ärzten zuständigen Behörden. Réseau Européen des Autorités Compétentes Médicales. European Network of Medical Competent Authorities. ENMCA response to the EC regulated professions consultation. ENMCA Position paper on Common training frameworks and tests. ENMCA response to the updated Implementing Act - 25 April 2015. Third ENMCA Response - Need for clarifications. 20 November 2017 - BIG-register The Hague, Netherlands.

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