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Wishing for Elephants..Dylan's Life with SMA: Introducing Nicholas John

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Wishing for Elephants.Dylan's Life with SMA. Monday, January 28, 2013. It has been a really long time since I have blogged. The last few months have been extremely busy here at the Cuevas house. We now have a new little member to our family and his name is Nicholas John. Nicholas was born on October 24, 2012 and weighed a wopping 9 lbs 5 oz! Yes he was delivered naturally. I won't go into the details of his birth but lets just say I am glad he is on the outside. Photo by Elizabeth Kristin Photography.

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Wishing for Elephants..Dylan's Life with SMA: April 2012

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Wishing for Elephants.Dylan's Life with SMA. Thursday, April 19, 2012. Third times a charm. At Christmas, Ron asked me what I would like as a gift. I told him I wanted a baby. He asked me if I would like diamond earrings instead. 1 in 4 chance that the baby would not have SMA and not be a carrier. 2 in 4 chance that the baby would not have SMA and would be an SMA carrier. 1 in 4 chance that the baby would have SMA. Mom, is this baby going to walk or is he going to be in a wheelchair? Me and my baby bump.

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Wishing for Elephants..Dylan's Life with SMA: January 2013

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Wishing for Elephants.Dylan's Life with SMA. Monday, January 28, 2013. It has been a really long time since I have blogged. The last few months have been extremely busy here at the Cuevas house. We now have a new little member to our family and his name is Nicholas John. Nicholas was born on October 24, 2012 and weighed a wopping 9 lbs 5 oz! Yes he was delivered naturally. I won't go into the details of his birth but lets just say I am glad he is on the outside. Photo by Elizabeth Kristin Photography.

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Wishing for Elephants..Dylan's Life with SMA: Dear Disney, accessible for some does not mean accessible for all.

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Wishing for Elephants.Dylan's Life with SMA. Wednesday, September 25, 2013. Dear Disney, accessible for some does not mean accessible for all. My husband and I have lived almost 10 years trying to adapt things to make them accessible to suit our son's needs. I feel we have been relatively successful in our quest but it is not without a struggle and also without some disappointment. What does abuse of the Guest Services mean for those who truly need it? September 25, 2013 at 2:32 PM. Team Run 4 Owen.

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Wishing for Elephants..Dylan's Life with SMA: April 2011

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Wishing for Elephants.Dylan's Life with SMA. Thursday, April 14, 2011. How do you basically bring your child back when their numbers are telling you they are gone? How do you kick into gear and remember to do all the right things? How do you mentally recover from basically seeing your child lifeless and colorless in front of you? Prayers to all the sick SMA kids/adults out there. Subscribe to: Posts (Atom). The Gwendolyn Strong Foundation. The SMA Clinic at Columbia. Team Run 4 Owen.

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Wishing for Elephants..Dylan's Life with SMA: January 2012

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Wishing for Elephants.Dylan's Life with SMA. Friday, January 13, 2012. It's not polite to stare. What is wrong, Heather? Why are people staring at Dylan? Crap) Well, sometimes people have never seen a little boy in a wheelchair. Do they think he is weird? I don't want people to stare at him. Then when you see someone staring at him tell them that it's not polite to stare. Well I am glad I am his mother and that you are not. That's true, but it was brave of you to stand up for your brother. Team Run 4 Owen.

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Wishing for Elephants..Dylan's Life with SMA: June 2012

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Wishing for Elephants.Dylan's Life with SMA. Tuesday, June 12, 2012. All The Right Moves. Little Mr. Cuevas. Subscribe to: Posts (Atom). The Gwendolyn Strong Foundation. The SMA Clinic at Columbia. Team Run 4 Owen. All The Right Moves. View my complete profile. Watermark template. Powered by Blogger.

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Wishing for Elephants..Dylan's Life with SMA: August 2011

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Wishing for Elephants.Dylan's Life with SMA. Thursday, August 4, 2011. SMA Three letters that changed my life forever on August 4, 2004. I hope and pray that one day when these three letters are put together they mean nothing. Until that day we continue to pray for those who battle SMA every day and for those who are forever angels. Thank you SMA for making me aware so that I can be one of the people who brings you down. Dylan one day after he was diagnosed with SMA. Subscribe to: Posts (Atom).

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Wishing for Elephants..Dylan's Life with SMA: March 2011

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Wishing for Elephants.Dylan's Life with SMA. Saturday, March 26, 2011. Maybe not in all cases. True in my case? Monday, March 14, 2011. Genetic Disease Conference and 4201 School Rally. What a week. I knew when I looked at the calendar that when I was done with this week I would likely need to sleep for 3 days straight. Here is the link to the conference I attended. If you would like to make a donation please use this link www.fsma.org/nychalfmarathon. Sunday, March 6, 2011. If your kids are healthy and ...