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FREE-THE-DATA.ORG

Free the Data

Genetic information is more valuable when shared. Genes contain important information about your health and disease. Changes, called mutations, in BRCA1 and BRCA2 greatly increase the risk of hereditary breast and ovarian cancer. Sharing these mutations helps clinicians improve patient care and helps researchers advance our understanding of hereditary breast and ovarian cancer. Mutations should not be ‘trade secrets’ - join us and Free the Data! Free the Data Hall of Fame. Free the Data doesn’t stop here!

http://www.free-the-data.org/

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CONTACTS AT FREE-THE-DATA.ORG

Genetic Alliance

Genetic Alliance

4301 Con●●●●●●●●t Av, NW

Was●●●ton , DC, 20008

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1.20●●●●5557
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Genetic Alliance

Genetic Alliance

4301 Con●●●●●●●●t Av, NW

Was●●●ton , DC, 20008

US

1.20●●●●5557
st●●●●@geneticalliance.org

View this contact

Genetic Alliance

Genetic Alliance

4301 Con●●●●●●●●t Av, NW

Was●●●ton , DC, 20008

US

1.20●●●●5557
st●●●●@geneticalliance.org

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Genetic information is more valuable when shared. Genes contain important information about your health and disease. Changes, called mutations, in BRCA1 and BRCA2 greatly increase the risk of hereditary breast and ovarian cancer. Sharing these mutations helps clinicians improve patient care and helps researchers advance our understanding of hereditary breast and ovarian cancer. Mutations should not be ‘trade secrets’ - join us and Free the Data! Free the Data Hall of Fame. Free the Data doesn’t stop here!
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Free the Data | free-the-data.org Reviews

https://free-the-data.org

Genetic information is more valuable when shared. Genes contain important information about your health and disease. Changes, called mutations, in BRCA1 and BRCA2 greatly increase the risk of hereditary breast and ovarian cancer. Sharing these mutations helps clinicians improve patient care and helps researchers advance our understanding of hereditary breast and ovarian cancer. Mutations should not be ‘trade secrets’ - join us and Free the Data! Free the Data Hall of Fame. Free the Data doesn’t stop here!

INTERNAL PAGES

free-the-data.org free-the-data.org
1

Who Are We? | Free the Data

http://www.free-the-data.org/who

Genetic Alliance’s enterprise, BioTrust, focuses on how to build a system for translational science that is participant-driven. This includes developing campaigns like Free the Data. Private Access, a developer of consent management and access control technology, is the technology partner for this platform. The campaign and the platform are overseen by the Genetic Alliance BioTrust Ethics Team. And are required to have institutional review board approval. Or email info@geneticalliance.org.

2

Freeing the Data: For Clinicians | Free the Data

http://www.free-the-data.org/clinicians

The information on this page refers to the Sharing Clinical Reports Project, the clinician arm of Free the Data. The Sharing Clinical Reports Project (SCRP) is a volunteer, grass-roots effort to encourage open sharing of genetic variant information. SCRP specifically aims to collect information on BRCA1 and 2 variants and make this information publicly available in the NCBI ClinVar database. Asking them to share their data. Alternatively, you can share the data for them. And Free the Data pins to share!

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captricity.org captricity.org

Captricity

http://captricity.org/stories

Inspirational people and organizations use data every day to help drive the world forward. Social Network Methods (Estimating Mortality). Building Capacity to use Research Evidence. National Association of Urban Debate Leagues. Redwood City, CA. National Council on Aging. Health Systems Strengthening Society. India Institute of Management. Judbarra-Gregory Karst Research Group. Pacific Grove, CA. MOTECH by Grameen Foundation. Abdul Latif Jameel Poverty Action Lab. Turkish Grameen Microfinance Program.

geneticalliance.org geneticalliance.org

Advocacy, Education & Empowerment | GeneticAlliance.org

http://geneticalliance.org/x839801

Advocacy, Education and Empowerment. Patient Navigation: Care Coordination Meets Peer Support. Did you miss our webinar on Patient Navigation? Watch the recording today! Genetic Alliance is Hiring! Now hiring: Program Assistant, Expecting Health; Network Coordinator, PCORnet. Click the image to read the job descriptions and apply today! Sharon Terry to Speak at TEDMED 2016. Sharon Terry will speak at TEDMED 2016 this upcoming November! Social Entrepreneurship and Innovation. With better health as the goa...

babysfirststeps.org babysfirststeps.org

BioTrust | GeneticAlliance.org

http://www.babysfirststeps.org/programs/biotrust

We will beat a path to participation in biomedical research,. And we will accelerate solutions. Through the BioTrust enterprise, Genetic Alliance offers tools and platforms to empower citizens to contribute data, samples, and energy to transforming health. The revolution must come from us, the people. By engaging individuals, disease advocacy organizations, providers, and researchers and making innovative tools such as the Platform for Engaging Everyone Responsibly. Patient Focused Drug Development (PFDD).

brca2blog.wordpress.com brca2blog.wordpress.com

Free My Data | BrCa: Blog on Risk, Cancer, and Anxiety

https://brca2blog.wordpress.com/2014/06/22/free-my-data

BrCa: Blog on Risk, Cancer, and Anxiety. Genetic counselling, again. Since it’s been nearly four years since I last read up on the major findings BRCA1/2 research, I have been expecting to find some exciting new news. So here’s one new tidbit I have found: the Free My Data. So how is “Free My Data” different from the other databases? Well it’s data is coming primarily from patients instead of researchers. For instance, there is a breast cancer mutation database known as BIC. I found out that there are at...

geneticalliance.org geneticalliance.org

BioTrust | GeneticAlliance.org

http://www.geneticalliance.org/programs/biotrust

We will beat a path to participation in biomedical research,. And we will accelerate solutions. Through the BioTrust enterprise, Genetic Alliance offers tools and platforms to empower citizens to contribute data, samples, and energy to transforming health. The revolution must come from us, the people. By engaging individuals, disease advocacy organizations, providers, and researchers and making innovative tools such as the Platform for Engaging Everyone Responsibly. Patient Focused Drug Development (PFDD).

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Free the Data

Genetic information is more valuable when shared. Genes contain important information about your health and disease. Changes, called mutations, in BRCA1 and BRCA2 greatly increase the risk of hereditary breast and ovarian cancer. Sharing these mutations helps clinicians improve patient care and helps researchers advance our understanding of hereditary breast and ovarian cancer. Mutations should not be ‘trade secrets’ - join us and Free the Data! Free the Data Hall of Fame. Free the Data doesn’t stop here!

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