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Recessive Dystrophic Epidermolysis Bullosa

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FriendsofCasey | friendsofcasey.blogspot.com Reviews
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Recessive Dystrophic Epidermolysis Bullosa
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FriendsofCasey | friendsofcasey.blogspot.com Reviews

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Recessive Dystrophic Epidermolysis Bullosa

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1

FriendsofCasey: March 2012

http://friendsofcasey.blogspot.com/2012_03_01_archive.html

Recessive Dystrophic Epidermolysis Bullosa. Welcome to our blog! Feel free to email us privately with any comments/questions at. Sunday, March 18, 2012. March is here and spring is upon us.The warmer weather always makes me feel happier. Affects our whole household. I'll get back to that point later. Like I said before EB affects my whole family. Yes, Casey. Hope March is a peaceful one for everyone.Hugs. Subscribe to: Posts (Atom). View my complete profile. Picture Window template. Powered by Blogger.

2

FriendsofCasey: November 2010

http://friendsofcasey.blogspot.com/2010_11_01_archive.html

Recessive Dystrophic Epidermolysis Bullosa. Welcome to our blog! Feel free to email us privately with any comments/questions at. Wednesday, November 24, 2010. Just choose to use it in other ways. Happy Thanksgiving to all our friends and family and special prayers to all our EB friends.May you have a peaceful holiday weekend. John, Beth, Zachary, Casey and Becky. Tuesday, November 23, 2010. Subscribe to: Posts (Atom). View my complete profile. Picture Window template. Powered by Blogger.

3

FriendsofCasey

http://friendsofcasey.blogspot.com/2012/01/well-its-end-of-january-already.html

Recessive Dystrophic Epidermolysis Bullosa. Welcome to our blog! Feel free to email us privately with any comments/questions at. Wednesday, January 25, 2012. And here is his foot. This is a blistered foot we haven't seen the likes of in years. Was it worth it? I say NO WAY.If he had chosen the bucket of snow inside it would never had happened. However.When I asked CASEY. If it was worth it, he said "It sure was.I hit zach straight in the face with an ice ball. Did you see that mom? Where does the time go?

4

FriendsofCasey: May 2011

http://friendsofcasey.blogspot.com/2011_05_01_archive.html

Recessive Dystrophic Epidermolysis Bullosa. Welcome to our blog! Feel free to email us privately with any comments/questions at. Monday, May 23, 2011. A month of blessings. Hello all.Boy it's been a challenging month here! I barely know fit it all into a post short enough not to bore you! Or the 20 mintues of hysterical crying because I threw my garbage in the kitchen pail instead of the small bathroom one? Okmaybe I'd make him a bit neater and organized but that might just be the OCD in me).

5

FriendsofCasey

http://friendsofcasey.blogspot.com/2012/03/hi-all-march-is-here-and-spring-is-upon.html

Recessive Dystrophic Epidermolysis Bullosa. Welcome to our blog! Feel free to email us privately with any comments/questions at. Sunday, March 18, 2012. March is here and spring is upon us.The warmer weather always makes me feel happier. Affects our whole household. I'll get back to that point later. Like I said before EB affects my whole family. Yes, Casey. Hope March is a peaceful one for everyone.Hugs. March 19, 2012 at 9:23 PM. August 21, 2012 at 9:02 PM. My name is Jenna, you are a brave, courageous...

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raquelhultman.blogspot.com raquelhultman.blogspot.com

Raquel Bella : Steady

http://raquelhultman.blogspot.com/2014/02/steady.html

Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Saturday, February 15, 2014. Not much action around here. Raqu for the most part has been exceptional. No real problems anywhere else other then her attitude. After bath, getting ready to put the ...

raquelhultman.blogspot.com raquelhultman.blogspot.com

Raquel Bella : EB kick in the %$&s

http://raquelhultman.blogspot.com/2014/04/eb-kick-in.html

Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, April 25, 2014. EB kick in the %$&s. Ren and I have been thinking a lot lately of Hannah. Losing a child at 11 it's eff'n scary. Coco is 8! I can't imagine or at least I'm trying not to.

raquelhultman.blogspot.com raquelhultman.blogspot.com

Raquel Bella : November 2014

http://raquelhultman.blogspot.com/2014_11_01_archive.html

Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, November 21, 2014. It's really been an amazing run and it keeps going. Raquel is in amazing spirits and health. She has a spark that was evident early and hasn't gone away. How about the b...

raquelhultman.blogspot.com raquelhultman.blogspot.com

Raquel Bella : September 2013

http://raquelhultman.blogspot.com/2013_09_01_archive.html

Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Wednesday, September 25, 2013. It's a wonderful feeling coming away with an empowerment by understanding what I know and what I need to know and the proper paths through it in areas that I can wit...

throughtheeyesofjesus.blogspot.com throughtheeyesofjesus.blogspot.com

Through The Eyes of Jesus: April 2014

http://throughtheeyesofjesus.blogspot.com/2014_04_01_archive.html

Through The Eyes of Jesus. What were God’s intentions as He designed and created children with disabilities? What was His vision and purpose? I want to take a hard look at what society views as defective and ask, "What does God see? I hope we can gain a better vision of what He sees and His purposes in His creation. The cornerstone of the discussion will be the Bible. The personal narrative will be our family’s journey with Epidermolysis Bullosa. Sunday, April 27, 2014. Subscribe to: Posts (Atom). He str...

throughtheeyesofjesus.blogspot.com throughtheeyesofjesus.blogspot.com

Through The Eyes of Jesus: March 2013

http://throughtheeyesofjesus.blogspot.com/2013_03_01_archive.html

Through The Eyes of Jesus. What were God’s intentions as He designed and created children with disabilities? What was His vision and purpose? I want to take a hard look at what society views as defective and ask, "What does God see? I hope we can gain a better vision of what He sees and His purposes in His creation. The cornerstone of the discussion will be the Bible. The personal narrative will be our family’s journey with Epidermolysis Bullosa. Saturday, March 2, 2013. It's Good to Remember. Some famil...

patriceandmattwilliams.blogspot.com patriceandmattwilliams.blogspot.com

Before The Morning: EB Sweeties

http://patriceandmattwilliams.blogspot.com/2007/12/eb-sweeties.html

Saturday, December 8, 2007. To read more about other Sweeties living every day, fighting with all they have against EB, please click on the links below. Gone but never forgotten. Please feel free to send me an email if you have an EB Sweetie you'd like me to add. Subscribe to: Post Comments (Atom).

throughtheeyesofjesus.blogspot.com throughtheeyesofjesus.blogspot.com

Through The Eyes of Jesus: January 2013

http://throughtheeyesofjesus.blogspot.com/2013_01_01_archive.html

Through The Eyes of Jesus. What were God’s intentions as He designed and created children with disabilities? What was His vision and purpose? I want to take a hard look at what society views as defective and ask, "What does God see? I hope we can gain a better vision of what He sees and His purposes in His creation. The cornerstone of the discussion will be the Bible. The personal narrative will be our family’s journey with Epidermolysis Bullosa. Tuesday, January 22, 2013. Anniversary of Roe vs. Wade?

throughtheeyesofjesus.blogspot.com throughtheeyesofjesus.blogspot.com

Through The Eyes of Jesus: National EB Awareness Week

http://throughtheeyesofjesus.blogspot.com/2013/10/national-eb-awareness-week.html

Through The Eyes of Jesus. What were God’s intentions as He designed and created children with disabilities? What was His vision and purpose? I want to take a hard look at what society views as defective and ask, "What does God see? I hope we can gain a better vision of what He sees and His purposes in His creation. The cornerstone of the discussion will be the Bible. The personal narrative will be our family’s journey with Epidermolysis Bullosa. Friday, October 25, 2013. National EB Awareness Week.

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FriendsofCasey

Recessive Dystrophic Epidermolysis Bullosa. Welcome to our blog! Feel free to email us privately with any comments/questions at. Sunday, March 18, 2012. March is here and spring is upon us.The warmer weather always makes me feel happier. Affects our whole household. I'll get back to that point later. Like I said before EB affects my whole family. Yes, Casey. Hope March is a peaceful one for everyone.Hugs. Wednesday, January 25, 2012. And here is his foot. Was it worth it? And from this I learned a lesson...

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