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Raquel Bella

Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, August 7, 2015. It's been very good for a long while. Her style of it anyway and is jogging anytime she gets out of the house. Raquel in her typical jog trying to track down her cousin.

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Raquel Bella | raquelhultman.blogspot.com Reviews
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Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, August 7, 2015. It's been very good for a long while. Her style of it anyway and is jogging anytime she gets out of the house. Raquel in her typical jog trying to track down her cousin.
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1 raquel bella
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Raquel Bella | raquelhultman.blogspot.com Reviews

https://raquelhultman.blogspot.com

Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, August 7, 2015. It's been very good for a long while. Her style of it anyway and is jogging anytime she gets out of the house. Raquel in her typical jog trying to track down her cousin.

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raquelhultman.blogspot.com raquelhultman.blogspot.com
1

Raquel Bella : An EB Normal

http://raquelhultman.blogspot.com/2014/05/an-eb-normal.html

Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Wednesday, May 28, 2014. Raquel is holding steady. It's literally the moment it heals that it falls apart again. It's almost to point where we might think of doing daily dressing changes. Raquel h...

2

Raquel Bella : EB kick in the %$&s

http://raquelhultman.blogspot.com/2014/04/eb-kick-in.html

Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, April 25, 2014. EB kick in the %$&s. Ren and I have been thinking a lot lately of Hannah. Losing a child at 11 it's eff'n scary. Coco is 8! I can't imagine or at least I'm trying not to.

3

Raquel Bella : September 2014

http://raquelhultman.blogspot.com/2014_09_01_archive.html

Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, September 5, 2014. It's easy to tell when things are going very well for us. In the end it was very rare we heard screams from a fall or other and maybe she had less problems then any othe...

4

Raquel Bella : November 2014

http://raquelhultman.blogspot.com/2014_11_01_archive.html

Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, November 21, 2014. It's really been an amazing run and it keeps going. Raquel is in amazing spirits and health. She has a spark that was evident early and hasn't gone away. How about the b...

5

Raquel Bella : Steady

http://raquelhultman.blogspot.com/2014/02/steady.html

Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Saturday, February 15, 2014. Not much action around here. Raqu for the most part has been exceptional. No real problems anywhere else other then her attitude. After bath, getting ready to put the ...

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kourtneyk.blogspot.com kourtneyk.blogspot.com

The Kujawas: It took my breath away!

http://kourtneyk.blogspot.com/2014/02/it-took-my-breath-away.html

Thursday, February 13, 2014. It took my breath away! We are back from Sunny Saskatchewan. We feel well rested and were well taken care of by the entire Lutzer clan. Have to be honest. it was one of the best times we had. The cold weather was outweighed by the warmth we received by family. The morning of The banquet the last part of Kourtneys speech had to be written, the pictures on the PowerPoint organized. Kourtneys dressings needed to be done.So I decided to clean my mom's pantry? When Kourtney starte...

kourtneyk.blogspot.com kourtneyk.blogspot.com

The Kujawas: August 2013

http://kourtneyk.blogspot.com/2013_08_01_archive.html

Thursday, August 29, 2013. Girls Night in Downtown Vancouver. My cousin Melanie's family. Makenna, Ashlyn, Jayden and Carter. My mom and sister Gaylene. Fishing lessons with my dad and Aunt Esther. My cousin Susan and daughter Sydney. Meldon photo boming this picture. The cousins waiting for the wedding of their cousin! I think this could be a new meaning for Gangman Style. Our favourite BC family! My bros wives. Can you tell which ones are the sister in laws? A visit to the "historical Lutzer village".

kourtneyk.blogspot.com kourtneyk.blogspot.com

The Kujawas: December 2014

http://kourtneyk.blogspot.com/2014_12_01_archive.html

Wednesday, December 17, 2014. No, I am not ready for Christmas. It’s not a season that I enjoy because for years it has left me with so many unmet expectations. I secretly resent the whole holiday season. (OK, now it’s not a secret). As many of you know Summer 2014 will go down in Kujawa history as one of the most difficult summer’s ever. It started June 30. The summer was Instagrammed as #staycation2014. Take a step back to the June 27. So, many of the summer duties landed on me so I had to ignore the s...

kourtneyk.blogspot.com kourtneyk.blogspot.com

The Kujawas: January 2014

http://kourtneyk.blogspot.com/2014_01_01_archive.html

Sunday, January 12, 2014. Best Day of 2014. Caregivers in the world. Each one has a different way, perspective in managing Kourtney's emotional pain, and this week if it wasn't for them I believe Kourtney was able to get through this bump in the road. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. Posted by The Kujawas. Subscribe to: Posts (Atom). Your Hands - kourtney. Joy to the World. Uncommon Joy - Pulse - Northview. Your Hands by Kourtney.

kourtneyk.blogspot.com kourtneyk.blogspot.com

The Kujawas: May 2013

http://kourtneyk.blogspot.com/2013_05_01_archive.html

Thursday, May 30, 2013. A little bit of this and a little bit of that. There is so much on my mind that I have had a difficult time putting my thoughts into words. The following maybe scattered, so bear with me. How is Kourtney doing? To my biggest loser friends . . . It may not shock you as many of you know I am an avid runner and biker. I love exercising outdoors . . . even in the rain. The thought of a sweaty body beside me on the elliptical isn't my idea of fun. Posted by The Kujawas. Joy to the World.

kourtneyk.blogspot.com kourtneyk.blogspot.com

The Kujawas: March 2013

http://kourtneyk.blogspot.com/2013_03_01_archive.html

Friday, March 1, 2013. We are breathing a little easier these last few days. Since my last blog the situation is now in the past, it would be easy to ruminate on how we have been wronged in so may ways, but our family has chosen to practice Harold 3:16, and take the high road, move on and forgive. We have been through too much as a family to let something like this destroy us. Posted by The Kujawas. Subscribe to: Posts (Atom). Your Hands - kourtney. Joy to the World. Uncommon Joy - Pulse - Northview.

kourtneyk.blogspot.com kourtneyk.blogspot.com

The Kujawas: Embarking on a new journey!

http://kourtneyk.blogspot.com/2014/02/embarking-on-new-journey.html

Saturday, February 1, 2014. Embarking on a new journey! The next few days are going to be B.U.S.Y! I have taken yet another new rotation at work, and I have been on permanent nights (Tuesday, Wednesday and Saturday). I constantly feel like I am either recovering from a night shift or trying to rest before a night shift. The permanent nights will be finished this week and then we are headed to Regina for 5 days of fun in the sun! I didn't say warm, but at least it will be sunny)! Posted by The Kujawas.

kourtneyk.blogspot.com kourtneyk.blogspot.com

The Kujawas: Christmas Update

http://kourtneyk.blogspot.com/2014/12/christmas-update.html

Wednesday, December 17, 2014. No, I am not ready for Christmas. It’s not a season that I enjoy because for years it has left me with so many unmet expectations. I secretly resent the whole holiday season. (OK, now it’s not a secret). As many of you know Summer 2014 will go down in Kujawa history as one of the most difficult summer’s ever. It started June 30. The summer was Instagrammed as #staycation2014. Take a step back to the June 27. So, many of the summer duties landed on me so I had to ignore the s...

kourtneyk.blogspot.com kourtneyk.blogspot.com

The Kujawas: Best Day of 2014

http://kourtneyk.blogspot.com/2014/01/best-day-of-2014.html

Sunday, January 12, 2014. Best Day of 2014. Caregivers in the world. Each one has a different way, perspective in managing Kourtney's emotional pain, and this week if it wasn't for them I believe Kourtney was able to get through this bump in the road. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. Posted by The Kujawas. Wow you guys just plain amaze me. Thanks for being so open and letting us in on what your daily life entails. Its so much ...

kourtneyk.blogspot.com kourtneyk.blogspot.com

The Kujawas: June 2013

http://kourtneyk.blogspot.com/2013_06_01_archive.html

Monday, June 17, 2013. Happy Father's Day to Todd. Last year I blogged about my relationship with my dad. This year, after the events of the last couple of. Weeks I have decided to focus on the dad to our girls. My grief almost instantly turned to anger, as I felt it was just another sucker punch to our family. As much as I could soothe my emotions by telling myself "it was just a cat" and "I don't even like cats", it is what Fresca represented to our family that was so suddenly taken away - JOY-. Pictur...

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Raquel Bella

Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, August 7, 2015. It's been very good for a long while. Her style of it anyway and is jogging anytime she gets out of the house. Raquel in her typical jog trying to track down her cousin.

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