raquelhultman.blogspot.com
Raquel Bella : Steady
http://raquelhultman.blogspot.com/2014/02/steady.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Saturday, February 15, 2014. Not much action around here. Raqu for the most part has been exceptional. No real problems anywhere else other then her attitude. After bath, getting ready to put the ...
raquelhultman.blogspot.com
Raquel Bella : EB kick in the %$&s
http://raquelhultman.blogspot.com/2014/04/eb-kick-in.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, April 25, 2014. EB kick in the %$&s. Ren and I have been thinking a lot lately of Hannah. Losing a child at 11 it's eff'n scary. Coco is 8! I can't imagine or at least I'm trying not to.
raquelhultman.blogspot.com
Raquel Bella : November 2014
http://raquelhultman.blogspot.com/2014_11_01_archive.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, November 21, 2014. It's really been an amazing run and it keeps going. Raquel is in amazing spirits and health. She has a spark that was evident early and hasn't gone away. How about the b...
raquelhultman.blogspot.com
Raquel Bella : September 2013
http://raquelhultman.blogspot.com/2013_09_01_archive.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Wednesday, September 25, 2013. It's a wonderful feeling coming away with an empowerment by understanding what I know and what I need to know and the proper paths through it in areas that I can wit...
raquelhultman.blogspot.com
Raquel Bella : August 2015
http://raquelhultman.blogspot.com/2015_08_01_archive.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, August 7, 2015. It's been very good for a long while. Her style of it anyway and is jogging anytime she gets out of the house. Raquel in her typical jog trying to track down her cousin.
raquelhultman.blogspot.com
Raquel Bella : April 2014
http://raquelhultman.blogspot.com/2014_04_01_archive.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, April 25, 2014. EB kick in the %$&s. Ren and I have been thinking a lot lately of Hannah. Losing a child at 11 it's eff'n scary. Coco is 8! I can't imagine or at least I'm trying not to.
raquelhultman.blogspot.com
Raquel Bella : May 2014
http://raquelhultman.blogspot.com/2014_05_01_archive.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Wednesday, May 28, 2014. Raquel is holding steady. It's literally the moment it heals that it falls apart again. It's almost to point where we might think of doing daily dressing changes. Raquel h...
raquelhultman.blogspot.com
Raquel Bella : Keeping on.
http://raquelhultman.blogspot.com/2015/08/keeping-on.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, August 7, 2015. It's been very good for a long while. Her style of it anyway and is jogging anytime she gets out of the house. Raquel in her typical jog trying to track down her cousin.
raquelhultman.blogspot.com
Raquel Bella : Summer time rolling
http://raquelhultman.blogspot.com/2014/09/summer-time-rolling.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, September 5, 2014. It's easy to tell when things are going very well for us. In the end it was very rare we heard screams from a fall or other and maybe she had less problems then any othe...
raquelhultman.blogspot.com
Raquel Bella : Clothing EB
http://raquelhultman.blogspot.com/2010/11/clothing-eb.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, November 26, 2010. In the early days finding clothing and diapers was among the great issues we were to deal with. My imagination runs often, as I had a vision of a mysterious woman (Raqu ...
