GALACTOSEMIA.ORG
Galactosemia FoundationThe Galactosemia Foundation is a support organization for people with galactosemia and their families.
http://www.galactosemia.org/
The Galactosemia Foundation is a support organization for people with galactosemia and their families.
http://www.galactosemia.org/
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Parents of Galactosemic Children, Inc.
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Galactosemia Foundation | galactosemia.org Reviews
https://galactosemia.org
The Galactosemia Foundation is a support organization for people with galactosemia and their families.
Never Tell Me The Odds: September 2011
http://50000to1.blogspot.com/2011_09_01_archive.html
View my complete profile. Monday, September 12, 2011. Post 32 - "We Are Family.". In Lumberton, New Jersey The cost would have been more, but Walt (who has friends everywhere and always bumps into someone he knows where ever he goes someplace) has a friend at Lucas Dodge, who cut us a huge break on the cost. If anyone is ever looking for a Dodge, Chevrolet, or Jeep, Tracey and I cannot say enough about how nice the staff was at Lucas Dodge. Subscribe to: Posts (Atom). How Am I Doing. Some Shout Out Links.
Never Tell Me The Odds: Post 38 - It's Good to Be King... or Is It ?
http://50000to1.blogspot.com/2012/08/post-38-its-good-to-be-king-or-is-it.html
View my complete profile. Thursday, August 2, 2012. Post 38 - It's Good to Be King. or Is It? Poor men wanna be rich, rich men wanna be kings,. And a king aint satisfied till he rules everything. In case you always wonder what it's like to be a king, I can tell you:. So what is it like to live like a King. it truly, truly sucks! Happy 9th anniversary Tracey. I love you! August 16, 2012 at 6:16 AM. Congrats and happy anniversary to you two! Keeping your family in my prayers! How Am I Doing. Simple templat...
Never Tell Me The Odds: November 2012
http://50000to1.blogspot.com/2012_11_01_archive.html
View my complete profile. Thursday, November 29, 2012. Post 40 -Happy Festivus. So, again, thank you, thank you, thank you to those of you who came out for support will otherwise raised funds or donated. I cannot begin to tell you how much it means to me. To the rest of you… well, there's not much else I can say. I'd like to say "F-you," but I won't. Peace out everyone. My best wishes to all of you and your families for a brighter future. Subscribe to: Posts (Atom). How Am I Doing. Some Shout Out Links.
Hannah Claire: New Friends!
http://jeneltringham.blogspot.com/2011/07/new-friends.html
Hannah Claire was diagnosed with Galactosemia on May 19th, 2011, at one week old. I am writing this blog to connect with others, as an encouragement and as a resource. We'll journal the changes we make, in our diet, and as a family. Sunday, July 10, 2011. Gregory 3 1/2 and Hannah Claire 2 months. Just had the opportunity to meet some new friends! So thankful for Melissa and her little guy Gregory coming over to play! Parents of Galactosemic Children. Tommy, Melissa, Gregory. July 11, 2011 at 7:20 AM.
Hannah Claire: ACRONYMS
http://jeneltringham.blogspot.com/2011/07/acronyms.html
Hannah Claire was diagnosed with Galactosemia on May 19th, 2011, at one week old. I am writing this blog to connect with others, as an encouragement and as a resource. We'll journal the changes we make, in our diet, and as a family. Thursday, July 14, 2011. Hannah Claire 2 months old. July 15, 2011 at 4:31 PM. I am Melissas sis-in-law and Gregorys Auntie. She told me about her opportunity to meet you, and I am so thankful that the two of you have connected! Subscribe to: Post Comments (Atom).
Galactosemia
http://galactosemia2.blogspot.com/2008/01/galactosemia.html
Lunes, 14 de enero de 2008. 191;Qué es la galactosemia? La galactosemia es una enfermedad hereditaria cuyo entendimiento precisa del conocimiento de ciertas nociones elementales en relación con una sustancia llamada galactosa. La galactosa es un azúcar simple como también lo es la glucosa. La fuente principal de este azúcar es la lactosa ("azucar de la leche"), otro azúcar más complejo pues resulta de la unión de una galactosa con una glucosa. 191;Qué alimentos contienen lactosa y, por tanto, galactosa?
The Great Debate
http://trose.20m.com//TheDebate/TheDebate.html
THAT COULD COST YOUR BABY ITS LIFE. Tyler Mize of Douglasville, GA. Wasn't screened at birth, even for the state-mandated disorders. On Mother's Day 1998, at nine days old, he died from undiagnosed galactosemia. Children with galactosemia. Usually maintain satisfactory health by simply switching their milk-based formula to soy-based formula. Tandem Mass Spectrometry (MS/MS). Alexander Nawn of Malvern, PA. And treated promptly. Today Alexander is a powerhouse, curtain-climbing toddler. Cody Kreider-Waldro...
surrounded by my little green men: bee's game, take 1
http://rohinandmurphy.blogspot.com/2011/05/bees-game-take-1.html
There are lives I can imagine without children but none of them have the same laughter and noise. Monday, May 23, 2011. Bee's game, take 1. So this was the first bee's game we've managed to make it to this year and it actually turned out pretty great. the boys did a great job sitting and watching the game, age wise respectively, and even stayed up for the fireworks after the game! Is always a hit. As always, we HAD. To find the bee. Grandpa and ro enjoying the view. Subscribe to: Post Comments (Atom).
Galactosemia: Novembro 2008
http://galactosemia208.blogspot.com/2008_11_01_archive.html
Terça-feira, 25 de novembro de 2008. Aqui está um link do depoimento da Stacey Taylor que possui Galactosemia. Ela contas seus sofrimentos e dificuldades durante a vida mas também mostra sua alegria pelo nascimento de seu filho assim como sua esperança de ajudar as pessoas. It has been nearly 30 years of feeling alone, although I have now broken free of those chains it has been 30 years too long.". Vale a pena ler! Http:/ www.savebabiescanada.org/FamilyStories/Stacey GALA.htm. Achei um artigo que estuda ...
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galactosemia-biobio.blogspot.com
Galactosemia
A galactosemia é um erro inato do metabolismo (de característica autossômica recessiva), caracterizado por uma inabilidade em converter galactose em glicose da maneira normal. O resultado imediato é o acúmulo de metabólitos da galactose no organismo, que passa a ter níveis circulantes elevados e tóxicos, principalmente para o fígado, cérebro e olhos. Em um fígado normal, a maioria da galactose é convertida em glicose em pouco tempo. Normalmente a via segue a seguinte ordem:. Caso haja algum problema com ...
GFMN - Home
GFMN Items for Sale. Donate now to GFMN. Donate to GALACTOSEMIC FAMILIES OF MINNESOTA. Welcome to Galactosemic Families of MN (GFMN). We are a group of families from Minnesota and the surrounding states living with galactosemia. We were founded in 1998. Why are We Here? One in 80,000 children will be born with galactosemia. The purpose of GFMN is three fold:. To provide support & education information to galactosemic families & interested professionals. Galactosemic Families of MN (GFMN).
Galactosemia
Galactosemia is an inherited disease where the transformation of galactose to glucose is blocked, allowing galactose to increase to toxic levels in the body. If Galactosemia is untreated, high levels of galactose cause vomiting, diarrhea, lethargy, low blood sugar, brain damage, jaundice, liver enlargement, cataracts, susceptibility to infection and death. London, Ontario, Canada. View my complete profile. What is Classic and Duarte Galactosemia? The History of Galactosemia. Books, Phamplets, etc. A pers...
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Galactosemia Foundation
Fundraise by Shopping or Web Searching! Fundraising and Education Events. Fundraise by Shopping or Web Searching! Fundraising and Education Events. Help support research by joining this patient driven database. Mar 3, 2018. Registration is now open for the 2018 Conference! Mar 3, 2018. Mar 3, 2018. Jul 23, 2017. Denver 2018 Conference Planning. Jul 23, 2017. Jul 23, 2017. Mar 4, 2017. 14 Applications for GF Grants. Mar 4, 2017. Mar 4, 2017. We are glad that you found us! Click to learn more.
Galactosemia
Lunes, 14 de enero de 2008. 191;Qué es la galactosemia? La galactosemia es una enfermedad hereditaria cuyo entendimiento precisa del conocimiento de ciertas nociones elementales en relación con una sustancia llamada galactosa. La galactosa es un azúcar simple como también lo es la glucosa. La fuente principal de este azúcar es la lactosa ("azucar de la leche"), otro azúcar más complejo pues resulta de la unión de una galactosa con una glucosa. 191;Qué alimentos contienen lactosa y, por tanto, galactosa?
Galactosemia
Quarta-feira, 3 de dezembro de 2008. Terça-feira, 25 de novembro de 2008. Aqui está um link do depoimento da Stacey Taylor que possui Galactosemia. Ela contas seus sofrimentos e dificuldades durante a vida mas também mostra sua alegria pelo nascimento de seu filho assim como sua esperança de ajudar as pessoas. It has been nearly 30 years of feeling alone, although I have now broken free of those chains it has been 30 years too long.". Vale a pena ler! Segunda-feira, 24 de novembro de 2008. Achei um artig...
galactosemiaespana.wordpress.com
| Blog de la Asociación Española para la Galactosemia
Blog de la Asociación Española para la Galactosemia. Quienes somos – Objetivos. Colabora con tu ayuda. Reunión AEG 21 Noviembre de 2015. Hola familias, antes de irnos unos días de vacaciones y disfrutar de un merecido descanso durante el mes de agosto, queremos informaros que la próxima reunión anual de la Asociación será el sábado 21 de Noviembre en Barcelona. S esperamos a todos. Un abrazo. Asociación Española para la Galactosemia. Rosa Olivé, presidenta. Carmen Asensio, vicepresidenta. 30 julio, 2015.
galactosemiamidwest.blogspot.com
Parents of Galactosemic Children- Midwest
Parents of Galactosemic Children- Midwest. Providing support for families affected by galactosemia in the Midwestern United States. Wednesday, August 24, 2011. Just so you all know- - Jimmy John's is unwilling to provide information on ingredients. I am now avoiding them completely (for myself as well, because I think it's bad business practice). Wednesday, March 3, 2010. Grant's Wish Fundraiser: March 20. It's cool, we don't have so many followers on our blog :). Tuesday, March 10, 2009. I posted on our...
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