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Parents of Galactosemic Children- Midwest...providing support for families affected by galactosemia in the Midwestern United States.
http://galactosemiamidwest.blogspot.com/
...providing support for families affected by galactosemia in the Midwestern United States.
http://galactosemiamidwest.blogspot.com/
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Parents of Galactosemic Children- Midwest | galactosemiamidwest.blogspot.com Reviews
https://galactosemiamidwest.blogspot.com
...providing support for families affected by galactosemia in the Midwestern United States.
galactosemiamidwest.blogspot.com
Parents of Galactosemic Children- Midwest: Shop and Share
http://galactosemiamidwest.blogspot.com/2009/03/shop-and-share.html
Parents of Galactosemic Children- Midwest. Providing support for families affected by galactosemia in the Midwestern United States. Tuesday, March 10, 2009. Hoping everyone has passed the shop and share slips out. Please let us know the contribution amount. April 5, 2009 at 3:27 PM. Shop till ya drop people! April 5, 2009 at 6:09 PM. Thanks to everyone who participated and distributed slips. We have another set of 3 days scheduled for the 4th of July weekend. Every little penny counts, right!
Parents of Galactosemic Children- Midwest: August 2011
http://galactosemiamidwest.blogspot.com/2011_08_01_archive.html
Parents of Galactosemic Children- Midwest. Providing support for families affected by galactosemia in the Midwestern United States. Wednesday, August 24, 2011. Just so you all know- - Jimmy John's is unwilling to provide information on ingredients. I am now avoiding them completely (for myself as well, because I think it's bad business practice). Subscribe to: Posts (Atom).
Parents of Galactosemic Children- Midwest: September 2008
http://galactosemiamidwest.blogspot.com/2008_09_01_archive.html
Parents of Galactosemic Children- Midwest. Providing support for families affected by galactosemia in the Midwestern United States. Tuesday, September 30, 2008. Website is up and running. Http:/ gama.ldptech.com. Every thing about this can be changed, including name. 2 Placement of content. Saturday, September 27, 2008. Where are we with getting a website up and running? Vote for a Name. Galactosemia Association of the Midwest (GAM). Galactosemia Group of the Midwest. Picture from the Zoo trip Sept. 6.
Parents of Galactosemic Children- Midwest: October 2008
http://galactosemiamidwest.blogspot.com/2008_10_01_archive.html
Parents of Galactosemic Children- Midwest. Providing support for families affected by galactosemia in the Midwestern United States. Wednesday, October 29, 2008. Please post any suggestions for our super-duper big annual fundraiser for PGC Midwest here! Monday, October 27, 2008. Http:/ www.facebook.com/profile.php? Sunday, October 26, 2008. I was thinking of including a copy of the cookbook available for download on PGC's website, but a suggestion was made to include our own recipes. So, waddya all th...
Parents of Galactosemic Children- Midwest: November 2008
http://galactosemiamidwest.blogspot.com/2008_11_01_archive.html
Parents of Galactosemic Children- Midwest. Providing support for families affected by galactosemia in the Midwestern United States. Wednesday, November 12, 2008. Monday, November 10, 2008. My wife's cousin gave me this idea. We could sell items from Mabel's Labels for a fundraiser. It seems very appropriate. I know we could use some of these items ourselves! This is the website:. Http:/ www.mabel.ca/. Wednesday, November 5, 2008. Galactosemia is a rare Genetic disorder affecting about 1/60,000 people....
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Galactosemia Foundation
Fundraise by Shopping or Web Searching! Fundraising and Education Events. Fundraise by Shopping or Web Searching! Fundraising and Education Events. Help support research by joining this patient driven database. Mar 3, 2018. Registration is now open for the 2018 Conference! Mar 3, 2018. Mar 3, 2018. Jul 23, 2017. Denver 2018 Conference Planning. Jul 23, 2017. Jul 23, 2017. Mar 4, 2017. 14 Applications for GF Grants. Mar 4, 2017. Mar 4, 2017. We are glad that you found us! Click to learn more.
Galactosemia
Lunes, 14 de enero de 2008. 191;Qué es la galactosemia? La galactosemia es una enfermedad hereditaria cuyo entendimiento precisa del conocimiento de ciertas nociones elementales en relación con una sustancia llamada galactosa. La galactosa es un azúcar simple como también lo es la glucosa. La fuente principal de este azúcar es la lactosa ("azucar de la leche"), otro azúcar más complejo pues resulta de la unión de una galactosa con una glucosa. 191;Qué alimentos contienen lactosa y, por tanto, galactosa?
Galactosemia
Quarta-feira, 3 de dezembro de 2008. Terça-feira, 25 de novembro de 2008. Aqui está um link do depoimento da Stacey Taylor que possui Galactosemia. Ela contas seus sofrimentos e dificuldades durante a vida mas também mostra sua alegria pelo nascimento de seu filho assim como sua esperança de ajudar as pessoas. It has been nearly 30 years of feeling alone, although I have now broken free of those chains it has been 30 years too long.". Vale a pena ler! Segunda-feira, 24 de novembro de 2008. Achei um artig...
galactosemiaespana.wordpress.com
| Blog de la Asociación Española para la Galactosemia
Blog de la Asociación Española para la Galactosemia. Quienes somos – Objetivos. Colabora con tu ayuda. Reunión AEG 21 Noviembre de 2015. Hola familias, antes de irnos unos días de vacaciones y disfrutar de un merecido descanso durante el mes de agosto, queremos informaros que la próxima reunión anual de la Asociación será el sábado 21 de Noviembre en Barcelona. S esperamos a todos. Un abrazo. Asociación Española para la Galactosemia. Rosa Olivé, presidenta. Carmen Asensio, vicepresidenta. 30 julio, 2015.
galactosemiamidwest.blogspot.com
Parents of Galactosemic Children- Midwest
Parents of Galactosemic Children- Midwest. Providing support for families affected by galactosemia in the Midwestern United States. Wednesday, August 24, 2011. Just so you all know- - Jimmy John's is unwilling to provide information on ingredients. I am now avoiding them completely (for myself as well, because I think it's bad business practice). Wednesday, March 3, 2010. Grant's Wish Fundraiser: March 20. It's cool, we don't have so many followers on our blog :). Tuesday, March 10, 2009. I posted on our...
Galactosemia Midwest | Regional Arm of The Galactosemia Foundation
Rylan Gelb Memorial Scholarship. How to Organize a Run/Walk. Example Waiver for Run/Walk. How to Organize a Carnival. How to Organize a Silent Auction. Sample Bid Sheet for Silent Auction. Sample Bidder’s Registration Sheet. Understanding Galactosemia: A Diet Guide. Being Your Child’s Advocate Power Point. Breyden's Bowl 2017 was a success! Thank you for supporting GAMA! Parents of children with Galactosemia or adults living with Galactosemia offer advice, brands that work and other tips.
Welcome to GalNet | GalNet
Towards a better care for galactosemia patients Read more. Galactose in milk Read more. Event calendar ». 2017 Maastricht UMC Disclaimer.
galactosemiaresource.com - Welcome
WHAT DIET TO FOLLOW? Duarte New Mom Info. Click One Of The Icons Below For Information-. Welcome to your GALACTOSEMIA RESOURCE. Info on Classic Galactosemia, Duarte Galactosemia, Galactokinase and Epimerase Deficiency. Our Goal: To provide an online resource for new parents with Galactosemia Diagnosed Children. WHAT TO EXPECT: NEW MOM INFO. WHAT IS CLASSIC GALACTOSEMIA? WHAT IS DUARTE GALACTOSEMIA? WHAT IS GALACTOKINASE DEFICIENCY? WHAT IS EPIMERASE DEFICIENCY? UNDERSTANDING THE GENETICS OF GALACTOSEMIA.
Generation Galactosemics!
Generation Galactosemics (Generation Gs or GGs) is a group that was formed at the PGC Conference in Philadelphia in July 2006 for all young adult Galactosemics who are between the ages of 16 and 31. If you would like to contribute a story, recipe, or topic to this blog, just e-mail: GalactosemiaG@gmail.com. Wednesday, July 30, 2008. 2008 PGC Conference- Generation G Program. There were 31 Generation Gs at the 2008 PGC Conference in Chicago! Your Name (first and last). Where You Live (city and state ONLY).
Galactosemics.org
Parents of Galactosemic Children, Inc. web site. 12-June-2011 - We have rebuilt the forums using a new forum software called phpBB3. You will need to use the 'I forgot my password' link on the forums, and have the board send you an email to reset your password. We did not have a way to transfer the passwords from the old system. If you have problems with the new forums, please let us know at kmalyn@sbcglobal.net or justind@malyn.org. Handouts from the 2003 Conference.
