GALACTOSEMIANETWORK.ORG
Welcome to GalNet | GalNetTowards a better care for galactosemia patients Read more. Galactose in milk Read more. Event calendar ». 2017 Maastricht UMC Disclaimer.
http://www.galactosemianetwork.org/
Towards a better care for galactosemia patients Read more. Galactose in milk Read more. Event calendar ». 2017 Maastricht UMC Disclaimer.
http://www.galactosemianetwork.org/
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Welcome to GalNet | GalNet | galactosemianetwork.org Reviews
https://galactosemianetwork.org
Towards a better care for galactosemia patients Read more. Galactose in milk Read more. Event calendar ». 2017 Maastricht UMC Disclaimer.
galactosemianetwork.org
Mission | GalNet
https://www.galactosemianetwork.org/mission
Rsaquo; About GalNet. The international network for galactosemia GalNet. Was established in 2012. It includes professionals from 17 European countries. Namely Austria, Belgium, Bulgaria, Croatia, Czech Republic, Estonia, France, Germany, Greece, Ireland, Italy, Lithuania, Netherlands, United Kingdom, Portugal, Spain and Switzerland, as well as Israel. The GalNet was founded with the great support of the European Galactosemia Society. Clinicians, researchers, nutritionists, and patients and families.
Galactosemia | GalNet
https://www.galactosemianetwork.org/galactosemia
The term "galactosemia" means galactose in blood and results from an impaired ability to metabolize galactose. Is mainly present in milk and dairy products. Where it is present in the form of lactose (literally sugar from the milk). After its ingestion, lactose is broken down into the two sugars galactose and glucose. Galactose is very important for the newborn, in which it represents 20% of source of energy, and for the biosynthesis of glycoconjugates. By the Leloir pathway (figure). And is described as...
Links | GalNet
https://www.galactosemianetwork.org/links
European Comission expert on rare diseases. International Rare Disease Research Consortium - IRDiRC. Classic galactosemia or Type I galactosemia. GALK deficiency or Type II galactosemia. GALE deficiency or Type III galactosemia. National Organization for Rare Disorders - NORD:. Classic galactosemia and related disorders. European Galactosaemia Society - EGS. Australian Galactosaemia Support Network - AGSN. Galactosemia Association of Midwest America - GAMA. Galactosemic Families of Minnesota - GFMN.
Governance | GalNet
https://www.galactosemianetwork.org/governance
Rsaquo; About GalNet. The GalNet organizational structure. Is composed of the GalNet Steering Committee, Advisory Board, and Country, Nutritionist and Patient Associations Representatives. The GalNet was founded by the Steering Committee. Which has administrative, scientific, legal and ethical responsibilities. All decisions taken by the Steering Committee are made with input from all other GalNet committees. Give scientific input and provide liaison between the GalNet and members. For all GalNet Events).
Funding | GalNet
https://www.galactosemianetwork.org/funding
Rsaquo; About GalNet. The foundation of the Galactosemia Network could only be achieved thanks to the funding support of:. Academic Medical Fund from the Maastricht University Medical Center (MUMC ). Dutch Galactosemia Society (GVN). European Galactosemia Society (EGS). Health Research Board (HRB). Netherlands Organisation for Scientific Research (NWO). 2017 Maastricht UMC Disclaimer.
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galactosemiaespana.wordpress.com
| Blog de la Asociación Española para la Galactosemia | Página 2
https://galactosemiaespana.wordpress.com/page/2
Blog de la Asociación Española para la Galactosemia. Colabora con tu ayuda. Dibujo de Josep Maria Vergés, padre de Queralt. No existe un horizonte tan lejano que no se pueda alcanzar o superar. Deseamos que alcancéis y superéis todos los horizontes que haya ante vuestros ojos, disfrutando al mismo tiempo de una Feliz Navidad y de un magnífico Año 2016. Asociación Española para la Galactosemia. 23 diciembre, 2015. Registro Europeo de pacientes. Lo único que deben hacer estos pacientes (o sus tutores legal...
TOTAL LINKS TO THIS WEBSITE
3
Galactosemia
Quarta-feira, 3 de dezembro de 2008. Terça-feira, 25 de novembro de 2008. Aqui está um link do depoimento da Stacey Taylor que possui Galactosemia. Ela contas seus sofrimentos e dificuldades durante a vida mas também mostra sua alegria pelo nascimento de seu filho assim como sua esperança de ajudar as pessoas. It has been nearly 30 years of feeling alone, although I have now broken free of those chains it has been 30 years too long.". Vale a pena ler! Segunda-feira, 24 de novembro de 2008. Achei um artig...
galactosemiaespana.wordpress.com
| Blog de la Asociación Española para la Galactosemia
Blog de la Asociación Española para la Galactosemia. Quienes somos – Objetivos. Colabora con tu ayuda. Reunión AEG 21 Noviembre de 2015. Hola familias, antes de irnos unos días de vacaciones y disfrutar de un merecido descanso durante el mes de agosto, queremos informaros que la próxima reunión anual de la Asociación será el sábado 21 de Noviembre en Barcelona. S esperamos a todos. Un abrazo. Asociación Española para la Galactosemia. Rosa Olivé, presidenta. Carmen Asensio, vicepresidenta. 30 julio, 2015.
galactosemiamidwest.blogspot.com
Parents of Galactosemic Children- Midwest
Parents of Galactosemic Children- Midwest. Providing support for families affected by galactosemia in the Midwestern United States. Wednesday, August 24, 2011. Just so you all know- - Jimmy John's is unwilling to provide information on ingredients. I am now avoiding them completely (for myself as well, because I think it's bad business practice). Wednesday, March 3, 2010. Grant's Wish Fundraiser: March 20. It's cool, we don't have so many followers on our blog :). Tuesday, March 10, 2009. I posted on our...
Galactosemia Midwest | Regional Arm of The Galactosemia Foundation
Rylan Gelb Memorial Scholarship. How to Organize a Run/Walk. Example Waiver for Run/Walk. How to Organize a Carnival. How to Organize a Silent Auction. Sample Bid Sheet for Silent Auction. Sample Bidder’s Registration Sheet. Understanding Galactosemia: A Diet Guide. Being Your Child’s Advocate Power Point. Breyden's Bowl 2017 was a success! Thank you for supporting GAMA! Parents of children with Galactosemia or adults living with Galactosemia offer advice, brands that work and other tips.
Welcome to GalNet | GalNet
Towards a better care for galactosemia patients Read more. Galactose in milk Read more. Event calendar ». 2017 Maastricht UMC Disclaimer.
galactosemiaresource.com - Welcome
WHAT DIET TO FOLLOW? Duarte New Mom Info. Click One Of The Icons Below For Information-. Welcome to your GALACTOSEMIA RESOURCE. Info on Classic Galactosemia, Duarte Galactosemia, Galactokinase and Epimerase Deficiency. Our Goal: To provide an online resource for new parents with Galactosemia Diagnosed Children. WHAT TO EXPECT: NEW MOM INFO. WHAT IS CLASSIC GALACTOSEMIA? WHAT IS DUARTE GALACTOSEMIA? WHAT IS GALACTOKINASE DEFICIENCY? WHAT IS EPIMERASE DEFICIENCY? UNDERSTANDING THE GENETICS OF GALACTOSEMIA.
Generation Galactosemics!
Generation Galactosemics (Generation Gs or GGs) is a group that was formed at the PGC Conference in Philadelphia in July 2006 for all young adult Galactosemics who are between the ages of 16 and 31. If you would like to contribute a story, recipe, or topic to this blog, just e-mail: GalactosemiaG@gmail.com. Wednesday, July 30, 2008. 2008 PGC Conference- Generation G Program. There were 31 Generation Gs at the 2008 PGC Conference in Chicago! Your Name (first and last). Where You Live (city and state ONLY).
Galactosemics.org
Parents of Galactosemic Children, Inc. web site. 12-June-2011 - We have rebuilt the forums using a new forum software called phpBB3. You will need to use the 'I forgot my password' link on the forums, and have the board send you an email to reset your password. We did not have a way to transfer the passwords from the old system. If you have problems with the new forums, please let us know at kmalyn@sbcglobal.net or justind@malyn.org. Handouts from the 2003 Conference.
Le blog de Galactosémique - Ce blog décrit une maladie héréditaire très rare, qui touche un nouveau-né sur huit cents en Europe : la galactosémie.
Le blog de Galactosémique. Ce blog décrit une maladie héréditaire très rare, qui touche un nouveau-né sur huit cents en Europe : la galactosémie. Allergies et intolérances alimentaires. Intolérance alimentaire Pourquoi ces allergies sont-elles de plus en plus nombreuses? Principaux aliments reconnus comme des allergènes Quel traitement diététique suivre en cas d’allergie? Conseils à l’achat d’une denrée Etiquetage des allergènes L’allergie. Conférence sur la galactosémie. Régime sans galactose Pour galac...
Galactosemie Vereniging Nederland - Galactosemie Vereniging Nederland
Galactosemie Vereniging Nederland - Galactosemie Vereniging Nederland. Op de website van de Galactosemie Vereniging Nederland. Galactosemie is een zeldzame stofwisselingsziekte met ingrijpende gevolgen. De GVN richt zich op informatieverstrekking, lotgenotencontact en belangenbehartiging. Familieweekend 13-14-15 april 2018. Regiobijeenkomst Den Haag/Rotterdam zondag 28 januari. What Matters 2 U Lustrum Award PwC. 2018 Galactosemie Vereniging Nederland.
