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GAMT support

Support group for families of children with G.A.M.T. deficiency (guanidino acetate methyl transferase deficiency).

http://gamtsupport.blogspot.com/

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GAMT support | gamtsupport.blogspot.com Reviews
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Support group for families of children with G.A.M.T. deficiency (guanidino acetate methyl transferase deficiency).
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1 gamt support
2 followers
3 blog archive
4 helpful website
5 nc mom
6 getting started
7 wwwnucdf org
8 missy
9 posted by
10 missy klor
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GAMT support | gamtsupport.blogspot.com Reviews

https://gamtsupport.blogspot.com

Support group for families of children with G.A.M.T. deficiency (guanidino acetate methyl transferase deficiency).

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gamtsupport.blogspot.com gamtsupport.blogspot.com
1

GAMT support: July 2009

http://gamtsupport.blogspot.com/2009_07_01_archive.html

Support group for families of children with G.amT. deficiency (guanidino acetate methyl transferase deficiency). Tuesday, July 14, 2009. I don't know if you've checked out the following website or if it would be much help, but I thought I would share it. Monday, July 13, 2009. Ornithine - 2.5 ml 6 times a day (this would be a lower dose, but the pharmacy had to dilute it). Creatine - 2 ml 6 times a day. Sodium Benzoate - 1 ml 3 times a day. John's Formula - made by Mead Johnson (makers of Enfamil). On th...

2

GAMT support: Helpful Website

http://gamtsupport.blogspot.com/2009/07/helpful-website.html

Support group for families of children with G.amT. deficiency (guanidino acetate methyl transferase deficiency). Tuesday, July 14, 2009. I don't know if you've checked out the following website or if it would be much help, but I thought I would share it. Subscribe to: Post Comments (Atom).

3

GAMT support: Getting Started

http://gamtsupport.blogspot.com/2009/07/getting-started.html

Support group for families of children with G.amT. deficiency (guanidino acetate methyl transferase deficiency). Saturday, July 11, 2009. What do you guys think? Should we set this to private so only we (and people we approve) can see it? Or should we keep it public so some parent searching for stuff about GAMT can maybe come across us? Also, if one of you wants to change anything about this, go for it. I don't know how to add backgrounds and all that, so have at it! Subscribe to: Post Comments (Atom).

4

GAMT support: NC Mom

http://gamtsupport.blogspot.com/2009/07/nc-mom.html

Support group for families of children with G.amT. deficiency (guanidino acetate methyl transferase deficiency). Monday, July 13, 2009. Ornithine - 2.5 ml 6 times a day (this would be a lower dose, but the pharmacy had to dilute it). Creatine - 2 ml 6 times a day. Sodium Benzoate - 1 ml 3 times a day. John's Formula - made by Mead Johnson (makers of Enfamil). 92 g of WND 1 (Non-essential amino acid-free diet powder). 55 g of PFD 1 (Protein - and amino acid-free diet powder).

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Creatine Transporter Deficiency: Links about CTRT/ Links Kreatintransporterdefekt

http://slc6a8.blogspot.com/p/links-concering-creatine-transport_14.html

Links about CTRT/ Links Kreatintransporterdefekt. Links about CTRT/ Links Kreatintransporterdefekt. This is a collection of links on the Creatine Transport Defect. Viele der Texte zum Thema sind leider nur in Englisch verfügbar. JM van de Kamp. MS van der Knaap. Clinical features and Y-inactivation in females heterozygous for creatine transporter defect. Http:/ www.josephfclark.com/XinactivationCrTfemales.pdf. Sylvia Stöckler-Ipsiroglu: Creatine Deficiency Syndromes clinical presentation. X-Linked Creati...

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GAMT support

Support group for families of children with G.amT. deficiency (guanidino acetate methyl transferase deficiency). Tuesday, July 14, 2009. I don't know if you've checked out the following website or if it would be much help, but I thought I would share it. Monday, July 13, 2009. Ornithine - 2.5 ml 6 times a day (this would be a lower dose, but the pharmacy had to dilute it). Creatine - 2 ml 6 times a day. Sodium Benzoate - 1 ml 3 times a day. John's Formula - made by Mead Johnson (makers of Enfamil). On th...

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