rachelkinney.wordpress.com
Two months post-op | The Daily Dump
https://rachelkinney.wordpress.com/2014/02/23/two-months-post-op
Life with CDH1, and everything that follows. Since my last post, I’ve connected with more CDH1 bloggers Originally I had been following (more like lurking on) a few blogs here and there looking for pointers and tips for myself on what to expect during my recovery. Little did I know that one of those bloggers had found me as well! Drew and I splurged on when we took our trip to Quebec City right before my surgery! For a hilarious exaggeration of what I’m talking about. Links to other CDH1 Bloggers:. I fig...
geneticallychallenged.wordpress.com
I have the mutation. What now? | Teenage Mutants
https://geneticallychallenged.wordpress.com/2014/02/08/i-have-the-mutation-what-now
My CDH1/ T.G. Journey. Intro and A Bit About the CDH1 Gene Mutation. 8220;How will you eat? 8221; and Other Frequently Asked Questions Answered →. I have the mutation. What now? February 8, 2014. 8221; After explaining on the phone that he was not fathering anyone’s child, but instead, I was making a joke pertaining to the inheritance of my father’s rare mutation, my poor friend was very sympathetic and rushed over to give me a hug. As soon as Allison showed up, I was in party mode. That night, I drank m...
geneticallychallenged.wordpress.com
“How will you eat?” and Other Frequently Asked Questions Answered | Teenage Mutants
https://geneticallychallenged.wordpress.com/2014/02/10/how-will-you-eat-and-other-frequently-asked-questions-answered
My CDH1/ T.G. Journey. I have the mutation. What now? Bros’ Night Out →. 8220;How will you eat? 8221; and Other Frequently Asked Questions Answered. February 10, 2014. Hanna’s Answer upon the 500th time hearing this question:. Every week, I will check myself into the hospital and I will be given an I.V. which contains all the necessary nutrients for human survival. I will never eat or poop again. Q: “OMG you will be like SOOO skinny, won’t you? Whether or not your friend/family is going to “look re...
geneticallychallenged.wordpress.com
geneticallychallenged | Teenage Mutants
https://geneticallychallenged.wordpress.com/author/geneticallychallenged
My CDH1/ T.G. Journey. Trip to Italy and Switzerland. March 24, 2014. My family is so wonderful. They helped make it possible for me to fulfill one of my lifelong dreams and visit Italy over spring break. I stayed in Milan and Lake Como for 4 nights each, with day trips to Venice and Lake Lugano Switzerland! Naturally, I ate some really amazing food while I was in Europe as part of my farewell tribute to my stomach. Exactly 3 months from now, my stomach will be gone, so let the food pics commence! The be...
geneticallychallenged.wordpress.com
Trip to Italy and Switzerland | Teenage Mutants
https://geneticallychallenged.wordpress.com/2014/03/24/trip-to-italy-and-switzerland/comment-page-1
My CDH1/ T.G. Journey. Surgery Date is Set. Trip to Italy and Switzerland. March 24, 2014. My family is so wonderful. They helped make it possible for me to fulfill one of my lifelong dreams and visit Italy over spring break. I stayed in Milan and Lake Como for 4 nights each, with day trips to Venice and Lake Lugano Switzerland! Day 1: Salmon and artichokes in Milan Galleria. My first Italian gelato, also in the galleria on the first night (tiramisu flavor). First pizza and first wine in Italy! The best ...
geneticallychallenged.wordpress.com
Surgery Date is Set | Teenage Mutants
https://geneticallychallenged.wordpress.com/2014/03/09/surgery-date-is-set
My CDH1/ T.G. Journey. Bros’ Night Out. Trip to Italy and Switzerland →. Surgery Date is Set. March 9, 2014. I just got some big news – Dr. Yoon got back to us about our surgeries and we are going in on Monday, June 23rd. We’ll be having pre-op and consultation at the end of May. The surgeries will be done at Memorial Sloan Kettering in Manhattan. Bros’ Night Out. Trip to Italy and Switzerland →. 2 thoughts on “ Surgery Date is Set. March 11, 2014 at 1:51 am. March 11, 2014 at 9:47 pm. Surgery Date is Set.
geneticallychallenged.wordpress.com
February | 2014 | Teenage Mutants
https://geneticallychallenged.wordpress.com/2014/02
My CDH1/ T.G. Journey. Monthly Archives: February 2014. 8220;How will you eat? 8221; and Other Frequently Asked Questions Answered. February 10, 2014. I’m going to try posting a lot in the next couple of weeks in order play catch-up. I want my blog to be up-to-date and cover every piece of the journey so it can be relevant and relatable for others in my situation. With that being said, here is one of the most relatable topics for my fellow soon-to-be-stomachless friends: the questions. Whether or not you...
geneticallychallenged.wordpress.com
Bros’ Night Out | Teenage Mutants
https://geneticallychallenged.wordpress.com/2014/03/09/bros-night-out
My CDH1/ T.G. Journey. 8220;How will you eat? 8221; and Other Frequently Asked Questions Answered. Surgery Date is Set →. Bros’ Night Out. March 9, 2014. Over the weekend I had a really fun night out with some of my guy friends from school! We went to a Seedless/ Stick Figure/ Expendables show at Toad’s Place in New Haven. I had never been to the venue before and I was really impressed; it was perfect for a reggae concert. The magical experience in the feng shui bathrooms was an added bonus.). Trip to It...
geneticallychallenged.wordpress.com
Intro & A Bit About the CDH1 Gene Mutation | Teenage Mutants
https://geneticallychallenged.wordpress.com/2014/02/08/intro-a-bit-about-the-cdh1-gene-mutation
My CDH1/ T.G. Journey. I have the mutation. What now? Intro and A Bit About the CDH1 Gene Mutation. February 8, 2014. However, if you have a genetics-related cancer risk, or are planning to get a T.G. and have somehow stumbled upon this site, HORRAY! I hope that my blog can help you with your journey in some way, and I will try not to make it sound too horrible. If you are looking for more information about this gene mutation, I suggest you check out Karen’s website. No stomach, no cancer. Bros’ Ni...
