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Teenage Mutants | My CDH1/ T.G. Journey

My CDH1/ T.G. Journey

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Teenage Mutants | My CDH1/ T.G. Journey | geneticallychallenged.wordpress.com Reviews

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My CDH1/ T.G. Journey

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1

Surgery Date is Set | Teenage Mutants

https://geneticallychallenged.wordpress.com/2014/03/09/surgery-date-is-set

My CDH1/ T.G. Journey. Bros’ Night Out. Trip to Italy and Switzerland →. Surgery Date is Set. March 9, 2014. I just got some big news – Dr. Yoon got back to us about our surgeries and we are going in on Monday, June 23rd. We’ll be having pre-op and consultation at the end of May. The surgeries will be done at Memorial Sloan Kettering in Manhattan. Bros’ Night Out. Trip to Italy and Switzerland →. 2 thoughts on “ Surgery Date is Set. March 11, 2014 at 1:51 am. March 11, 2014 at 9:47 pm. Surgery Date is Set.

2

Trip to Italy and Switzerland | Teenage Mutants

https://geneticallychallenged.wordpress.com/2014/03/24/trip-to-italy-and-switzerland/comment-page-1

My CDH1/ T.G. Journey. Surgery Date is Set. Trip to Italy and Switzerland. March 24, 2014. My family is so wonderful. They helped make it possible for me to fulfill one of my lifelong dreams and visit Italy over spring break. I stayed in Milan and Lake Como for 4 nights each, with day trips to Venice and Lake Lugano Switzerland! Day 1: Salmon and artichokes in Milan Galleria. My first Italian gelato, also in the galleria on the first night (tiramisu flavor). First pizza and first wine in Italy! The best ...

3

“How will you eat?” and Other Frequently Asked Questions Answered | Teenage Mutants

https://geneticallychallenged.wordpress.com/2014/02/10/how-will-you-eat-and-other-frequently-asked-questions-answered

My CDH1/ T.G. Journey. I have the mutation. What now? Bros’ Night Out →. 8220;How will you eat? 8221; and Other Frequently Asked Questions Answered. February 10, 2014. Hanna’s Answer upon the 500th time hearing this question:. Every week, I will check myself into the hospital and I will be given an I.V. which contains all the necessary nutrients for human survival. I will never eat or poop again. Q: “OMG you will be like SOOO skinny, won’t you? Whether or not your friend/family is going to “look re...

4

I have the mutation. What now? | Teenage Mutants

https://geneticallychallenged.wordpress.com/2014/02/08/i-have-the-mutation-what-now

My CDH1/ T.G. Journey. Intro and A Bit About the CDH1 Gene Mutation. 8220;How will you eat? 8221; and Other Frequently Asked Questions Answered →. I have the mutation. What now? February 8, 2014. 8221; After explaining on the phone that he was not fathering anyone’s child, but instead, I was making a joke pertaining to the inheritance of my father’s rare mutation, my poor friend was very sympathetic and rushed over to give me a hug. As soon as Allison showed up, I was in party mode. That night, I drank m...

5

Bros’ Night Out | Teenage Mutants

https://geneticallychallenged.wordpress.com/2014/03/09/bros-night-out

My CDH1/ T.G. Journey. 8220;How will you eat? 8221; and Other Frequently Asked Questions Answered. Surgery Date is Set →. Bros’ Night Out. March 9, 2014. Over the weekend I had a really fun night out with some of my guy friends from school! We went to a Seedless/ Stick Figure/ Expendables show at Toad’s Place in New Haven. I had never been to the venue before and I was really impressed; it was perfect for a reggae concert. The magical experience in the feng shui bathrooms was an added bonus.). Trip to It...

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Post Gastrectomy Life | Life Without a Stomach

http://marneshafer.com/category/post-gastrectomy-life

Life Without a Stomach. How I navigated my way through a total gastrectomy. Skip to primary content. Skip to secondary content. No Stomach for Cancer. Category Archives: Post Gastrectomy Life. The Unintentional Extreme Taper. January 14, 2017. Jump forward to today. I am recovering from my exhaustion and weakness. I have spent the past few days shoveling as much protein and water as possible into my body. My husband said I lost a noticeable amount of weight this past week. We’ll see tomorrow. Chevron Hou...

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Total Gastrectomy – Recovering | Life Without a Stomach

http://marneshafer.com/category/tgrecovery

Life Without a Stomach. How I navigated my way through a total gastrectomy. Skip to primary content. Skip to secondary content. No Stomach for Cancer. Category Archives: Total Gastrectomy – Recovering. How to Choose a Surgeon for a Total Gastrectomy. April 10, 2016. Below is how I group what you should care about in choosing a surgeon. How many gastrectomies has your potential surgeon performed? You want someone who knows what they’re doing. What is your leakage rate? Stay far aware from any surgeon who ...

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stomachlessrunner | Life Without a Stomach

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Life Without a Stomach. How I navigated my way through a total gastrectomy. Skip to primary content. Skip to secondary content. No Stomach for Cancer. Chevron Houston Marathon – 10 Days Before Race Day. January 6, 2017. This year’s marathon was meant to be. Yesterday afternoon, it all started with an IM from a coworker. She saw me on a FB posting by the Chevron Houston Marathon with the title “10 Days to Go! 8221; Sure enough, there I am! So, let’s go do this! February 16, 2016. One of the big reasons I ...

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#runhou | Life Without a Stomach

http://marneshafer.com/tag/runhou

Life Without a Stomach. How I navigated my way through a total gastrectomy. Skip to primary content. Skip to secondary content. No Stomach for Cancer. Chevron Houston Marathon – 10 Days Before Race Day. January 6, 2017. This year’s marathon was meant to be. Yesterday afternoon, it all started with an IM from a coworker. She saw me on a FB posting by the Chevron Houston Marathon with the title “10 Days to Go! 8221; Sure enough, there I am! So, let’s go do this! December 18, 2016. The answer is friends.

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#HouMarathon | Life Without a Stomach

http://marneshafer.com/tag/houmarathon

Life Without a Stomach. How I navigated my way through a total gastrectomy. Skip to primary content. Skip to secondary content. No Stomach for Cancer. The Unintentional Extreme Taper. January 14, 2017. For my job, I had to pick out what week worked best to go away for a training course. I happily chose the week before the marathon since I thought it would be easiest to attend during the low mileage taper week before the race. There wasn’t much depth to my thoughts beyond mileage. We’ll see tomorrow.

rachelkinney.wordpress.com rachelkinney.wordpress.com

Two months post-op | The Daily Dump

https://rachelkinney.wordpress.com/2014/02/23/two-months-post-op

Life with CDH1, and everything that follows. Since my last post, I’ve connected with more CDH1 bloggers Originally I had been following (more like lurking on) a few blogs here and there looking for pointers and tips for myself on what to expect during my recovery. Little did I know that one of those bloggers had found me as well! Drew and I splurged on when we took our trip to Quebec City right before my surgery! For a hilarious exaggeration of what I’m talking about. Links to other CDH1 Bloggers:. I fig...

tummytribute.wordpress.com tummytribute.wordpress.com

ngp12 | It's A Genetic Thing

https://tummytribute.wordpress.com/author/ngp12

It's A Genetic Thing. The CDH1 Mutation That Changed My Life. Oh my goodness, so much I have missed over the last few months. My apologies for being so delinquent (but we will touch on that a bit later). I have been reaching my goal of 1800 calories every day. I now takes very little time to plan my meals and snacks as I am generally choosing better items. My snacks would most often consist of some if not all of the below on a daily basis:. Cheese and deli meat. Salsa or Bruschetta and Chips. I saw my su...

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Home Sweet Home | It's A Genetic Thing

https://tummytribute.wordpress.com/2015/04/30/home-sweet-home

It's A Genetic Thing. The CDH1 Mutation That Changed My Life. I want to start off saying sorry for the disjointed last post, being in a morphine fog will do that to one…. Well I am finally home; after 14 long days of being in the hospital I can finally get back to some semblance of a routine. It was nice to be sent home on April 29, it was happy though emotional because of the few crappy days and the compassion and warmth the nurses and nursing assistants showed during my stay.They do such a tough jo...

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3 Months Post Op (A couple Weeks Late Posting) | It's A Genetic Thing

https://tummytribute.wordpress.com/2015/07/31/3-months-post-op-a-couple-weeks-late-posting

It's A Genetic Thing. The CDH1 Mutation That Changed My Life. 3 Months Post Op (A couple Weeks Late Posting). I just want to say that I cannot believe that 3 months has passed already. It has absolutely flown by, and I am so glad of the positive improvements that I have been seeing over the last few weeks, though I have had some setbacks. The last 5 weeks have been interesting I have had some losses but I feel more wins. I can now eat bread at no more than one slice at a time. I am extremely sensitive to...

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Teenage Mutants

Monday, February 23, 2015. My organs have been rearranged. It's February 23rd, so that puts my sister and I at exactly 7 months post-gastrectomy. Dr Jimenez used new sutures which he has guaranteed will not dissolve. Maggie is at home and feeling much better now that her insides are in their proper places. Are very small and it's hard to get calories. Are almost at pre-surgery on good days! When I eat too much, I am. In pain for an hour or more. Uncomfortable for 20 minutes or less. Once in a while, and ...

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Teenage Mutants | My CDH1/ T.G. Journey

My CDH1/ T.G. Journey. Trip to Italy and Switzerland. March 24, 2014. My family is so wonderful. They helped make it possible for me to fulfill one of my lifelong dreams and visit Italy over spring break. I stayed in Milan and Lake Como for 4 nights each, with day trips to Venice and Lake Lugano Switzerland! Naturally, I ate some really amazing food while I was in Europe as part of my farewell tribute to my stomach. Exactly 3 months from now, my stomach will be gone, so let the food pics commence! The be...

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Saturday, April 18, 2009. Been long time since i updated this blog. Hmmm, now now, syf is coming. Practices are getting more and more serious. The whole choir lack of discipline. But they just showed a real improvement just now. What i hope is, we are able to maintain our improvements. After that, europe trip, sigh. cannot go. Well, i may help the choir with their europe trip preparation though. Hope everything goes well XD. Saturday, April 11, 2009. Yea, its bad, but still got specks of hopes. We can do...

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