prue-hollygrace.blogspot.com
Holly's journey: April 2011
http://prue-hollygrace.blogspot.com/2011_04_01_archive.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Wednesday, April 27. I went and had a look at my dream car today. Kia Grand Carnival Link. The reality is that its going to cost about $70,000. I have no idea how we are ever going to get that much money. Time to start thinking seriously about fundraising. Tuesday, April 26. Some weeks are really tough. Be putting her in her chair more often, I should. It sounds like ...
prue-hollygrace.blogspot.com
Holly's journey: December 2010
http://prue-hollygrace.blogspot.com/2010_12_01_archive.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Friday, December 3. Happy First Birthday my beautiful girl. I can't belive we got her here! Its been such an amazing, joyous, heart breaking, scarey year. I just don't know how many adjectives I can use! Holly was quite unsettled throughout the day. I really think that it was all the noise and everyone getting up in her face. She just got grumpy and she did a ...She d...
prue-hollygrace.blogspot.com
Holly's journey: Up and downs of the last few months...
http://prue-hollygrace.blogspot.com/2012/02/up-and-downs-of-last-few-months.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Wednesday, February 22. Up and downs of the last few months. What a journey we have been on in the last few months! I'm really not sure if at the time I last posted Holly had her PEG insertion. Anyway, in September 2011 she had her PEG inserted and her hips released. She recovered really well from that. That was until about a month ago. I had sent L home for some slee...
prue-hollygrace.blogspot.com
Holly's journey: Some weeks are really tough...
http://prue-hollygrace.blogspot.com/2011/04/some-weeks-are-really-tough.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Tuesday, April 26. Some weeks are really tough. Be putting her in her chair more often, I should. Be putting her arm and leg braces on more often, I should. Put her in her corner chair more often, I should. Feed her orally more often so she doesn't lose the ability to do so, I should. Big brother, Little sister. April 26, 2011 at 7:12 PM. September 11, 2011 at 2:31 PM.
prue-hollygrace.blogspot.com
Holly's journey: November 2010
http://prue-hollygrace.blogspot.com/2010_11_01_archive.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Wednesday, November 17. We got to the hospital pretty quick, she was just lethargic in the ambulance, but by the time we waited for the doctors to come around and check her out, she was totally fine. She was her usual happy self, just wanting dinner! Saturday, November 13. Far out its been ages! I can't believe its been since September that I posted last. Crazy. Benja...
prue-hollygrace.blogspot.com
Holly's journey: A car?!
http://prue-hollygrace.blogspot.com/2011/04/car.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Wednesday, April 27. I went and had a look at my dream car today. Kia Grand Carnival Link. The reality is that its going to cost about $70,000. I have no idea how we are ever going to get that much money. Time to start thinking seriously about fundraising. Subscribe to: Post Comments (Atom). Here is the link to hydranencephaly.com. View my complete profile.
prue-hollygrace.blogspot.com
Holly's journey: February 2011
http://prue-hollygrace.blogspot.com/2011_02_01_archive.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Thursday, February 17. Is this the end of seizures? Gosh I hope so. We went to the neuro last week, showed him some video of Holly's seizures and he gave us a new medication. We started it on Monday night. She'd been having 3 or 4 a day, up to about 5 or 6 minutes long. Come Tuesday, not one! We are very happy! Wednesday I went back to my eye doctor, bit of a bugger t...
prue-hollygrace.blogspot.com
Holly's journey: Holly Grace - birth story
http://prue-hollygrace.blogspot.com/p/hollys-birth-storey.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Holly Grace - birth story. I couldn't stay, I had to get home. I got to the car and L rang. I told him over the phone, and we agreed to meet at home. How were our lives going to change? I remember thinking there are about 20 people in the room and all of them can see all of me! Subscribe to: Posts (Atom). Here is the link to hydranencephaly.com. The halls of insanity.
prue-hollygrace.blogspot.com
Holly's journey: Sometimes its the little things...
http://prue-hollygrace.blogspot.com/2011/04/sometimes-its-little-things.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Saturday, April 2. Sometimes its the little things. I knew it had been a while, but I didn't realise its been a month. Holly's obviously out of hospital by now! Melissa and Luke Young. April 3, 2011 at 11:17 AM. Subscribe to: Post Comments (Atom). Here is the link to hydranencephaly.com. View my complete profile. Other people's inspiring journey's. Benjamin McKay Orto...
prue-hollygrace.blogspot.com
Holly's journey: Lazy sunday afternoon
http://prue-hollygrace.blogspot.com/2011/04/lazy-sunday-afternoon.html
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Sunday, April 17. We've not had a very eventfull few weeks since the last post really - just plodding along. I'd forgotted how much she annoyed me until she was in the house again. I'm very pleased we don't have to deal with her. No other dramas really! Melissa and Luke Young. April 17, 2011 at 6:03 PM. Subscribe to: Post Comments (Atom). View my complete profile.