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Hope for Gus - Searching for a Cure for DMD

Hope for Gus - Searching for a Cure for DMD. Sunday, January 2, 2011. The Year for DMD - The Year for Hope for Gus - Part 1. 2010 was a busy year – for Duchenne Muscular Dystrophy Research and for Hope for Gus. I’ll talk about DMD research first – it was a year of disappointments and some hope of progress – ‘there’s good news and bad news…’ as the saying goes. Here are some highlights:. In March, PTC Therapeutics and Genzyme Corporation. This was heartbreaking and scary for a bunch of reasons:. 8220;We a...

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Hope for Gus - Searching for a Cure for DMD | hopeforgus.blogspot.com Reviews

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Hope for Gus - Searching for a Cure for DMD. Sunday, January 2, 2011. The Year for DMD - The Year for Hope for Gus - Part 1. 2010 was a busy year – for Duchenne Muscular Dystrophy Research and for Hope for Gus. I’ll talk about DMD research first – it was a year of disappointments and some hope of progress – ‘there’s good news and bad news…’ as the saying goes. Here are some highlights:. In March, PTC Therapeutics and Genzyme Corporation. This was heartbreaking and scary for a bunch of reasons:. 8220;We a...

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Hope for Gus - Searching for a Cure for DMD | hopeforgus.blogspot.com Reviews

https://hopeforgus.blogspot.com

Hope for Gus - Searching for a Cure for DMD. Sunday, January 2, 2011. The Year for DMD - The Year for Hope for Gus - Part 1. 2010 was a busy year – for Duchenne Muscular Dystrophy Research and for Hope for Gus. I’ll talk about DMD research first – it was a year of disappointments and some hope of progress – ‘there’s good news and bad news…’ as the saying goes. Here are some highlights:. In March, PTC Therapeutics and Genzyme Corporation. This was heartbreaking and scary for a bunch of reasons:. 8220;We a...

INTERNAL PAGES

hopeforgus.blogspot.com

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Hope for Gus - Searching for a Cure for DMD: Duchenne Muscular Dystrophy and The Economics of My Son's Life

http://hopeforgus.blogspot.com/2010/09/economics-of-my-sons-life.html

Hope for Gus - Searching for a Cure for DMD. Monday, September 27, 2010. Duchenne Muscular Dystrophy and The Economics of My Son's Life. It's been almost a year since Gus was diagnosed with DMD. On the drive into work this morning, I was thinking about what I've learned about DMD since that November evening in 2009 when the doctor from Dartmouth called. It comes down to four things:. We pray that we haven't entered Bill Murray's Goundhog Day. That's where John Crowley. I'm no mathematician, but, based on...

2

Hope for Gus - Searching for a Cure for DMD: Cousin Jake

http://hopeforgus.blogspot.com/2010/09/cousin-jake.html

Hope for Gus - Searching for a Cure for DMD. Monday, September 13, 2010. I wanted to share a poem written by Jake, Gus' oldest cousin. Jake is in 8th grade, and he has shown us his maturity, compassion and love for his cousin by organizing a fundraiser last year at his school that netted $600 (for that, he made it onto our Heros page here. Hey, hey hey my cousin,. One day I heard,. You have a bit of a problem,. Like something with your muscles isn't working quite right,. But let me the first to say,.

3

Hope for Gus - Searching for a Cure for DMD: Levi Miller - 19 Years Old

http://hopeforgus.blogspot.com/2010/10/levi-mille-19-years.html

Hope for Gus - Searching for a Cure for DMD. Friday, October 22, 2010. Levi Miller - 19 Years Old. A couple of weeks ago, my friend's nephew died. He was one month into his 19th year. Duchenne Muscular Dystrophy killed him. I didn't know Levi. I wish I had. The program from his funeral tells me that he "was a computer gamer, a Hawkeye football fan, sci-fi fanatic, US military and history junky and food network junky.:. He was 19 years old, a boy who wasn't granted the time to become a man.

4

Hope for Gus - Searching for a Cure for DMD: July 2010

http://hopeforgus.blogspot.com/2010_07_01_archive.html

Hope for Gus - Searching for a Cure for DMD. Tuesday, July 20, 2010. 11,000 to spend. In the few months since we began The Hope for Gus Foundation. Due primarily to the generosity of our friends, family and community, we raised $11,000.We knew full well that every dollar mattered, first for our son, but also for our foundation. This was our first big disbursement, so we wanted to do it right. I'll give you a clue - a whole bunch of prayin' was involved. That's right, it was chemo and radiation. I...Was 5...

5

Hope for Gus - Searching for a Cure for DMD: September 2010

http://hopeforgus.blogspot.com/2010_09_01_archive.html

Hope for Gus - Searching for a Cure for DMD. Monday, September 27, 2010. Duchenne Muscular Dystrophy and The Economics of My Son's Life. It's been almost a year since Gus was diagnosed with DMD. On the drive into work this morning, I was thinking about what I've learned about DMD since that November evening in 2009 when the doctor from Dartmouth called. It comes down to four things:. We pray that we haven't entered Bill Murray's Goundhog Day. That's where John Crowley. I'm no mathematician, but, based on...

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hopeforgus.blogspot.com

Hope for Gus - Searching for a Cure for DMD

Hope for Gus - Searching for a Cure for DMD. Sunday, January 2, 2011. The Year for DMD - The Year for Hope for Gus - Part 1. 2010 was a busy year – for Duchenne Muscular Dystrophy Research and for Hope for Gus. I’ll talk about DMD research first – it was a year of disappointments and some hope of progress – ‘there’s good news and bad news…’ as the saying goes. Here are some highlights:. In March, PTC Therapeutics and Genzyme Corporation. This was heartbreaking and scary for a bunch of reasons:. 8220;We a...

hopeforgus.com

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hopeforgus.org

Hope For Gus Foundation | Funding Research for Duchenne Muscular Dystrophy

Funding Research for Duchenne Muscular Dystrophy. Our Supporters and Sponsors. What is Duchenne Muscular Dystrophy? Duchenne Muscular Dystrophy, like all muscular dystrophies, causes weakening of the muscles. DMD is a recessive genetic mutation that occurs on the X chromosome. As a result, it almost exclusively affects boys. Unfortunately for the boys who have been diagnosed with DMD, it is the most severe of all the muscular dystrophies:. They die earlier, most boy’s with DMD die in their mid 20’s.

hopeforgus.wordpress.com

Hope for Gus | Searching for a Cure for Duchenne Muscular Dystrophy

Searching for a Cure for Duchenne Muscular Dystrophy. Gus Turned 6 – The Balancing Act (plus a new song! May 12, 2011. It was a mere 5 months ago that I promised to write again soon – seems like only yesterday. But, Duchenne Muscular Dystrophy is a balancing act, and we ended up on one side of the see-saw. We spent the last few months taking care of Gus – we bought a new house – one that’s better for him (not. It was a great birthday! Gus turned 6 yesterday and his disease reminded me that each of those ...

hopeforgusball.com

Hope For Gus -

Hope For Gus Ball - Valentine’s in Vegas - 2/15/14 - 7:30 PM - Manchester. Gus is the 8 yr old son of Steve and Tonya Dreher of Peterborough NH. They founded Hope for Gus when he was diagnosed with this progressive, muscle-wasting disorder at age 4. DMD is currently 100% fatal, but the Drehers hope to change that diagnosis. On February 15, 2014 the Hope for Gus Foundation. Will hold its 3rd Annual Hope for Gus Ball, Valentine’s in Vegas. 7:30pm, at the Radisson Hotel Downtown in Manchester NH. Hope for G...

hopeforgusball.org

Hope For Gus -

Hope For Gus Ball - Valentine’s in Vegas - 2/15/14 - 7:30 PM - Manchester. Gus is the 8 yr old son of Steve and Tonya Dreher of Peterborough NH. They founded Hope for Gus when he was diagnosed with this progressive, muscle-wasting disorder at age 4. DMD is currently 100% fatal, but the Drehers hope to change that diagnosis. On February 15, 2014 the Hope for Gus Foundation. Will hold its 3rd Annual Hope for Gus Ball, Valentine’s in Vegas. 7:30pm, at the Radisson Hotel Downtown in Manchester NH. Hope for G...