HOPEFORGUS.ORG

Hope For Gus Foundation | Funding Research for Duchenne Muscular Dystrophy

Funding Research for Duchenne Muscular Dystrophy. Our Supporters and Sponsors. What is Duchenne Muscular Dystrophy? Duchenne Muscular Dystrophy, like all muscular dystrophies, causes weakening of the muscles. DMD is a recessive genetic mutation that occurs on the X chromosome. As a result, it almost exclusively affects boys. Unfortunately for the boys who have been diagnosed with DMD, it is the most severe of all the muscular dystrophies:. They die earlier, most boy’s with DMD die in their mid 20’s.

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Hope For Gus Foundation | Funding Research for Duchenne Muscular Dystrophy | hopeforgus.org Reviews

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Funding Research for Duchenne Muscular Dystrophy. Our Supporters and Sponsors. What is Duchenne Muscular Dystrophy? Duchenne Muscular Dystrophy, like all muscular dystrophies, causes weakening of the muscles. DMD is a recessive genetic mutation that occurs on the X chromosome. As a result, it almost exclusively affects boys. Unfortunately for the boys who have been diagnosed with DMD, it is the most severe of all the muscular dystrophies:. They die earlier, most boy’s with DMD die in their mid 20’s.

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Hope For Gus Foundation | Funding Research for Duchenne Muscular Dystrophy | hopeforgus.org Reviews

https://hopeforgus.org

Funding Research for Duchenne Muscular Dystrophy. Our Supporters and Sponsors. What is Duchenne Muscular Dystrophy? Duchenne Muscular Dystrophy, like all muscular dystrophies, causes weakening of the muscles. DMD is a recessive genetic mutation that occurs on the X chromosome. As a result, it almost exclusively affects boys. Unfortunately for the boys who have been diagnosed with DMD, it is the most severe of all the muscular dystrophies:. They die earlier, most boy’s with DMD die in their mid 20’s.

INTERNAL PAGES

hopeforgus.org

1

Isabel’s Essay | Hope For Gus Foundation

http://hopeforgus.org/isabels-essay

Funding Research for Duchenne Muscular Dystrophy. May 11, 2015. March 4, 2016. Isabel’s essay for the NH Council for Youth with Chronic Disabilities. My brother, Gus. Gus has Duchenne Muscular Dystrophy, or DMD. DMD is a disorder that blights one in 3500 boys born. These children suffer with rapidly worsening muscle weakness, and experience frequent muscle cramps. Many of them take a wide variety of drugs to slow the disease’s progress, but presently, there is no cure. A NH-based foundation that grants d...

2

The DA Meets! | Hope For Gus Foundation

http://hopeforgus.org/the-da-meets

Funding Research for Duchenne Muscular Dystrophy. March 27, 2012. March 4, 2016. DUCHENNE ALLIANCE HOLDS GROUNDBREAKING MEETING ON DUCHENNE MUSCULAR DYSTROPHY, IGNITES REVOLUTION IN BIOMEDICAL FUNDING. Boulder, CO, March 11, 2012 The Duchenne Alliance, a group of nearly 40 international independent foundations focused on Duchenne Muscular Dystrophy, has taken a groundbreaking step toward winning what it calls the ultimate race against time. About the Duchenne Alliance. We are an alliance of independent D...

3

Gus Turns Six – and the Balancing Act | Hope For Gus Foundation

http://hopeforgus.org/gus-turns-six-and-the-balancing-act

Funding Research for Duchenne Muscular Dystrophy. Gus Turns Six – and the Balancing Act. March 6, 2012. March 4, 2016. It was a mere 5 months ago that I promised to write again soon – seems like only yesterday. But, Duchenne Muscular Dystrophy is a balancing act, and we ended up on one side of the see-saw. We spent the last few months taking care of Gus – we bought a new house – one that’s better for him (not. It was a great birthday! Gus turned 6 yesterday and his disease reminded me that each of those ...

4

What is DMD? | Hope For Gus Foundation

http://hopeforgus.org/what-is-dmd

Funding Research for Duchenne Muscular Dystrophy. What is Duchenne Muscular Dystrophy? Duchenne Muscular Dystrophy, like all muscular dystrophies, causes weakening of the muscles. DMD is a recessive genetic mutation that occurs on the X chromosome. As a result, it almost exclusively affects boys Unfortunately for the boys who have been diagnosed with DMD, it is the most severe of all the muscular dystrophies:. Boys with this disease are diagnosed earlier, usually between 3 and 5 years of age. Researchers...

5

The Inverted World of Duchenne Muscular Dystrophy | Hope For Gus Foundation

http://hopeforgus.org/the-inverted-world-of-duchenne-muscular-dystrophy

Funding Research for Duchenne Muscular Dystrophy. The Inverted World of Duchenne Muscular Dystrophy. June 12, 2013. March 4, 2016. It struck me during a meeting at Gus ’school. He was in kindergarten, and having some difficulties due to his already weakening muscles he struggles to hold a pencil correctly, to cut on a line, even to keep his gaze on one spot for an extended time. The teacher suggested that we create some goals to move Gus forward. The simple and unthinkable answer? At the beginning of thi...

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katiecurtis.net

Marriage Math | Katie Curtis

http://www.katiecurtis.net/marriage-math

10 July, 2015. Sorry for the radio silence on my writing blog. As this post can attest to, we had a busy June! But I am looking forward to getting back to regular writing after our travels. Good writing takes time, and I am striving for quality, so I will always choose that over quantity. But I love this little space on the internet. I hope you do too. 8220;Going once. Going twice. Sold to the gentleman in the back.”. The auctioneer pointed to my husband, Rob. He was doing it for me. This was the longest...

prothelia.com

Prothelia News

http://www.prothelia.com/livesite/pages/news

January 2014.Prothelia Incorporated (Prothelia) and University of Nevada, Reno. Announce that they have entered into strategic agreements with Alexion for the development of Laminin-111, a patented experimental protein replacement therapy for merosin-deficient congenital muscular dystrophy (MDC1A), a life-threatening, ultra-rare disease caused by a genetic deficiency of the Laminin-211 protein. ( http:/ www.prnewswire.com/news-releases/prothelia-and-the-university-of-nevada-reno-enter-into-ex...Donates $...

akashirx.com

Financial Supporters - Akashi RX

http://akashirx.com/financial-supporters

Akashi is focused on what I've been doing and wanted to keep doing all my life, with the needed resources and the expertise to make it happen. Dr Diana Escolar, Chief Medical Officer. Akashi’s Financial Supporters. In addition to company founders Charley’s Fund. And Nash Avery Foundation. Akashi has received financial support from a broad spectrum of patient foundations focused on finding treatments for DMD and related diseases. These foundations are:.

katiecurtis.net

These Four Walls | Katie Curtis

http://www.katiecurtis.net/these-four-walls

8 June, 2015. Lucy, age 9 months, visiting a lake cottage. Where we went with lots of sippy cups. Eight years later, we are gearing up for a trip to France. The rituals of your every day life, in the same old surroundings with Lincoln logs and Cheerios scattered on the floor more days than you care to admit, are happiness within the strain. Joy within the fatigue. It is hard to see. But the ordinary life stuff might just be better then the trip of a life time, when all is said and done.

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InMotion Hosting Support Center. Log Into Your Control Panel. Log Into Your Webmail. This page belongs to a member of the InMotion Hosting. If you are visiting this site, please check back soon. If you own this site, your new web hosting account is now activated! Please make sure to replace this page with your own index.htm page.

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Hope for Guatemala

Writing To Your Prayer Partner. Writing To Your Prayer Partner. Hope for Guatemala is dedicated to helping the children and families in Zone 18 of Guatemala City break the cycle of poverty and help them achieve the quality of life that God desires for them. Guided by faith, we give our children the opportunity to achieve their goals and dreams for a better tomorrow.

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Hope For Guatemala

A Short Notice Blessing. I am amazed at how God is continually working on our behalf. In a last minute call, I have been given the opportunity to go back to Guatemala. I leave next Wednesday Nov. 24th. I am excited because I get the opportunity to help out an amazing friend, Ashley Williams. She is beginning to launch her new organization Hope Renewed. I am excited to see the new projects and opportunities God has been opening for her. With such short notice I need your help! Nail Polishes (all colors).

hopeforgus.blogspot.com

Hope for Gus - Searching for a Cure for DMD

Hope for Gus - Searching for a Cure for DMD. Sunday, January 2, 2011. The Year for DMD - The Year for Hope for Gus - Part 1. 2010 was a busy year – for Duchenne Muscular Dystrophy Research and for Hope for Gus. I’ll talk about DMD research first – it was a year of disappointments and some hope of progress – ‘there’s good news and bad news…’ as the saying goes. Here are some highlights:. In March, PTC Therapeutics and Genzyme Corporation. This was heartbreaking and scary for a bunch of reasons:. 8220;We a...

hopeforgus.com

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hopeforgus.org

Hope For Gus Foundation | Funding Research for Duchenne Muscular Dystrophy

Funding Research for Duchenne Muscular Dystrophy. Our Supporters and Sponsors. What is Duchenne Muscular Dystrophy? Duchenne Muscular Dystrophy, like all muscular dystrophies, causes weakening of the muscles. DMD is a recessive genetic mutation that occurs on the X chromosome. As a result, it almost exclusively affects boys. Unfortunately for the boys who have been diagnosed with DMD, it is the most severe of all the muscular dystrophies:. They die earlier, most boy’s with DMD die in their mid 20’s.

hopeforgus.wordpress.com

Hope for Gus | Searching for a Cure for Duchenne Muscular Dystrophy

Searching for a Cure for Duchenne Muscular Dystrophy. Gus Turned 6 – The Balancing Act (plus a new song! May 12, 2011. It was a mere 5 months ago that I promised to write again soon – seems like only yesterday. But, Duchenne Muscular Dystrophy is a balancing act, and we ended up on one side of the see-saw. We spent the last few months taking care of Gus – we bought a new house – one that’s better for him (not. It was a great birthday! Gus turned 6 yesterday and his disease reminded me that each of those ...

hopeforgusball.com

Hope For Gus -

Hope For Gus Ball - Valentine’s in Vegas - 2/15/14 - 7:30 PM - Manchester. Gus is the 8 yr old son of Steve and Tonya Dreher of Peterborough NH. They founded Hope for Gus when he was diagnosed with this progressive, muscle-wasting disorder at age 4. DMD is currently 100% fatal, but the Drehers hope to change that diagnosis. On February 15, 2014 the Hope for Gus Foundation. Will hold its 3rd Annual Hope for Gus Ball, Valentine’s in Vegas. 7:30pm, at the Radisson Hotel Downtown in Manchester NH. Hope for G...

hopeforgusball.org

Hope For Gus -

Hope For Gus Ball - Valentine’s in Vegas - 2/15/14 - 7:30 PM - Manchester. Gus is the 8 yr old son of Steve and Tonya Dreher of Peterborough NH. They founded Hope for Gus when he was diagnosed with this progressive, muscle-wasting disorder at age 4. DMD is currently 100% fatal, but the Drehers hope to change that diagnosis. On February 15, 2014 the Hope for Gus Foundation. Will hold its 3rd Annual Hope for Gus Ball, Valentine’s in Vegas. 7:30pm, at the Radisson Hotel Downtown in Manchester NH. Hope for G...

hopeforhaas.org

Hope For HAAS

What is the ASC? What is the ASC? HAAS NEEDS YOUR HELP. How your donation will help. What is the ASC? Hawaii Academy of Arts and Science, PO Box 1494, Pahoa HI 96778, Pahoa, Hawaii 96778.

hopeforhagerstown.org

Convoy of Hope - Hagerstown

How You Can Help. Welcome to Convoy of Hope - Hagerstown. About Convoy of Hope:. Hagerstown Convoy of Hope is a huge “carnival-like” event featuring:. 30,000 lbs of groceries. Job and health fair. With prizes and give-aways. Access to dozens of community resources. With inflatable games, entertainment, food and prizes, and lots of other games. And best of all, everything is FREE. To read more about Convoy of Hope International. Will be held on October 3rd, 2014.