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HOPEFORHIE.ORG

Hope for HIE - Hypoxic Ischemic Encephalopathy

Hope for HIE is a worldwide organization of families whose children have been affected by hypoxic ischemic encephalopathy (also called neonatal hypoxic, neonatal asphyxia, neonatal depression). We connect to support families, educate the greater community and generate awareness of HIE. We believe that hope is found in the journey, regardless of outcome.

http://www.hopeforhie.org/

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Hope for HIE - Hypoxic Ischemic Encephalopathy | hopeforhie.org Reviews
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Hope for HIE is a worldwide organization of families whose children have been affected by hypoxic ischemic encephalopathy (also called neonatal hypoxic, neonatal asphyxia, neonatal depression). We connect to support families, educate the greater community and generate awareness of HIE. We believe that hope is found in the journey, regardless of outcome.
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3 what is hie
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6 resources
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Hope for HIE - Hypoxic Ischemic Encephalopathy | hopeforhie.org Reviews

https://hopeforhie.org

Hope for HIE is a worldwide organization of families whose children have been affected by hypoxic ischemic encephalopathy (also called neonatal hypoxic, neonatal asphyxia, neonatal depression). We connect to support families, educate the greater community and generate awareness of HIE. We believe that hope is found in the journey, regardless of outcome.

INTERNAL PAGES

hopeforhie.org hopeforhie.org
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Volunteer - Hope for HIE

https://www.hopeforhie.org/volunteer

What can HIE Cause? What can HIE Cause? After filling out your interests in volunteering with Hope for HIE, you will then be directed to fill out our Volunteer Agreement and Liability Form. Once these are confirmed, our secretary will reach out to grant you access to our volunteer community resources. I will recruit 5 friends. I will help raise money. I am interested in NICU Outreach. I am interested in the website committee. I am interested in advocacy efforts. I am interested in being a peer mentor.

2

People - Hope for HIE

https://www.hopeforhie.org/people

What can HIE Cause? What can HIE Cause? Hope for HIE is a US-based 501(c)(3) non-profit organization with a worldwide network and presence, dedicated to promoting awareness, education and support for Hypoxic Ischemic Encephalopathy (HIE). The organization was incorporated legally within the State of Michigan in 2013 and is governed by a US-based Board of Directors. The Hope for HIE Board of Directors. Vice President, Professional Outreach. Vice President, Fundraising. Vice President, Marketing. The infor...

3

Spread the word - Hope for HIE

https://www.hopeforhie.org/spread_the_word

What can HIE Cause? What can HIE Cause? Sign in with Facebook. To get your personal tracking link. Send an email or private Facebook message. Share with your LinkedIn network. You can also post to tumblr, reddit, and digg. Spread the word about this Charity:. When you sign in, you will be able to see who you've recruited here. The information presented through this website cannot substitute for the advice of a medical professional (for instance, a qualified doctor/physician, nurse, pharmacist, etc.).

4

Hope for HIE - Hypoxic Ischemic Encephalopathy

https://www.hopeforhie.org/about

What can HIE Cause? What can HIE Cause? Hope for HIE began with a virtual network of parents seeking to connect after their child had been diagnosed with HIE (Hypoxic Ischemic Encephalopathy). Since beginning on Facebook in 2010, the network has grown to serve thousands of families worldwide. The organization was incorporated legally in the state of Michigan in 2013 and is governed by a U.S.-based Board of Directors. We believe that hope is found in the journey, regardless of outcome. We hope you will jo...

5

Resources - Hope for HIE

https://www.hopeforhie.org/resources

What can HIE Cause? What can HIE Cause? Every day, we face questions and search for answers that will help us on our HIE journey. Whether you're new to HIE, or a seasoned veteran, our resource area is a great place to find helpful information. Our resources will help you think about the questions to ask, and the choices and options to consider on your HIE journey. Are updated regularly and are sent in by HIE parents all over the world. Do you like to write? Want to tell us your story? Handouts, flyers an...

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nicuawareness.org nicuawareness.org

Disorder Resources - Neonatal Intensive Care Awareness Month

http://www.nicuawareness.org/disorder-resources.html

Neonatal Intensive Care Awareness Month. NICU Info Initiative Days. Locate resources for disorders that can lead to or prolong a NICU stay. Email us at nicuawareness@projectsweetpeas.com if you would like your organizational information included. The only website in the world that connects parents whose children have the same rare disease. Kids Health / Birth Defects. Information about the causes of, and treatment for various birth defects. Birth Defect Research for Children. Reaching for the Stars.

nicuawareness.org nicuawareness.org

Neonatal Intensive Care Awareness Month - Blog

http://www.nicuawareness.org/blog.html

Neonatal Intensive Care Awareness Month. NICU Info Initiative Days. Stories of Necrotizing Enterocolitis (NEC). Necrotizing Enterocolitis is common among ill or premature infants that occurs when bacteria invades the intestine. This bacteria causes an infection and inflammation which ultimately destroys the bowel or intestine. “NEC affects one in 2,000 to 4,000 births” which ends up being “between 1 and 5% of neonatal intensive care unit admissions” [1]. Unfortunately it is still mostly unknown how and w...

seitzfam.wordpress.com seitzfam.wordpress.com

Hello Again! | See the Seitz

https://seitzfam.wordpress.com/2014/12/17/hello-again

Living, Loving, and Laughing with HIE. December 17, 2014. It’s been a whirlwind of activity, big changes and lots of learning since the last time I wrote an update on our family. I can’t believe I’ve neglected our blog for over a YEAR. However, that should tell you that life has been more than a little busy. Update on the kids. We’re happy to report she’s still off all seizure drugs/medications. Be sure to get yours ordered today as they’re available for a limited time: ht. Our 3rd Baby: My Business.

whatiwouldtellyou.com whatiwouldtellyou.com

Weblog | What I Would Tell You

http://www.whatiwouldtellyou.com/weblog

What I Would Tell You. We walk a similar path and although I am a few steps ahead or even a few steps behind, I am you and you are me. I write it all down as I am inspired to do so and I have even published a book and yet I am still “just a mom” like you. I was thinking to myself, “. Oh man…….I should have planned my session differently. These mamas might think I am some sort of weirdo showing up with my rituals and unrealistic optimism about grieving.”. It turns out that my session was well received and...

stjoesparents.org stjoesparents.org

Parent to Parent Support Group | Parents of NICU Babies | St. Joseph Hospital | Denver, CO

http://www.stjoesparents.org/resources.shtml

Resources: During Your NICU Stay. App available through iTunes ($4.99) makes it easy to record your preemies progress and includes a pocket guide to preemies. Allows you to input info on multiple babies. Free app for Apple and Android is a glossary of words you might hear in the NICU. Create your own site to keep loved ones up to date on your babys NICU journey. Another option for medical update websites for families. A website providing information, support, and inspiration for NICU parents. It is extre...

napsw.org napsw.org

Resources | NAPSW

http://www.napsw.org/resources

What is a Perinatal Social Worker. Committees and Board of Directors. Get Involved with NAPSW. Innovative Program Award & Research Grant. NAPSW Forum Back Issues. 151; NAPSW History. 151; What is a Perinatal Social Worker. 151; Committees and Board of Directors. 151; Get Involved with NAPSW. 151; Interactive Map. 151; Social Action. 151; Member Login. 151; Membership Levels. 151; Membership Benefits. 151; Join NAPSW. 151; Innovative Program Award & Research Grant. 151; 2016 Conference. 151; 2015 Recipient.

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Over the Easter break we were able to bring Heyden and the family back to Give Kids The World the site of her Make A Wish. While there we visited with other families going through the same fight we had conquered 1 year ago. She was able to get a picture with her brick we purchased to always remember the generosity of the Make A Wish foundation. As of now Heyden is in remission. Thank you to everyone who donated and supported our family :). Welcome To My Site. It is safe to say she is in REMISSION!

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A Closer Look at HH. About Hope For HH. News, Research & Resources. Talks on HH Topics. All HH patients and caregivers eligible. Hope for Hypothalamic Hamartomas, The Epilepsy Foundation and 9 other rare epliepsy organizations were awarded a $1M grant to launch a rare epilepsy registry! We challenge every HH patient and caregiver to complete the REN survey so we can better understand what causes HH and how to cure it! March 27th, 2018. What will you be doing April 3rd? March 21st, 2018. March 20th, 2018.

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Hope for HIE - Hypoxic Ischemic Encephalopathy

What can HIE Cause? Start Your Own Fundraiser. What can HIE Cause? Start Your Own Fundraiser. Welcome to a place of HOPE. Where you are not alone. And Hope is found in the Journey. Welcome to Hope for HIE, the premier resource for families whose children have been diagnosed with hypoxic ischemic encephalopathy (HIE). Do you like this page? None of the individual contributors, or administrators of this website can take any responsibility for the results or consequences of any attempt to use or adopt any o...

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Hope for Higher Ed. The coolest things I learned in college. Hunter-gatherers had a pretty light work load. Our human ancestors have perhaps been hunter-gatherers for 95% of the history of our species, and agriculturalists for the last 5%. I was surprised to learn that the farming lifestyle actually created a lot more work for people than hunting and gathering did- early farmers would work at least 40 hours per week, whereas foragers might spend as little as 10-15 hours per week getting food! As strange ...

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美ヶ原温泉を満喫したい方必見|国内旅行で最高の思い出を残す

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Hope for Hillsborough (For Justice) | By Anne Williams, for her son, Kevin

Hope for Hillsborough (For Justice). By Anne Williams, for her son, Kevin. What Happened at Hillsborough. Thank you for visiting. December 28, 2011. On April 15th, 1989, 24,000 Liverpool fans travelled to Sheffield to watch their team play in the semi-final of the FA Cup at the Hillsborough stadium. 96 of those fans never returned. Kevin Daniel Williams was just 15 when he died in Sheffield that day, and his mother, Anne Williams, is still fighting for truth and justice for her son over two decades.